Please Join Us In Chat at the MDA Website - Tomorrow Night - 6/21/2004

[Guest guest]

Dr on from the University of New Mexico and Tingly Hospital

for Children will be our special guest. We anticipate many participants and

questions, thus we will use the following format. We realize that the format is

somewhat strict but this allows us to have order and to make our guest

comfortable. If you are coming to view the chat and not ask a question - please

log off and log back in as a " guest " . This will allow the maximum number of

people who have questions the opportunity. If you have asked a question and it

has been answered, please log off and log back in as a guest so that others have

the opportunity to enter the chat. You will be able to read the remainder of the

chat. The chat allows a certain number of participants and when we exceed that

number, no one else is allowed to enter.

As you enter the room, you will be given a number which will be openly given on

the chat site. That number is sequential thus in the order you entered. When

your number comes up, you may ask one question and only one question will be

open for the doctor at a time. When she has completed answering the question the

next person in the sequential order will be allowed to post their question. You

will be notified by private message when it is your turn to ask your question

just prior to the time to post it. You might find it helpful to have pre-posted

the question in preparation for entering but be very careful not to hit the send

key until you have been given clearance to do so. Please post your question in

ALL CAPS as this will help Dr on recognize each new question. In this case

- it will not be considered shouting. When our guest has completed answering the

question she will post a " ? " to let us know that she is ready for the next

question to be asked.

Please reserve this chat for questions to be asked of our guest only. It is a

very special gift of time and expertise that the guest is offering us and we

need to treat our guest with respect. If you wish to chat with someone in the

room, please go to the private chat and communicate. Anyone who violates the

instructions will receive a warning. If a second warning is necessary, the

person will lose their privilege to be in the chat and will be removed. We hope

that we don't find it necessary to do this.

The chat transcript will be available on the MDA website as soon as it has been

edited by Dr on and the MDA Chat Administrator. Sometimes this takes a

considerable amount of time as these individuals are very busy. We ask for your

patience while this is being prepared. We are very happy you have joined us

tonight and hope you enjoy this special chat session. We also express our

gratitude to Dr on for being with us tonight.

Dr. on originated and has directed the Pediatric MDA Clinic at the

University of New Mexico since 1995. She has taken care of children with

neuromuscular diseases since her first career in pediatric physical therapy.

Through medical school at the University of New Mexico and residency training at

s Hopkins Hospital (completed 1992), her interest in these disorders has

grown. Clinical interests include inherited diseases of nerve and muscle,

especially those that disproportionately affect New Mexican families. She has

research projects in myotonic, oculopharyngeal and Duchenne muscular

dystrophies. She loves mentoring students, residents, and young faculty and is

developing a project for teaching primary care physicians about child neurology

topics. Family workshops are being planned for Duchenne and oculopharyngeal

muscular dystrophy. She has served as an executive board member of New Mexico

MDA, and as an MDA camp physician. Nationally, she currently serves on the

executive boards of the Child Neurology Foundation, the Transverse Myelitis

Association, as a member of the Practice Parameter committee of the Child

Neurology Society, and as an examiner for the National Board of Psychiatry and

Neurology, and on the Recertification Committee for Child Neurology. She

contributes to the Ask the Experts service.

To enter chat and participate, you must have a sign on name and password. This

must be saved if you plan to particpate in future chats as you will only be

issued one password. To register, please go to

http://database.azstarnet.com/dynamic/plsql/mdachat25

Follow this link to login into the MDAchat. http://mdausa.org/chat/index.html

Be sure to enter the Mitochondrial Chat.

Please copy these instructions for ease in following the chat format.

The time for chat is 9 PM to 10 PM Eastern. If you need a time zone converter,

please check with the following link:

http://www.timeanddate.com/worldclock/

We look forward to seeing you in this very special chat session.

Alice

http://www.groups.yahoo.com/group/