Re: RE: reflux medications/Heidi

[Guest guest]

Thanks for your insite. You sound like you and your daughter have really have been through the ringer on the GI problems. Wow, I really hope we do not have to resort to IV meds, yet. We do think that the majority of her recent problems are due to motility. Her GI and I have yet to discuss testing to see "for sure". So far it has just been an assumtion that it probally is slow motility, (my GI consults with Dr.Cohen alot.) She has the pretty obvious signs, eating once a day, constipation, and vomiting up food that has been eaten 8-12 hours earlier. She does have a G tube, but she does eat orally. So far the G tube is primarily for medications, and the occasional need for extra fluids. I keep seeing people talking about "venting" the tubes, but I have no idea how to do that. We do not even have a pump for her tube, we don't want it to be that "easy" to just resort to tube feeding until it becomes necessary. I do not like the idea of adding more medications, because she takes so much already (I think current count is 11 different prescriptions). I will be looking into something more for motility, though. Maybe that way we can cut down on other things, like high doses of Periactin for appetite, and Miralax for constipation. Thanks again.

mommy to Grace, 24 months, nonspecific mito, g tube, asthma, liver disease, tons of GI problems, migranes, lots of autonomic dysfunction problems, hypoglycemia, speech delays, and she loves to get into anything her little hands can get ahold of. (I just love 2year olds.) I am pretty sure I probally missed somthing, I don't usually include all of her problems at the end.