Empty Sella Syndrome and Sarcoidosis

[Guest guest]

There is a direct link in ESS and sarc-- especially when the pitutary stalk is involved. Interesting site"

http://www.endotext.org/neuroendo/neuroendo4/neuroendo4.htm

Also, for those of us who have or had high prolactin levels (it was the primary reason for my infertility) there is also a connection with sarcoidosis effecting the pitutary gland and hypothalmus. (Hypothalmus controls body temperature also.)

Another one for thought. .

Tracie

NS co-owner/moderator

[Guest guest]

Now that I am finding this out, remember when the so called doctor wanted to remove my thyroid because of a so called cyst after that 6 needle biopsy? Now this makes more sense to me. the more I read this the more I am thinking I have Sarc of the Thyroid and the Hypothalmus.

Sharon L. Schuckman

Deuce's Angel

sharupac@...

Empty Sella Syndrome and SarcoidosisThere is a direct link in ESS and sarc-- especially when the pitutary stalk is involved. Interesting site"http://www.endotext.org/neuroendo/neuroendo4/neuroendo4.htmAlso, for those of us who have or had high prolactin levels (it was the primary reason for my infertility) there is also a connection with sarcoidosis effecting the pitutary gland and hypothalmus. (Hypothalmus controls body temperature also.)Another one for thought. . TracieNS

co-owner/moderator

[Guest guest]

Thanks Tracie, this helped and then I thought about something...I was diagnosed with hypothyroidism around early 30's (I'm 49 now almost 2o yrs later)...the heart skips were aroubd the same time although were not as bad as a few yrs later...a brain CT years later showed a partially empty sella (had been having headaches and a pounding sensation in my head when I would go from standing/sitting to lying down)...many years after that was dx with sarcoid but probably had it all along...made me think of a possible link. This disease has the ability to affect the entire body and in my case is multisystemic. I don't know of any other disease that can do this...just now really thinking about all this...Btiodaat@... wrote: There is a direct link in ESS and sarc-- especially when the pitutary stalk is involved. Interesting site" http://www.endotext.org/neuroendo/neuroendo4/neuroendo4.htm Also, for those of us who have or had high prolactin levels (it was the primary reason for my infertility) there is also a connection with sarcoidosis effecting the pitutary gland and hypothalmus. (Hypothalmus controls body temperature also.) Another one for thought. . Tracie NS co-owner/moderator

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[Guest guest]

This disease has the ability to affect the entire body and in my case is multisystemic. I don't know of any other disease that can do this...just now really thinking about all this...B

I find it so incredible that it wasn't addressed for me when I was very young. I had hyperthyroid from 12-18 yo. and at 18 had my thyroid removed. So, I've dealt with surgery induced hypothyroidism ever since. It is easily controlled with thyroid medication.

I also had serious sinus and upper respiratory infections all my life-- and I'm sure that my MD even then saw the sarcoidosis-- but figured it's not hurting her. (I had youth and was so athletic--we just didn't put that part of the puzzle together.)

It is fascinating-- I just wish none of us had to go thru this in order to fascinate our MD's.

T