Making the MDA clinic work for you..... lol lol lol

[Guest guest]

I was just wondering if anybody out their has ever gotten their MDA clinic to work for them. The one we've been to is just short of a joke. We do have our son on our insurance plan bet we each have a $4500.00 duct. Along with almost $600.00 a month premium. We've been told that since he has insurance we wouldn't get any help from MDA with the medical bill's. His last appointment in which they did 10 different blood test was just shy of $1900.00.

He lost his Beckett card and we just got a letter from the state that he didn't get SSI either. I'm almost tempted to just take him off all his med.'s along with his cocktail, and take the wait and see approach. In my eyes so much for MDA.

Sorry is I sound sour I've just had it.

Patty mom to Josh

[Guest guest]

I really don't know too much about MDA, sorry. Best wishes on finding some type of help. We are, also, going through the same problem. Grace just lost our states help for medical handicaped children wavier, because we have too high of income. Then she was denied medicaid for the disabled, because our income is too high. SSI, denied too high for that one too. Here is the catcher of it all, Grace is my hubby and mine together, all the rest of our kids are from either of our previous marrages, THE STATE GAVE THEM MEDICAID (and we never even asked for it for them). They told us that my husbands income does not count as much, or at all, for the other kids so they did financially qualify. For Grace since both of her natural parents live together and are married all the income counts. Well, thanks state of Ohio, the other kids have quite adequete insurance and are healthy. Grace takes 11 different prescriptions in which the copays alone add up to $300 a month. Plus our insurance only pays 20 speech visits a year, Grace needs more than that. Well, now I am just complaining too.

As far as the medications are concerned, I was given advice to call the drug manufacturers. Sometimes they will "donate" the meds to someone who is unable to pay for them. Also my pediatrician usually tries to keep the really expensive stuff as samples. This way when you really need it and can't afford it, she can give you the samples of it. I have not tried this, yet, but we are looking into it. I just watch the medicines we have left going away, fast. This will be our first month without the state wavier, and our first month of paying copays on Grace.

Best wishes for you, I know your frustration.

[Guest guest]

Hi,

Just took to her first appointment at our MDA Clinic on Friday. We do have our own insurance, plus 's medicaid. got checked by a Neurologist, and a rehab/equipment specialist.

I found them very helpful, and caring. I looked at them as a medical, and all around resource center.

's AFOs have to be resized, her mattress on her hospital bed replaced, and a new strap put on her wheelchair to help support her when traveling in a van. MDA is going to help with it all. I know our insurances will fund this, but it is good to know that they are helping in the paperwork, and phone calls.

I am going to keep taking her down to Boston also to see the docs at MGH. I figure the more info and resources I can get her, the more help for and our family.

Sherry