Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 http://www.mdausa.org/mattie/remember.cfm This is so sad, He was such a fighter, and an angel to all of the families fighting this disease. He will be missed, i am off to hug my child and princess hailee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 http://www.mdausa.org/mattie/remember.cfm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 thanks for the info. It was wonderful remembering Mattie on cnn! I missed it 2 years ago. So sorry for your lose and so awed by what his family did to increase awareness on mito! He was so special in his 2002 interview! Kathy Mom to Bart now 14 with severe autsim and probable mito-pyruvate dehydronase disorder due to high lactate acid levels. Maybe someday that will be diagnosed for his reasons that gave him a neurological disorder. Mattie was so cool to say continue to fund for future children that are affected. Also Mom to my pride and joy daughter that is 15 and had a baby. I am a grandma. As I watch the baby I also think this is how my son was... perfect in every way until 17 months of age. Sorry for your loss. Thanks for getting exposure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 I too wept with the rest of the world when I read that Mattie had left us and gone on to a place far more peaceful. How his mother must miss him already. As soon as I heard I knew I must buy the rest of Mattie's books as I am sure they will be in short supply. If anyone is interested, on Ebay there is one of his books up for auction that has been signed by Mattie. I would love to have it, but I know it is going to go for a great deal of money. It is listed under the books section and is auction number 7907226750. I will pray for Mattie's mother as I know all of you are. The world has lost a great ambassador of peace. Kathy, grandma to Audrey, 34mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 I was at St. 's Hospital today waiting for Zipporrah's Gastric emptying test and heard that Mattie passed away from a tv program. I am so sorry to hear of the loss. I am sure he will be missed by many people. Darla: mommy to: Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy,SID, dev. delays, asthma Zipporrah (7 mon.) Mito, strokes, SID, G-tube, asthma, trach issues, disautonomy, hypo & hypertonicity, migraines and the gang > >Reply-To: Mito >To: mitodies , mito , >mitobelievers >Subject: Remember Mattie >Date: Tue, 22 Jun 2004 21:32:28 GMT > > >http://www.mdausa.org/mattie/remember.cfm > > > >Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 Every Morning I watch GMA (Good Morning America), Today was NO different. However, this morning they displayed news that broke my heart. I just KNEW when they mention Mattie... that he was going to be on today. I was excited until the moment I realized that below his name was 1990-2004... My heart lurched out of my chest. I just couldn't believe that Mattie was gone. A fighter and a hero. An Amazing Kid. At least now he can play pain, illness, tube, and wheelchair free!!! For those left behind, he left us his heart songs... the ones he is now singing in heaven. Thank you Mattie for being who you are... YOu taught me that this illness cannot beat us unless we let it. You were truely my hero! My thoughts and prayers are with the family. I'm sorry... This is the only place I knew to go to pay my respects... Love, Dorothy Mom to Kristi, 11 Kaci 8, and 6 (possible Mito) ~should have the results any day from the Muscle Biopsy~ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.