diazepam with klonipin???? need input

[Guest guest]

Hailee is on Klonopin daily, and pheno with triliptil, she takes diazepam when she has her seizures, and we have never had a reaction with using the two together..

good luck

melissa and princess hailee

[Guest guest]

hi everyone!

i would like some input. karlee is getting alot worse. i called her

neuro this afternoon and told him that she is still having lots of

mouth movements,body jerks and seems like she is hurting. she never

cries. the past couple of days she moans and whines when she is doing

this. he is tapering the phenobarb. she is taking keppra 4.5cc

2xdaily, klonipin 1mg about every 3-4 hrs, topamax 12.5 in am and

25mgin pm and phenabarb 2.5cc am and 5ccat nite. he wants to add

diazepam 2mg every 6hrs. does anyone else combine klonipin and

diazepam????? i am very scared to give this to her. when she had her

eeg 6-8-04 he said the shaking was NOT seizures.

please respond soon. i know that you all can help me make the right

decision. do ya'll think this will hurt her??? remember none of these

meds put her to sleep. i have even done the diastat and it did not

touch the problems.

thanks so much!!

davonne moma to karlee beth 19mos--- I&IV

[Guest guest]

Sorry you had to cut your trip short. I was at the cabin and have

not had a chance to respond. I know it must have been tough on you

to leave the rest of the family in Florida, but if it helped Karlee,

even for a little bit, it was worth it. As for the combination of

meds, I'm not sure. Did he say there is a concern with mixing them,

i.e. could she become toxic or have a reaction that is unsuitable?

If the EEG does not show seizure activity, then why are they adding

another seizure med? A question I would ask is are the meds causing

her to have seizure like movements? What would happen if you took

her off the seizure meds? I don't know the answer to your question,

but just somethings that came to my mind. Hopefully it helps and

has not created more problems or confusion. Hang in there. I am

always saying a prayer for you.

Geri-Anne and Wyatt, complex I-

-- In Mito , " davonneatkins " wrote:

>

> hi everyone!

>

> i would like some input. karlee is getting alot worse. i called

her

> neuro this afternoon and told him that she is still having lots of

> mouth movements,body jerks and seems like she is hurting. she

never

> cries. the past couple of days she moans and whines when she is

doing

> this. he is tapering the phenobarb. she is taking keppra 4.5cc

> 2xdaily, klonipin 1mg about every 3-4 hrs, topamax 12.5 in am and

> 25mgin pm and phenabarb 2.5cc am and 5ccat nite. he wants to add

> diazepam 2mg every 6hrs. does anyone else combine klonipin and

> diazepam????? i am very scared to give this to her. when she had

her

> eeg 6-8-04 he said the shaking was NOT seizures.

> please respond soon. i know that you all can help me make the

right

> decision. do ya'll think this will hurt her??? remember none of

these

> meds put her to sleep. i have even done the diastat and it did not

> touch the problems.

> thanks so much!!

>

> davonne moma to karlee beth 19mos--- I&IV