Has anyone ever had a disc-o-graphy?

[Guest guest]

Ok girlfriend,

It is time to get this fixed. No messing around. That's an order. Got it.

Love to you,

Tracie

I do hope he sends a very nasty letter to dr prettypants (aka nobrains) and that he reams her a new asshole. (After all, her head is so far up the original, that the sound of the release 'if' she Could pull it out-- would be deafening.)

(But I didn't say that.)

[Guest guest]

OMG, I just had the most excruciating procedure in my entire life

today. You guys know that my oh so so doctor sent me to a pain

clinic because she didn't want to write my perscriptions for 1

Lortab aday, and so I went, they did a ct scan, found a L4-5 bulging

disc, plus pseudo-arthritis of the sacral spine, with many spurs up

and down my spine, the doctor actually asked me if I needed

something more than the Lortab, and I said No, I don't want to get

addicted to anything, and the Lortab knocks the pain down enough

that I'm comfortable..and the pain is mostly when I stand or try to

walk.

Well today we followed up with this disc-graphy, they stuck long

needles into the spinal joints themselves, inject dye to see if you

are leaking the dye they inject into little cracks, which would make

the disc non-functioning.. Needless to say, I screamed to the top of

my lungs and my leg shoot up right off of the stretcher and I was

face down, I nearly kicked the doctor in the head, this wasn't a

reaction of mere pain is was like a reflex, I didn't have any

control over it, he went to two other suspicious disc, the reaction

wasn't like a reflex, but OMG, the pain was unbearable, I sobbed

like a baby, and I had had Versed and fentyl..and a pretty heafty

dose at that. The outcome is that I have 2 disc that are totally

gone, and one that is still there but non-functioning. I was

immediately whisked back to the ct scanner, and was told I had to

have back surgery the sooner the better.. I have to have 2 disc

reconstructed and the one has to be repaired. How does fun does that

sound like for a Wednesday?

Just another day,

[Guest guest]

, Thank you so much for the message. First of all, I am so very sorry that you had to go through this. You would think that they would of given you more for pain in the beginning or at least stop and give you more pain meds before continuing. Second, I too was sent to a pain specialist for the sharp stabbing pain in my left side. If you remember, I had my left upper lobe of my lung removed due to the sarc, and Ihave had trouble since then. So, this pain specialist, ordered up an mri. They really didn't find out why I am having this pain in my left side, but they did find out why at times I am having lower back pains, and also pain in my neck. I have bulging disc's. Now I will know what test to not have, or at least do it under anesthesia. Please keep us informed on what is going on, and have someone keep us

informed on your surgery. Lots of Love Lynne wrote: OMG, I just had the most excruciating procedure in my entire life today. You guys know that my oh so so doctor sent me to a pain clinic because she didn't want to write my perscriptions for 1 Lortab aday, and so I went, they did a ct scan, found a L4-5 bulging disc, plus pseudo-arthritis of the sacral spine, with many spurs up and down my spine,

the doctor actually asked me if I needed something more than the Lortab, and I said No, I don't want to get addicted to anything, and the Lortab knocks the pain down enough that I'm comfortable..and the pain is mostly when I stand or try to walk.Well today we followed up with this disc-graphy, they stuck long needles into the spinal joints themselves, inject dye to see if you are leaking the dye they inject into little cracks, which would make the disc non-functioning.. Needless to say, I screamed to the top of my lungs and my leg shoot up right off of the stretcher and I was face down, I nearly kicked the doctor in the head, this wasn't a reaction of mere pain is was like a reflex, I didn't have any control over it, he went to two other suspicious disc, the reaction wasn't like a reflex, but OMG, the pain was unbearable, I sobbed like a baby, and I had had Versed and fentyl..and a pretty heafty dose

at that. The outcome is that I have 2 disc that are totally gone, and one that is still there but non-functioning. I was immediately whisked back to the ct scanner, and was told I had to have back surgery the sooner the better.. I have to have 2 disc reconstructed and the one has to be repaired. How does fun does that sound like for a Wednesday?Just another day,

To My New Family

Love Lynne

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

[Guest guest]

Hi Lynne, sorry you're having to go through this too. But I tell ya, the test as painful as it was, it was necessary to find out how bad things were.. The MRI and CT only showed the bulging disc, with some degeneration of the other disc but certainly not the extent. I was shocked myself, I still am actually. I'll have to go to rehab after the surgery as no one here is well enough to actually take care of me.. my dad has parkinson's and my mom has her hands full with him, then she just had orthoscopic knee surgery thats giving her fits. So, I will be letting you all know when it happens, I'll be missing in action if you will due to the fact I don't have a laptop, and unless I can get internet access in a rehab hospital or nursing home, I doubt my son or my parents would bring my desktop to me.. It actually may break a bit of my internet addiction anyway.. lol

I hope they find out why your having so much pain, in your side.. I just think as someone spoke today that the doctors just poo poo our symptoms away, and of course my doctor thought I was having to many complaints and all I was trying to do was give her my symptoms to try and help her out.. Crazy woman!!!.. They are wanting to send me to a different hospital for this surgery and I'm not sure about that, even though Vanderbilt hasn't done that much for me, it does have my extensive history, medications and all my other ologist..

Oh well, thanks for listening.. and I really hope you feel better soon!!!

Hugs,

-- Re: Has anyone ever had a disc-o-graphy?

,

Thank you so much for the message. First of all, I am so very sorry that you had to go through this. You would think that they would of given you more for pain in the beginning or at least stop and give you more pain meds before continuing.

Second, I too was sent to a pain specialist for the sharp stabbing pain in my left side. If you remember, I had my left upper lobe of my lung removed due to the sarc, and Ihave had trouble since then. So, this pain specialist, ordered up an mri. They really didn't find out why I am having this pain in my left side, but they did find out why at times I am having lower back pains, and also pain in my neck. I have bulging disc's. Now I will know what test to not have, or at least do it under anesthesia.

Please keep us informed on what is going on, and have someone keep us informed on your surgery.

Lots of Love

Lynne <topdat (AT) bellsouth (DOT) net> wrote:

OMG, I just had the most excruciating procedure in my entire life today. You guys know that my oh so so doctor sent me to a pain clinic because she didn't want to write my perscriptions for 1 Lortab aday, and so I went, they did a ct scan, found a L4-5 bulging disc, plus pseudo-arthritis of the sacral spine, with many spurs up and down my spine, the doctor actually asked me if I needed something more than the Lortab, and I said No, I don't want to get addicted to anything, and the Lortab knocks the pain down enough that I'm comfortable..and the pain is mostly when I stand or try to walk.Well today we followed up with this disc-graphy, they stuck long needles into the spinal joints themselves, inject dye to see if you are leaking the dye they inject into little cracks, which would make the disc non-functioning.. Needless to say, I screamed to the top of my lungs and my leg shoot up right off of the stretcher and I was face down, I nearly kicked the doctor in the head, this wasn't a reaction of mere pain is was like a reflex, I didn't have any control over it, he went to two other suspicious disc, the reaction wasn't like a reflex, but OMG, the pain was unbearable, I sobbed like a baby, and I had had Versed and fentyl..and a pretty heafty dose at that. The outcome is that I have 2 disc that are totally gone, and one that is still there but non-functioning. I was immediately whisked back to the ct scanner, and was told I had to have back surgery the sooner the better.. I have to have 2 disc reconstructed and the one has to be repaired. How does fun does that sound like for a Wednesday?Just another day,

To My New Family

Love Lynne

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

[Guest guest]

Yeah Tracie, I'll have this done ASAP, and I'm with you about Dr Pretty Pants, I don't go back to see him for 2 weeks, but he has referred me to a Neurosurgeon that I know nothing about, but he is not privy to my medical records etc.. I know that I have the right to go where I want to go to have the surgery done and the doctor, I don't know a neurosurgeon at Vanderbilt, but I'd feel better knowing that my neurologist,endocrinologist and the rest of my ologist are near by..

Love ya,

PS... I love your analogy of the head up the ole ARSE trick.. lol

-- Re: Has anyone ever had a disc-o-graphy?

Ok girlfriend,It is time to get this fixed. No messing around. That's an order. Got it.Love to you, TracieI do hope he sends a very nasty letter to dr prettypants (aka nobrains) and that he reams her a new asshole. (After all, her head is so far up the original, that the sound of the release 'if' she Could pull it out-- would be deafening.)(But I didn't say that.)

[Guest guest]

Hi all,This sounds like some kind of medieval torture device! And we're all so desperate to get the help that we need that we stand in line for stuff like this b/c we trust that ourt doc's will take care of us. Thank you for the info b/c if I ever have to have this done I WILL be asleep. Regarding pain in left side: I have a pinching (sometimes pretty sharp) pain in my LUQ. Never could figure out the cause but the spleen is in the general area so I wondered if it had something to do with it...(of course, nothing showed up on CT).. ..this pain has been off and on since 2000. Tracie, I almost fell off my seat when I read your part...but it would have taken me all day (and the fire dept) to get back up so good thing that I didn't! Best to all,Becky wrote: Yeah Tracie, I'll have this done ASAP, and I'm with you about Dr Pretty Pants, I don't go back to see him for 2 weeks, but he has referred me to a Neurosurgeon that I know

nothing about, but he is not privy to my medical records etc.. I know that I have the right to go where I want to go to have the surgery done and the doctor, I don't know a neurosurgeon at Vanderbilt, but I'd feel better knowing that my neurologist,endocrinologist and the rest of my ologist are near by.. Love ya, PS... I love your analogy of the head up the ole ARSE trick.. lol -- Re: Has anyone ever had a disc-o-graphy? Ok girlfriend,It is time to get this fixed. No messing around. That's an order. Got it.Love to you, TracieI do hope he sends a very nasty letter to dr prettypants (aka nobrains) and that he reams her a new asshole. (After all, her head is so far up the original, that the sound of the release 'if' she Could pull it out-- would be deafening.)(But I didn't say that.)

Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

, will be thinking about you. You are in my prayers.Becky wrote: Hi Lynne, sorry you're having to go through this too. But I tell ya, the test as painful as it was, it was necessary to find out how bad things were.. The MRI and CT only showed the bulging disc, with some degeneration

of the other disc but certainly not the extent. I was shocked myself, I still am actually. I'll have to go to rehab after the surgery as no one here is well enough to actually take care of me.. my dad has parkinson's and my mom has her hands full with him, then she just had orthoscopic knee surgery thats giving her fits. So, I will be letting you all know when it happens, I'll be missing in action if you will due to the fact I don't have a laptop, and unless I can get internet access in a rehab hospital or nursing home, I doubt my son or my parents would bring my desktop to me.. It actually may break a bit of my internet addiction anyway.. lol I hope they find out why your having so much pain, in your side.. I just think as someone spoke today that the doctors just poo poo our symptoms away, and of course my doctor thought I was having to many complaints and all I was trying to do was

give her my symptoms to try and help her out.. Crazy woman!!!.. They are wanting to send me to a different hospital for this surgery and I'm not sure about that, even though Vanderbilt hasn't done that much for me, it does have my extensive history, medications and all my other ologist.. Oh well, thanks for listening.. and I really hope you feel better soon!!! Hugs, -- Re: Has anyone ever had a disc-o-graphy? , Thank you so much for the message. First of all, I am so very sorry that you had to go through this. You would think that they would of given you more for pain in the beginning or at least stop and give you more pain meds before continuing. Second, I too was sent to a pain specialist for the sharp stabbing pain in my left side. If you remember, I had my left upper lobe of my lung removed due to the sarc, and Ihave had trouble since then. So, this pain specialist, ordered up

an mri. They really didn't find out why I am having this pain in my left side, but they did find out why at times I am having lower back pains, and also pain in my neck. I have bulging disc's. Now I will know what test to not have, or at least do it under anesthesia. Please keep us informed on what is going on, and have someone keep us informed on your surgery. Lots of Love Lynne <topdat (AT) bellsouth (DOT) net> wrote: OMG, I just had the most excruciating procedure in my entire life today. You guys know that my oh so so doctor sent me to a pain clinic because she didn't want to write my perscriptions for 1 Lortab aday, and so I went, they did a ct scan, found a L4-5 bulging disc, plus pseudo-arthritis of the sacral spine, with many spurs up

and down my spine, the doctor actually asked me if I needed something more than the Lortab, and I said No, I don't want to get addicted to anything, and the Lortab knocks the pain down enough that I'm comfortable..and the pain is mostly when I stand or try to walk.Well today we followed up with this disc-graphy, they stuck long needles into the spinal joints themselves, inject dye to see if you are leaking the dye they inject into little cracks, which would make the disc non-functioning.. Needless to say, I screamed to the top of my lungs and my leg shoot up right off of the stretcher and I was face down, I nearly kicked the doctor in the head, this wasn't a reaction of mere pain is was like a reflex, I didn't have any control over it, he went to two other suspicious disc, the reaction wasn't like a reflex, but OMG, the pain was unbearable, I sobbed like a baby, and I had had Versed and fentyl..and a

pretty heafty dose at that. The outcome is that I have 2 disc that are totally gone, and one that is still there but non-functioning. I was immediately whisked back to the ct scanner, and was told I had to have back surgery the sooner the better.. I have to have 2 disc reconstructed and the one has to be repaired. How does fun does that sound like for a Wednesday?Just another day, To My New Family Love Lynne Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

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[Guest guest]

Theresa, Is that the only way that they can see if the disc is totally gone? Yuck! As far as Vanderbuilt, where is that located? I think that I know a girl that goes to Vanderbuilt University. She is incredibly intelligent. And isn' t Vanderbuilt hospital, where they are studying sarc? Please let me know. As far as my back and neck, I am not in "constant" pain as you probably were, but just enough that it is bothersome. As far as my side , he gave me a dx's of some nerve thing. He gave me a block in my back that seemed to help, for about 4 hours. Then it was back. I think that I will try another dr. Take care. Lots of Love Lynne wrote: Hi Lynne, sorry you're having to go through this too. But I tell ya, the test as painful as it was, it was necessary to find out how bad things were.. The MRI and CT only showed the bulging disc, with some degeneration of the other disc but certainly not the extent. I was shocked myself, I still am actually. I'll have to go to rehab after the surgery as no one here is well enough to actually take care of me.. my dad has

parkinson's and my mom has her hands full with him, then she just had orthoscopic knee surgery thats giving her fits. So, I will be letting you all know when it happens, I'll be missing in action if you will due to the fact I don't have a laptop, and unless I can get internet access in a rehab hospital or nursing home, I doubt my son or my parents would bring my desktop to me.. It actually may break a bit of my internet addiction anyway.. lol I hope they find out why your having so much pain, in your side.. I just think as someone spoke today that the doctors just poo poo our symptoms away, and of course my doctor thought I was having to many complaints and all I was trying to do was give her my symptoms to try and help her out.. Crazy woman!!!.. They are wanting to send me to a different hospital for this surgery and I'm not sure about that, even though Vanderbilt hasn't done that

much for me, it does have my extensive history, medications and all my other ologist.. Oh well, thanks for listening.. and I really hope you feel better soon!!! Hugs, -- Re: Has anyone ever had a disc-o-graphy? , Thank you so much for the message. First of all, I am so very sorry that you had to go through this. You would think that they would of given you more for pain in the beginning or at least stop and give you more pain meds before continuing. Second, I too was sent to a pain specialist for the sharp stabbing pain in my left side. If you remember, I had my left upper lobe of my lung removed due to the sarc, and Ihave had trouble since then. So, this pain specialist, ordered up an mri. They really didn't find out why I am having this pain in my left side, but they did find out why at times I am having lower back pains, and also pain in my neck. I have bulging disc's. Now I will know what test to not

have, or at least do it under anesthesia. Please keep us informed on what is going on, and have someone keep us informed on your surgery. Lots of Love Lynne <topdat (AT) bellsouth (DOT) net> wrote: OMG, I just had the most excruciating procedure in my entire life today. You guys know that my oh so so doctor sent me to a pain clinic because she didn't want to write my perscriptions for 1 Lortab aday, and so I went, they did a ct scan, found a L4-5 bulging disc, plus pseudo-arthritis of the sacral spine, with many spurs up and down my spine, the doctor actually asked me if I needed something more than the Lortab, and I said No, I don't want to get addicted to anything, and the Lortab knocks the pain down enough that I'm

comfortable..and the pain is mostly when I stand or try to walk.Well today we followed up with this disc-graphy, they stuck long needles into the spinal joints themselves, inject dye to see if you are leaking the dye they inject into little cracks, which would make the disc non-functioning.. Needless to say, I screamed to the top of my lungs and my leg shoot up right off of the stretcher and I was face down, I nearly kicked the doctor in the head, this wasn't a reaction of mere pain is was like a reflex, I didn't have any control over it, he went to two other suspicious disc, the reaction wasn't like a reflex, but OMG, the pain was unbearable, I sobbed like a baby, and I had had Versed and fentyl..and a pretty heafty dose at that. The outcome is that I have 2 disc that are totally gone, and one that is still there but non-functioning. I was immediately whisked back to the ct scanner, and was told I had

to have back surgery the sooner the better.. I have to have 2 disc reconstructed and the one has to be repaired. How does fun does that sound like for a Wednesday?Just another day, To My New Family Love Lynne Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

To My New Family

Love Lynne

Stay in the know. Pulse on the new Yahoo.com. Check it out.

[Guest guest]

Lynne, if there had been any other way, I certainly wouldn't have done this.. They warned me that if the disc was leaking, damaged in anyway that it would hurt.. I just didn't realize how "BAD"...

Vanderbilt is a University Hospital here in Nashville, I know a Dr Wonder Drake that is absolutely "WONDERFUL" she is a infectious disease researcher and yes she is/did do a study on Sarc, in which Jan and myself participated. The down side is we don't and won't know what our personal research data showed, she did call me a few weeks after my inital visit with her and asked if she could collect some tissue from my lymph biopsies, that were saved after they used back in 1998 and 2002.. I told her of course..

The problem is, Vanderbilt is a very prestigious University Hospital, you have to have a 4.0 average to just be accepted, so I'm sure your friend is very smart. But the doctors know absolutely 'NOTHING" about systemic sarc, or neurosarc.. I have volunteered to go see Dr Baughman to help them in my care.. They don't want anyone from outside telling them how to care for any one disease!!! They mean, after all they are VANDERBILT!!! Bullshit, so this is why I can't get anything at all done. They don't believe in drawing ACE levels, CRP.. to let me know if my disease is in remission or if it needs a little tweaking with my Imuran. Sooo Lynne on a scale of 1-10 I would have to rate it a 2 at taking care of patients with sarcoidosis.

Hugs,

-- Re: Has anyone ever had a disc-o-graphy?

,

Thank you so much for the message. First of all, I am so very sorry that you had to go through this. You would think that they would of given you more for pain in the beginning or at least stop and give you more pain meds before continuing.

Second, I too was sent to a pain specialist for the sharp stabbing pain in my left side. If you remember, I had my left upper lobe of my lung removed due to the sarc, and Ihave had trouble since then. So, this pain specialist, ordered up an mri. They really didn't find out why I am having this pain in my left side, but they did find out why at times I am having lower back pains, and also pain in my neck. I have bulging disc's. Now I will know what test to not have, or at least do it under anesthesia.

Please keep us informed on what is going on, and have someone keep us informed on your surgery.

Lots of Love

Lynne <topdat (AT) bellsouth (DOT) net> wrote:

OMG, I just had the most excruciating procedure in my entire life today. You guys know that my oh so so doctor sent me to a pain clinic because she didn't want to write my perscriptions for 1 Lortab aday, and so I went, they did a ct scan, found a L4-5 bulging disc, plus pseudo-arthritis of the sacral spine, with many spurs up and down my spine, the doctor actually asked me if I needed something more than the Lortab, and I said No, I don't want to get addicted to anything, and the Lortab knocks the pain down enough that I'm comfortable..and the pain is mostly when I stand or try to walk.Well today we followed up with this disc-graphy, they stuck long needles into the spinal joints themselves, inject dye to see if you are leaking the dye they inject into little cracks, which would make the disc non-functioning.. Needless to say, I screamed to the top of my lungs and my leg shoot up right off of the stretcher and I was face down, I nearly kicked the doctor in the head, this wasn't a reaction of mere pain is was like a reflex, I didn't have any control over it, he went to two other suspicious disc, the reaction wasn't like a reflex, but OMG, the pain was unbearable, I sobbed like a baby, and I had had Versed and fentyl..and a pretty heafty dose at that. The outcome is that I have 2 disc that are totally gone, and one that is still there but non-functioning. I was immediately whisked back to the ct scanner, and was told I had to have back surgery the sooner the better.. I have to have 2 disc reconstructed and the one has to be repaired. How does fun does that sound like for a Wednesday?Just another day,

To My New Family

Love Lynne

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

To My New Family

Love Lynne

Stay in the know. Pulse on the new Yahoo.com. Check it out.

[Guest guest]

,I would rather go to a place where I was treated with respect and listened to (after all it IS my body and I know it better than anyone else...) even if that meant going to a less prestigious facility. So good for you as far as sticking up for yourself! I was really fortunate though to be accepted at s Hopkins Sarcoidosis clinic (is a pulmolnologist...spelled wrong but I cannot backspace b/c keyboard messed up!). That is a top-notch place with extremely knowledgeable people and I could not be going to a better place. The physician I see (twice) listens to me and that means a whole lot. Baltimore is a long way for me to go but it is well worth it. I still am maintained on my meds, etc., by my local pcp and other "ologists"...but they are glad to have JH in on this b/c they admit they are stumped. There are also other specialities that deal with sarcoid there...rheum, etc...but since I had bilateral lung nodules, etc., I was referred to the sarcoid

clinic (again pulmo) and hopefully what helps with my lungs will help with the rest of me. Best to all,Beckytuyodgdn wrote: Lynne, if there had been any other way, I certainly wouldn't have done this.. They warned me that if the disc

was leaking, damaged in anyway that it would hurt.. I just didn't realize how "BAD"... Vanderbilt is a University Hospital here in Nashville, I know a Dr Wonder Drake that is absolutely "WONDERFUL" she is a infectious disease researcher and yes she is/did do a study on Sarc, in which Jan and myself participated. The down side is we don't and won't know what our personal research data showed, she did call me a few weeks after my inital visit with her and asked if she could collect some tissue from my lymph biopsies, that were saved after they used back in 1998 and 2002.. I told her of course.. The problem is, Vanderbilt is a very prestigious University Hospital, you have to have a 4.0 average to just be accepted, so I'm sure your friend is very smart. But the doctors know absolutely 'NOTHING" about systemic sarc, or neurosarc.. I

have volunteered to go see Dr Baughman to help them in my care.. They don't want anyone from outside telling them how to care for any one disease!!! They mean, after all they are VANDERBILT!!! Bullshit, so this is why I can't get anything at all done. They don't believe in drawing ACE levels, CRP.. to let me know if my disease is in remission or if it needs a little tweaking with my Imuran. Sooo Lynne on a scale of 1-10 I would have to rate it a 2 at taking care of patients with sarcoidosis. Hugs, -- Re: Has anyone ever had a disc-o-graphy? , Thank you so much for the message. First of all, I am so very sorry that you had to go through this. You would think that they would of given you more for pain in the beginning or at least stop and give you more pain meds before continuing. Second, I too was sent to a pain specialist for the sharp stabbing pain in my left side. If you remember, I had my left upper lobe of my lung removed due to the sarc, and Ihave had trouble since then. So, this pain specialist, ordered up an mri. They

really didn't find out why I am having this pain in my left side, but they did find out why at times I am having lower back pains, and also pain in my neck. I have bulging disc's. Now I will know what test to not have, or at least do it under anesthesia. Please keep us informed on what is going on, and have someone keep us informed on your surgery. Lots of Love Lynne <topdat (AT) bellsouth (DOT) net> wrote: OMG, I just had the most excruciating procedure in my entire life today. You guys know that my oh so so doctor sent me to a pain clinic because she didn't want to write my perscriptions for 1 Lortab aday, and so I went, they did a ct scan, found a L4-5 bulging disc, plus pseudo-arthritis of the sacral spine, with many spurs up and down

my spine, the doctor actually asked me if I needed something more than the Lortab, and I said No, I don't want to get addicted to anything, and the Lortab knocks the pain down enough that I'm comfortable..and the pain is mostly when I stand or try to walk.Well today we followed up with this disc-graphy, they stuck long needles into the spinal joints themselves, inject dye to see if you are leaking the dye they inject into little cracks, which would make the disc non-functioning.. Needless to say, I screamed to the top of my lungs and my leg shoot up right off of the stretcher and I was face down, I nearly kicked the doctor in the head, this wasn't a reaction of mere pain is was like a reflex, I didn't have any control over it, he went to two other suspicious disc, the reaction wasn't like a reflex, but OMG, the pain was unbearable, I sobbed like a baby, and I had had Versed and fentyl..and a pretty

heafty dose at that. The outcome is that I have 2 disc that are totally gone, and one that is still there but non-functioning. I was immediately whisked back to the ct scanner, and was told I had to have back surgery the sooner the better.. I have to have 2 disc reconstructed and the one has to be repaired. How does fun does that sound like for a Wednesday?Just another day, To My New Family Love Lynne Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. To My New Family Love Lynne Stay in the know. Pulse on the new Yahoo.com. Check it out.

Get your own web address for just $1.99/1st yr. We'll help. Yahoo! Small Business.

[Guest guest]

teresa, are they offering any of the new procedures for repairing damaged disc. they have new ones that are less invasive & have shorter healing time with better outcome. time to go net (internet) hunting. When I saw the title of this email i nearly croaked. I didn't at first that you had already had it done, but I know what it was. they purposely induce the pain to figure out what the problem is, not only no but slap yourself for mentioning it no as far as i'm concerned. doctor's use this procedure kind of like a last resort when they can't figure out what is causing a patient pain in the back, etc. I had never heard of it until i went to work for vocational rehab, and one of the counselors explained to me what it was. e gads & little fishes. i'm glad they found the problem, but i am so sorry you had to go through

that. i am sitting here shuttering thinking about it and wanting to throw up. (pls note I am not a queasy person). Take care of your sweet self ok. by the way I would not have written this if you had not already had the procedure done, I would have tactfully & gently tried to let you know that it was going to be uncomfortable (i know, i know what an understatement) but you don't scare people prior to a procedure, tenseness makes things worse. my prayers & thoughts are with you.............Connie wrote: OMG, I just had the most excruciating procedure in my entire life today. You guys know that my oh so so doctor sent me to a pain clinic because she didn't want to write my perscriptions for 1 Lortab aday, and so I went, they did a ct scan, found a L4-5 bulging disc, plus pseudo-arthritis of the sacral spine, with many spurs up and down my spine, the doctor actually asked me if I needed something more than the Lortab, and I said No, I don't want to get addicted to anything, and the Lortab knocks the pain down enough that I'm comfortable..and the pain is mostly when I stand or try to walk.Well today we followed up with this disc-graphy, they stuck long needles into the spinal joints themselves, inject dye to see if you are leaking the dye they inject into little cracks, which would make the disc

non-functioning.. Needless to say, I screamed to the top of my lungs and my leg shoot up right off of the stretcher and I was face down, I nearly kicked the doctor in the head, this wasn't a reaction of mere pain is was like a reflex, I didn't have any control over it, he went to two other suspicious disc, the reaction wasn't like a reflex, but OMG, the pain was unbearable, I sobbed like a baby, and I had had Versed and fentyl..and a pretty heafty dose at that. The outcome is that I have 2 disc that are totally gone, and one that is still there but non-functioning. I was immediately whisked back to the ct scanner, and was told I had to have back surgery the sooner the better.. I have to have 2 disc reconstructed and the one has to be repaired. How does fun does that sound like for a Wednesday?Just another day,

Get your email and more, right on the new Yahoo.com

[Guest guest]

Lynne, to my knowledge this test can not be done under full anesthesia, because your reaction is how they know where the problem is. Ask your doctor if they ever mention it, but that was how it was explained to me///Connielynne zacharias wrote: Theresa, Is that the only way that they can see if the disc is totally gone? Yuck! As far as Vanderbuilt, where is that

located? I think that I know a girl that goes to Vanderbuilt University. She is incredibly intelligent. And isn' t Vanderbuilt hospital, where they are studying sarc? Please let me know. As far as my back and neck, I am not in "constant" pain as you probably were, but just enough that it is bothersome. As far as my side , he gave me a dx's of some nerve thing. He gave me a block in my back that seemed to help, for about 4 hours. Then it was back. I think that I will try another dr. Take care. Lots of Love Lynne <topdat (AT) bellsouth (DOT) net> wrote: Hi Lynne, sorry you're having to go through this too. But I tell ya, the test as painful as it was, it was necessary to find out how bad things were.. The MRI and CT only showed the bulging disc, with some degeneration of the other disc but certainly not the extent. I was shocked myself, I still am actually. I'll have to go to rehab after the surgery as no one here is well enough to actually take care of me.. my dad has parkinson's and my mom has her hands full with him, then she just had orthoscopic knee surgery thats giving her fits. So, I will be letting you all know when it happens, I'll be missing in action if you will due to the fact I don't have a laptop, and unless I can get internet access in a rehab hospital or nursing home, I doubt my son or my parents would bring my desktop to me.. It actually may break a bit of my internet addiction anyway.. lol I hope they find out why your having so much pain, in your side.. I just think as someone spoke today that the doctors just poo poo our symptoms away, and of course my doctor thought I was having to many complaints and all I was trying to do was give her my symptoms to try and help her out.. Crazy woman!!!.. They are wanting to send me to a different hospital for this surgery and I'm not sure about that, even though Vanderbilt hasn't done that much for me, it does have my extensive history, medications and all my other ologist.. Oh well, thanks for listening.. and I really hope you feel better soon!!! Hugs, -------Original

Message------- From: lynne zacharias Date: 09/28/06 00:11:06 To: Neurosarcoidosis Subject: Re: Has anyone ever had a disc-o-graphy? , Thank you so much for the message. First of all, I am so very sorry that you had to go through this. You would think that they would of given you more for pain in the beginning or at least stop and give you more pain meds before continuing. Second, I too was sent to a pain specialist for the sharp stabbing pain in my left side. If you remember, I had my left upper lobe of my lung removed due to the sarc, and Ihave had trouble since then. So, this pain specialist, ordered up an mri. They really didn't find out why I am having this pain in my left side, but they did find out why at times I am having lower back pains, and also pain in my neck. I have bulging disc's. Now I will know what test to not have, or at least do it under anesthesia. Please keep us informed on what is going on, and have someone keep us informed on your surgery. Lots of Love Lynne <topdat (AT) bellsouth (DOT) net> wrote: OMG, I just had the most excruciating procedure in my entire life today. You guys

know that my oh so so doctor sent me to a pain clinic because she didn't want to write my perscriptions for 1 Lortab aday, and so I went, they did a ct scan, found a L4-5 bulging disc, plus pseudo-arthritis of the sacral spine, with many spurs up and down my spine, the doctor actually asked me if I needed something more than the Lortab, and I said No, I don't want to get addicted to anything, and the Lortab knocks the pain down enough that I'm comfortable..and the pain is mostly when I stand or try to walk.Well today we followed up with this disc-graphy, they stuck long needles into the spinal joints themselves, inject dye to see if you are leaking the dye they inject into little cracks, which would make the disc non-functioning.. Needless to say, I screamed to the top of my lungs and my leg shoot up right off of the stretcher and I was face down, I nearly kicked the doctor in the head, this wasn't a

reaction of mere pain is was like a reflex, I didn't have any control over it, he went to two other suspicious disc, the reaction wasn't like a reflex, but OMG, the pain was unbearable, I sobbed like a baby, and I had had Versed and fentyl..and a pretty heafty dose at that. The outcome is that I have 2 disc that are totally gone, and one that is still there but non-functioning. I was immediately whisked back to the ct scanner, and was told I had to have back surgery the sooner the better.. I have to have 2 disc reconstructed and the one has to be repaired. How does fun does that sound like for a Wednesday?Just another day, To My New Family Love Lynne Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. To My New Family Love Lynne Stay in the know. Pulse on the new Yahoo.com. Check it out.

How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.

[Guest guest]

, Did you send ms 0.4 a copy of the discography? No i did not type her score wrong, but somebody at vanderbilt looked at it wrong when she applied from the way she treated you. I declare, I think I would take it to her personally after the way she acted about your pain and your illness in general. everytime i think of the way she treated you i want to bite a ten penny nail. take care.............connie wrote:

Lynne, if there had been any other way, I certainly wouldn't have done this.. They warned me that if the disc was leaking, damaged in anyway that it would hurt.. I just didn't realize how "BAD"... Vanderbilt is a University Hospital here in Nashville, I know a Dr Wonder Drake that is absolutely "WONDERFUL" she is a infectious disease researcher and yes she is/did do a study on Sarc, in which Jan and myself participated. The down side is we don't and won't know what our personal research data showed, she did call me a few weeks after my inital visit with her and asked if she could collect some tissue from my lymph biopsies, that were saved after they used back in 1998 and 2002.. I told her of

course.. The problem is, Vanderbilt is a very prestigious University Hospital, you have to have a 4.0 average to just be accepted, so I'm sure your friend is very smart. But the doctors know absolutely 'NOTHING" about systemic sarc, or neurosarc.. I have volunteered to go see Dr Baughman to help them in my care.. They don't want anyone from outside telling them how to care for any one disease!!! They mean, after all they are VANDERBILT!!! Bullshit, so this is why I can't get anything at all done. They don't believe in drawing ACE levels, CRP.. to let me know if my disease is in remission or if it needs a little tweaking with my Imuran. Sooo Lynne on a scale of 1-10 I would have to rate it a 2 at taking care of patients with sarcoidosis. Hugs, -- Re: Has anyone ever had a disc-o-graphy? , Thank you so much for the message. First of all, I am so very sorry that you had to go through this. You would think that they would of given you more for pain in the beginning or at least stop and give you more pain meds before

continuing. Second, I too was sent to a pain specialist for the sharp stabbing pain in my left side. If you remember, I had my left upper lobe of my lung removed due to the sarc, and Ihave had trouble since then. So, this pain specialist, ordered up an mri. They really didn't find out why I am having this pain in my left side, but they did find out why at times I am having lower back pains, and also pain in my neck. I have bulging disc's. Now I will know what test to not have, or at least do it under anesthesia. Please keep us informed on what is going on, and have someone keep us informed on your surgery. Lots of Love Lynne <topdat (AT) bellsouth (DOT) net> wrote: OMG, I just had the most excruciating procedure

in my entire life today. You guys know that my oh so so doctor sent me to a pain clinic because she didn't want to write my perscriptions for 1 Lortab aday, and so I went, they did a ct scan, found a L4-5 bulging disc, plus pseudo-arthritis of the sacral spine, with many spurs up and down my spine, the doctor actually asked me if I needed something more than the Lortab, and I said No, I don't want to get addicted to anything, and the Lortab knocks the pain down enough that I'm comfortable..and the pain is mostly when I stand or try to walk.Well today we followed up with this disc-graphy, they stuck long needles into the spinal joints themselves, inject dye to see if you are leaking the dye they inject into little cracks, which would make the disc non-functioning.. Needless to say, I screamed to the top of my lungs and my leg shoot up right off of the stretcher and I was face down, I nearly kicked the

doctor in the head, this wasn't a reaction of mere pain is was like a reflex, I didn't have any control over it, he went to two other suspicious disc, the reaction wasn't like a reflex, but OMG, the pain was unbearable, I sobbed like a baby, and I had had Versed and fentyl..and a pretty heafty dose at that. The outcome is that I have 2 disc that are totally gone, and one that is still there but non-functioning. I was immediately whisked back to the ct scanner, and was told I had to have back surgery the sooner the better.. I have to have 2 disc reconstructed and the one has to be repaired. How does fun does that sound like for a Wednesday?Just another day, To My New Family Love Lynne Talk is cheap. Use Yahoo! Messenger to make

PC-to-Phone calls. Great rates starting at 1¢/min. To My New Family Love Lynne Stay in the know. Pulse on the new Yahoo.com. Check it out.

All-new Yahoo! Mail - Fire up a more powerful email and get things done faster.

[Guest guest]

That's exactly right Connie, they give you meds like if your gonna

have a colonoscopy, supposedly you can't remember it.. but for some

reason those drugs have never worked on me.. I " KNOW EVERYTHING " but

I may forget what the doctor tells me the next day, which thankfully

they had it all in writing for me..

Love to all,

> OMG, I just had the most excruciating procedure in my entire

life

> today. You guys know that my oh so so doctor sent me to a pain

> clinic because she didn't want to write my perscriptions for 1

> Lortab aday, and so I went, they did a ct scan, found a L4-5

bulging

> disc, plus pseudo-arthritis of the sacral spine, with many spurs

up

> and down my spine, the doctor actually asked me if I needed

> something more than the Lortab, and I said No, I don't want to get

> addicted to anything, and the Lortab knocks the pain down enough

> that I'm comfortable..and the pain is mostly when I stand or try

to

> walk.

>

> Well today we followed up with this disc-graphy, they stuck long

> needles into the spinal joints themselves, inject dye to see if

you

> are leaking the dye they inject into little cracks, which would

make

> the disc non-functioning.. Needless to say, I screamed to the top

of

> my lungs and my leg shoot up right off of the stretcher and I was

> face down, I nearly kicked the doctor in the head, this wasn't a

> reaction of mere pain is was like a reflex, I didn't have any

> control over it, he went to two other suspicious disc, the

reaction

> wasn't like a reflex, but OMG, the pain was unbearable, I sobbed

> like a baby, and I had had Versed and fentyl..and a pretty heafty

> dose at that. The outcome is that I have 2 disc that are totally

> gone, and one that is still there but non-functioning. I was

> immediately whisked back to the ct scanner, and was told I had to

> have back surgery the sooner the better.. I have to have 2 disc

> reconstructed and the one has to be repaired. How does fun does

that

> sound like for a Wednesday?

>

> Just another day,

>

>

>

>

>

>

>

>

>

> To My New Family

> Love Lynne

>

> ---------------------------------

> Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls.

Great rates starting at 1¢/min.

>

>

>

>

>

>

>

>

>

>

> To My New Family

> Love Lynne

>

> ---------------------------------

> Stay in the know. Pulse on the new Yahoo.com. Check it out.

>

>

>

>

> ---------------------------------

> How low will we go? Check out Yahoo! Messenger's low PC-to-Phone

call rates.

>

[Guest guest]

Ha Ha, I would Connie if she wasn't on Maternity leave.. teresa

> OMG, I just had the most excruciating procedure in my entire

life

> today. You guys know that my oh so so doctor sent me to a pain

> clinic because she didn't want to write my perscriptions for 1

> Lortab aday, and so I went, they did a ct scan, found a L4-5

bulging

> disc, plus pseudo-arthritis of the sacral spine, with many spurs

up

> and down my spine, the doctor actually asked me if I needed

> something more than the Lortab, and I said No, I don't want to get

> addicted to anything, and the Lortab knocks the pain down enough

> that I'm comfortable..and the pain is mostly when I stand or try

to

> walk.

>

> Well today we followed up with this disc-graphy, they stuck long

> needles into the spinal joints themselves, inject dye to see if

you

> are leaking the dye they inject into little cracks, which would

make

> the disc non-functioning.. Needless to say, I screamed to the top

of

> my lungs and my leg shoot up right off of the stretcher and I was

> face down, I nearly kicked the doctor in the head, this wasn't a

> reaction of mere pain is was like a reflex, I didn't have any

> control over it, he went to two other suspicious disc, the

reaction

> wasn't like a reflex, but OMG, the pain was unbearable, I sobbed

> like a baby, and I had had Versed and fentyl..and a pretty heafty

> dose at that. The outcome is that I have 2 disc that are totally

> gone, and one that is still there but non-functioning. I was

> immediately whisked back to the ct scanner, and was told I had to

> have back surgery the sooner the better.. I have to have 2 disc

> reconstructed and the one has to be repaired. How does fun does

that

> sound like for a Wednesday?

>

> Just another day,

>

>

>

>

>

>

>

>

>

> To My New Family

> Love Lynne

>

> ---------------------------------

> Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls.

Great rates starting at 1¢/min.

>

>

>

>

>

>

>

>

>

>

>

> To My New Family

> Love Lynne

>

> ---------------------------------

> Stay in the know. Pulse on the new Yahoo.com. Check it out.

>

>

>

>

>

>

>

> ---------------------------------

> All-new Yahoo! Mail - Fire up a more powerful email and get

things done faster.

>

[Guest guest]

Connie, I was a LPN in my time and worked for 25 years mostly in the

ER, some hospice and homehealth.. but I had to stop work in 2001 due

to the sarc. The nurse that was with me told me that when they

injected the dye that it was gonna hurt, but still I didn't

understand to the extent.. I screamed like someone had just shot me,

and then started bawling uncontrolably, it was the most intense pain

I can ever remenber having in my entire life.

The doctor was very appologic, however when they swooped me over for

the ct, the techician told me, that when they called her and told

her what they wanted that it was horrible, and there was screaming

and sobbing involved.. and mind you this is still with sedation.

I haven't talked to anyone yet about new and improved less invasive

procedures, but that sounds more like what I want more than those

rods they put in your back and all that metal.. I don't want that!!

Thanks for the information though, I'll be talking to the surgeons

about it and making sure that's exactly what happens.

Big Hugs,

> OMG, I just had the most excruciating procedure in my

entire life

> today. You guys know that my oh so so doctor sent me to a pain

> clinic because she didn't want to write my perscriptions for 1

> Lortab aday, and so I went, they did a ct scan, found a L4-5

bulging

> disc, plus pseudo-arthritis of the sacral spine, with many spurs

up

> and down my spine, the doctor actually asked me if I needed

> something more than the Lortab, and I said No, I don't want to get

> addicted to anything, and the Lortab knocks the pain down enough

> that I'm comfortable..and the pain is mostly when I stand or try

to

> walk.

>

> Well today we followed up with this disc-graphy, they stuck long

> needles into the spinal joints themselves, inject dye to see if

you

> are leaking the dye they inject into little cracks, which would

make

> the disc non-functioning.. Needless to say, I screamed to the top

of

> my lungs and my leg shoot up right off of the stretcher and I was

> face down, I nearly kicked the doctor in the head, this wasn't a

> reaction of mere pain is was like a reflex, I didn't have any

> control over it, he went to two other suspicious disc, the

reaction

> wasn't like a reflex, but OMG, the pain was unbearable, I sobbed

> like a baby, and I had had Versed and fentyl..and a pretty heafty

> dose at that. The outcome is that I have 2 disc that are totally

> gone, and one that is still there but non-functioning. I was

> immediately whisked back to the ct scanner, and was told I had to

> have back surgery the sooner the better.. I have to have 2 disc

> reconstructed and the one has to be repaired. How does fun does

that

> sound like for a Wednesday?

>

> Just another day,

>

>

>

>

>

>

>

> ---------------------------------

> Get your email and more, right on the new Yahoo.com

>

[Guest guest]

--

I am so sorry that you had to endure such an awful test as that.

OMW... Makes a person wanna run right out and have one done today.

NOT!!!

Please know that I am praying for you my friend, and I will be back

with the group soon (I hope).

Take care of you and Damian too... Or maybe it should be Have Damian

take care of you and him. ;-)

Your in my prayers Girlfriend.....

Love ya lots,

[Guest guest]

oh yeah Connie, More pain for us like we aren't going through enough now. Lots of Love LynneConnie Griffis wrote: Lynne, to my knowledge this test can not be done under full anesthesia, because your reaction is how they know where the problem is. Ask your doctor if they ever mention it, but that was how it was

explained to me///Connielynne zacharias <children8_2000 (AT) yahoo (DOT) com> wrote: Theresa, Is that the only way that they can see if the disc is totally gone? Yuck! As far as Vanderbuilt, where is that located? I think that I know a girl that goes to Vanderbuilt University. She is incredibly intelligent. And isn' t Vanderbuilt hospital, where they are studying sarc? Please let me know. As far as my back and neck, I am not in "constant" pain as you probably were, but just enough that it is bothersome. As far as my side , he gave me a dx's of some nerve thing. He gave me a block in my back that seemed to help, for about 4 hours. Then it was back. I think that I will try another dr. Take care. Lots of Love Lynne <topdat (AT) bellsouth (DOT) net> wrote: Hi Lynne, sorry you're having to go through this too. But I tell ya, the test as painful as it was, it was necessary to find out how bad things were.. The MRI and CT only showed the bulging disc, with some degeneration of the other disc but certainly not the extent. I was shocked myself, I still am actually. I'll have to go to rehab after the surgery as no one here is well enough to actually take care of me.. my dad has parkinson's and my mom has her hands full with him, then she just had

orthoscopic knee surgery thats giving her fits. So, I will be letting you all know when it happens, I'll be missing in action if you will due to the fact I don't have a laptop, and unless I can get internet access in a rehab hospital or nursing home, I doubt my son or my parents would bring my desktop to me.. It actually may break a bit of my internet addiction anyway.. lol I hope they find out why your having so much pain, in your side.. I just think as someone spoke today that the doctors just poo poo our symptoms away, and of course my doctor thought I was having to many complaints and all I was trying to do was give her my symptoms to try and help her out.. Crazy woman!!!.. They are wanting to send me to a different hospital for this surgery and I'm not sure about that, even though Vanderbilt hasn't done that much for me, it does have my extensive history, medications and all my

other ologist.. Oh well, thanks for listening.. and I really hope you feel better soon!!! Hugs, -- Re: Has anyone ever had a

disc-o-graphy? , Thank you so much for the message. First of all, I am so very sorry that you had to go through this. You would think that they would of given you more for pain in the beginning or at least stop and give you more pain meds before continuing. Second, I too was sent to a pain specialist for the sharp stabbing pain in my left side. If you remember, I had my left upper lobe of my lung removed due to the sarc, and Ihave had trouble since then. So, this pain specialist, ordered up an mri. They really didn't find out why I am having this pain in my left side, but they did find out why at times I am having lower back pains, and also pain in my neck. I have bulging disc's. Now I will know what test to not have, or at least do it under anesthesia. Please keep us informed on what is going on, and have someone keep us informed on your surgery. Lots of Love Lynne <topdat (AT) bellsouth (DOT) net> wrote: OMG, I just had the most excruciating procedure in my entire life today. You guys know that my oh so so doctor sent me to a pain clinic because she didn't want to write my perscriptions for 1 Lortab aday, and so I went, they did a ct scan, found a L4-5 bulging disc, plus pseudo-arthritis of the sacral spine, with many spurs up and down my spine, the doctor actually asked me if I needed something more than the Lortab, and I said No, I don't want to get addicted to anything, and the Lortab knocks the pain down enough that I'm comfortable..and the pain is mostly when I stand or try to

walk.Well today we followed up with this disc-graphy, they stuck long needles into the spinal joints themselves, inject dye to see if you are leaking the dye they inject into little cracks, which would make the disc non-functioning.. Needless to say, I screamed to the top of my lungs and my leg shoot up right off of the stretcher and I was face down, I nearly kicked the doctor in the head, this wasn't a reaction of mere pain is was like a reflex, I didn't have any control over it, he went to two other suspicious disc, the reaction wasn't like a reflex, but OMG, the pain was unbearable, I sobbed like a baby, and I had had Versed and fentyl..and a pretty heafty dose at that. The outcome is that I have 2 disc that are totally gone, and one that is still there but non-functioning. I was immediately whisked back to the ct scanner, and was told I had to have back surgery the sooner the better.. I have to have 2

disc reconstructed and the one has to be repaired. How does fun does that sound like for a Wednesday?Just another day, To My New Family Love Lynne Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. To My New Family Love Lynne Stay in the know. Pulse on the new Yahoo.com. Check it out. How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.

To My New Family

Love Lynne

Get your email and more, right on the new Yahoo.com

[Guest guest]

Oh ,

I am sorry to hear you had to go through

so much pain, I hope the surgery will be able to correct the pain and you can

have some relief again. I will be praying for success whatever you decide to

do.

Marla

From:

Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of

Sent: Wednesday, September 27,

2006 10:38 PM

To:

Neurosarcoidosis

Subject: Has

anyone ever had a disc-o-graphy?

OMG, I just had the most excruciating procedure in my

entire life

today. You guys know that my oh so so doctor sent me to a pain

clinic because she didn't want to write my perscriptions for 1

Lortab aday, and so I went, they did a ct scan, found a L4-5 bulging

disc, plus pseudo-arthritis of the sacral spine, with many spurs up

and down my spine, the doctor actually asked me if I needed

something more than the Lortab, and I said No, I don't want to get

addicted to anything, and the Lortab knocks the pain down enough

that I'm comfortable..and the pain is mostly when I stand or try to

walk.

Well today we followed up with this disc-graphy, they stuck long

needles into the spinal joints themselves, inject dye to see if you

are leaking the dye they inject into little cracks, which would make

the disc non-functioning.. Needless to say, I screamed to the top of

my lungs and my leg shoot up right off of the stretcher and I was

face down, I nearly kicked the doctor in the head, this wasn't a

reaction of mere pain is was like a reflex, I didn't have any

control over it, he went to two other suspicious disc, the reaction

wasn't like a reflex, but OMG, the pain was unbearable, I sobbed

like a baby, and I had had Versed and fentyl..and a pretty heafty

dose at that. The outcome is that I have 2 disc that are totally

gone, and one that is still there but non-functioning. I was

immediately whisked back to the ct scanner, and was told I had to

have back surgery the sooner the better.. I have to have 2 disc

reconstructed and the one has to be repaired. How does fun does that

sound like for a Wednesday?

Just another day,

[Guest guest]

Buggers, count me out unless they tie me down. Just wanted to add my 2 cents worth:)Beckylynne zacharias wrote: oh yeah Connie, More pain for us like we aren't going through enough now. Lots of Love LynneConnie Griffis <conaugusta (AT) yahoo (DOT) com> wrote: Lynne, to my knowledge this test can not be done under full anesthesia, because your reaction is how they know where the problem is. Ask your doctor if they ever mention it, but that was how it was explained to me///Connielynne zacharias <children8_2000 (AT) yahoo (DOT) com> wrote: Theresa, Is that the only way that they can see if the disc is totally gone? Yuck! As far as Vanderbuilt, where is that located? I think that I know a girl that goes to Vanderbuilt University. She is incredibly intelligent. And isn' t Vanderbuilt hospital, where they are studying sarc? Please let me know. As far as my back and neck, I am

not in "constant" pain as you probably were, but just enough that it is bothersome. As far as my side , he gave me a dx's of some nerve thing. He gave me a block in my back that seemed to help, for about 4 hours. Then it was back. I think that I will try another dr. Take care. Lots of Love Lynne <topdat (AT) bellsouth (DOT) net> wrote: Hi Lynne, sorry you're having to go through this too. But I tell ya, the test as painful as it was, it was necessary to find out how bad things were..

The MRI and CT only showed the bulging disc, with some degeneration of the other disc but certainly not the extent. I was shocked myself, I still am actually. I'll have to go to rehab after the surgery as no one here is well enough to actually take care of me.. my dad has parkinson's and my mom has her hands full with him, then she just had orthoscopic knee surgery thats giving her fits. So, I will be letting you all know when it happens, I'll be missing in action if you will due to the fact I don't have a laptop, and unless I can get internet access in a rehab hospital or nursing home, I doubt my son or my parents would bring my desktop to me.. It actually may break a bit of my internet addiction anyway.. lol I hope they find out why your having so much pain, in your side.. I just think as someone spoke today that the doctors just poo poo our symptoms away, and of course my doctor

thought I was having to many complaints and all I was trying to do was give her my symptoms to try and help her out.. Crazy woman!!!.. They are wanting to send me to a different hospital for this surgery and I'm not sure about that, even though Vanderbilt hasn't done that much for me, it does have my extensive history, medications and all my other ologist.. Oh well, thanks for listening.. and I really hope you feel better soon!!! Hugs, -- Re: Has anyone ever had a disc-o-graphy? , Thank you so much for the message. First of all, I am so very sorry that you had to go through this. You would think that they would of given you more for pain in the beginning or at least stop and give you more pain meds before continuing. Second, I too was sent to a pain specialist for the sharp stabbing pain in my left side. If you remember, I

had my left upper lobe of my lung removed due to the sarc, and Ihave had trouble since then. So, this pain specialist, ordered up an mri. They really didn't find out why I am having this pain in my left side, but they did find out why at times I am having lower back pains, and also pain in my neck. I have bulging disc's. Now I will know what test to not have, or at least do it under anesthesia. Please keep us informed on what is going on, and have someone keep us informed on your surgery. Lots of Love Lynne <topdat (AT) bellsouth (DOT) net> wrote: OMG, I just had the most excruciating procedure in my entire life today. You guys know that my oh so so doctor sent me to a pain clinic because she didn't want to write my perscriptions for 1

Lortab aday, and so I went, they did a ct scan, found a L4-5 bulging disc, plus pseudo-arthritis of the sacral spine, with many spurs up and down my spine, the doctor actually asked me if I needed something more than the Lortab, and I said No, I don't want to get addicted to anything, and the Lortab knocks the pain down enough that I'm comfortable..and the pain is mostly when I stand or try to walk.Well today we followed up with this disc-graphy, they stuck long needles into the spinal joints themselves, inject dye to see if you are leaking the dye they inject into little cracks, which would make the disc non-functioning.. Needless to say, I screamed to the top of my lungs and my leg shoot up right off of the stretcher and I was face down, I nearly kicked the doctor in the head, this wasn't a reaction of mere pain is was like a reflex, I didn't have any control over it, he went to two other

suspicious disc, the reaction wasn't like a reflex, but OMG, the pain was unbearable, I sobbed like a baby, and I had had Versed and fentyl..and a pretty heafty dose at that. The outcome is that I have 2 disc that are totally gone, and one that is still there but non-functioning. I was immediately whisked back to the ct scanner, and was told I had to have back surgery the sooner the better.. I have to have 2 disc reconstructed and the one has to be repaired. How does fun does that sound like for a Wednesday?Just another day, To My New Family Love Lynne Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great

rates starting at 1¢/min. To My New Family Love Lynne Stay in the know. Pulse on the new Yahoo.com. Check it out. How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. To My New Family Love Lynne Get your email and more, right on the new Yahoo.com

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

[Guest guest]

,

I'm so sorry to hear about this--and also that you have to undergo

additional surgery! My son has never had a disc-o-graphy, but he

had an experience a little like yours a few months ago. A pain

clinic doctor recommended some type of nerve block to try to block

the pain in his abdomen. They gave my son fentanyl and versed but

the drugs didn't do anything to put him out. Instead, the versed

seemed to have a " paradoxical " reaction: it made him more aware

rather than less so. I wonder if that's what happened to you?

Anyway, my son's procedure was agonizing like yours--they were

sticking needles into his spine as well. When we got to him in the

recovery room, he was screaming that someone had to bring him a

knife so that he could kill himself and end the pain. And he's

usually not a screamer!

So my heart really goes out to you. I think often doctors don't

realize that, for patients with neuropathic pain, any type of

procedure runs very grave risks of causing serious pain. We are

resisting even an EMG for our son at this point because we think the

needles will cause serious (and potentially permanent) pain that

just isn't worth the diagnostic value.

Do you think a second opinion would be worthwhile on the surgery?

Not a second diagnostic test, but just an opinion? Thinking of you,

Debby

>

> OMG, I just had the most excruciating procedure in my entire life

> today. You guys know that my oh so so doctor sent me to a pain

> clinic because she didn't want to write my perscriptions for 1

> Lortab aday, and so I went, they did a ct scan, found a L4-5

bulging

> disc, plus pseudo-arthritis of the sacral spine, with many spurs

up

> and down my spine, the doctor actually asked me if I needed

> something more than the Lortab, and I said No, I don't want to get

> addicted to anything, and the Lortab knocks the pain down enough

> that I'm comfortable..and the pain is mostly when I stand or try

to

> walk.

>

> Well today we followed up with this disc-graphy, they stuck long

> needles into the spinal joints themselves, inject dye to see if

you

> are leaking the dye they inject into little cracks, which would

make

> the disc non-functioning.. Needless to say, I screamed to the top

of

> my lungs and my leg shoot up right off of the stretcher and I was

> face down, I nearly kicked the doctor in the head, this wasn't a

> reaction of mere pain is was like a reflex, I didn't have any

> control over it, he went to two other suspicious disc, the

reaction

> wasn't like a reflex, but OMG, the pain was unbearable, I sobbed

> like a baby, and I had had Versed and fentyl..and a pretty heafty

> dose at that. The outcome is that I have 2 disc that are totally

> gone, and one that is still there but non-functioning. I was

> immediately whisked back to the ct scanner, and was told I had to

> have back surgery the sooner the better.. I have to have 2 disc

> reconstructed and the one has to be repaired. How does fun does

that

> sound like for a Wednesday?

>

> Just another day,

>

>

[Guest guest]

Debby. thank God you didn't suggest a second diagnosis, I dont

believe I could stand that.. my back has hurt so bad this weekend, I

can only tell you they have awaken a sleeping monster. A second

opinion wouldn't be out of line at all, I will look into that.. but

if a discography has to be done by a different person, forget it..

Hugs,

> >

> > OMG, I just had the most excruciating procedure in my entire

life

> > today. You guys know that my oh so so doctor sent me to a pain

> > clinic because she didn't want to write my perscriptions for 1

> > Lortab aday, and so I went, they did a ct scan, found a L4-5

> bulging

> > disc, plus pseudo-arthritis of the sacral spine, with many spurs

> up

> > and down my spine, the doctor actually asked me if I needed

> > something more than the Lortab, and I said No, I don't want to

get

> > addicted to anything, and the Lortab knocks the pain down enough

> > that I'm comfortable..and the pain is mostly when I stand or try

> to

> > walk.

> >

> > Well today we followed up with this disc-graphy, they stuck long

> > needles into the spinal joints themselves, inject dye to see if

> you

> > are leaking the dye they inject into little cracks, which would

> make

> > the disc non-functioning.. Needless to say, I screamed to the

top

> of

> > my lungs and my leg shoot up right off of the stretcher and I

was

> > face down, I nearly kicked the doctor in the head, this wasn't a

> > reaction of mere pain is was like a reflex, I didn't have any

> > control over it, he went to two other suspicious disc, the

> reaction

> > wasn't like a reflex, but OMG, the pain was unbearable, I sobbed

> > like a baby, and I had had Versed and fentyl..and a pretty

heafty

> > dose at that. The outcome is that I have 2 disc that are

totally

> > gone, and one that is still there but non-functioning. I was

> > immediately whisked back to the ct scanner, and was told I had

to

> > have back surgery the sooner the better.. I have to have 2 disc

> > reconstructed and the one has to be repaired. How does fun does

> that

> > sound like for a Wednesday?

> >

> > Just another day,

> >

> >

>

[Guest guest]

Hi, . When I mentioned second opinion, I was thinking (rather

fuzzily and sleepily) about whether the particular surgery was the

best way to address this. It sounds, unfortunately, like you

definitely have the condition. And more diagnostic procedures are

definitely a no-no!

I don't know much about the options for disc problems, although I have

heard that there is controversy among doctors about whether surgery is

the best way to address this kind of condition and, if so, what kind

of surgery. I think someone else posted a note about whether there

are newer options or different types of surgery. We learned with my

son that sometimes doctors are very eager to do a particular surgery--

but the results are not always best for the patient, especially with

underlying CNS problems. But it sounds like you have some good

doctors to help explore the options. Good luck with it--I'm hoping

there's a procedure that will reliably (and painlessly!) fix the

problem. You definitely deserve that after living through the

diagnostics! Hugs, Debby

[Guest guest]

> >

> > OMG, I just had the most excruciating procedure in my entire

life

> > today. You guys know that my oh so so doctor sent me to a pain

> > clinic because she didn't want to write my perscriptions for 1

> > Lortab aday, and so I went, they did a ct scan, found a L4-5

> bulging

> > disc, plus pseudo-arthritis of the sacral spine, with many spurs

> up

> > and down my spine, the doctor actually asked me if I needed

> > something more than the Lortab, and I said No, I don't want to

get

> > addicted to anything, and the Lortab knocks the pain down enough

> > that I'm comfortable..and the pain is mostly when I stand or try

> to

> > walk.

> >

> > Well today we followed up with this disc-graphy, they stuck long

> > needles into the spinal joints themselves, inject dye to see if

> you

> > are leaking the dye they inject into little cracks, which would

> make

> > the disc non-functioning.. Needless to say, I screamed to the

top

> of

> > my lungs and my leg shoot up right off of the stretcher and I

was

> > face down, I nearly kicked the doctor in the head, this wasn't a

> > reaction of mere pain is was like a reflex, I didn't have any

> > control over it, he went to two other suspicious disc, the

> reaction

> > wasn't like a reflex, but OMG, the pain was unbearable, I sobbed

> > like a baby, and I had had Versed and fentyl..and a pretty

heafty

> > dose at that. The outcome is that I have 2 disc that are

totally

> > gone, and one that is still there but non-functioning. I was

> > immediately whisked back to the ct scanner, and was told I had

to

> > have back surgery the sooner the better.. I have to have 2 disc

> > reconstructed and the one has to be repaired. How does fun does

> that

> > sound like for a Wednesday?

> >

> > Just another day,

> >

> >

>

[Guest guest]

Indianajoe1, is your name too? Just wondering. I had the

discogram already, it was painful, and yes it was to look at the disk

above and below the noted abnormal disk. They did give me sedation, it

just didn't work.. Thanks for the information though you are right in

your explaination of it.

Hugs,

P

> > >

> > > OMG, I just had the most excruciating procedure in my entire

> life

> > > today. You guys know that my oh so so doctor sent me to a pain

> > > clinic because she didn't want to write my perscriptions for 1

> > > Lortab aday, and so I went, they did a ct scan, found a L4-5

> > bulging

> > > disc, plus pseudo-arthritis of the sacral spine, with many spurs

> > up

> > > and down my spine, the doctor actually asked me if I needed

> > > something more than the Lortab, and I said No, I don't want to

> get

> > > addicted to anything, and the Lortab knocks the pain down enough

> > > that I'm comfortable..and the pain is mostly when I stand or try

> > to

> > > walk.

> > >

> > > Well today we followed up with this disc-graphy, they stuck long

> > > needles into the spinal joints themselves, inject dye to see if

> > you

> > > are leaking the dye they inject into little cracks, which would

> > make

> > > the disc non-functioning.. Needless to say, I screamed to the

> top

> > of

> > > my lungs and my leg shoot up right off of the stretcher and I

> was

> > > face down, I nearly kicked the doctor in the head, this wasn't a

> > > reaction of mere pain is was like a reflex, I didn't have any

> > > control over it, he went to two other suspicious disc, the

> > reaction

> > > wasn't like a reflex, but OMG, the pain was unbearable, I sobbed

> > > like a baby, and I had had Versed and fentyl..and a pretty

> heafty

> > > dose at that. The outcome is that I have 2 disc that are

> totally

> > > gone, and one that is still there but non-functioning. I was

> > > immediately whisked back to the ct scanner, and was told I had

> to

> > > have back surgery the sooner the better.. I have to have 2 disc

> > > reconstructed and the one has to be repaired. How does fun does

> > that

> > > sound like for a Wednesday?

> > >

> > > Just another day,

> > >

> > >

> >

>