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gallium scan results

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The results for my gallium scan are in. I discussed them with my

family doctor yesterday. As some of you may know, the scan is done

several times over a period of 2 or 3 days. On the second day the scan

was normal. On the third day it showed uptake of the gallium in and

around the center of my chest, deep inside. It was considered a normal

result but neither was it " typical sarcoidosis. " In fact,according to

my GP they are not sure what the results mean. Any ideas out there?

II'll be speaking to my internist or my neurologist soon to see what

their interpretation is.

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,

I would request that they do a bronchoscopy, and see what is in that area. It's probably lymphnodes that are swollen-- or it could be the area outside of the lungs where they attach to the spine--- and that could be why it's showing up and your back gives you such pain.

When my MD looked at my original chest xray and ct-- he was sure I had advanced lung cancer. Nothing looked like "typical sarcoidosis." The pulmonologist did the bronch- and that was when it was finally confirmed as Stage 3 pulm sarc. We backed it down to Stage 2-- then after 2 yrs on high dose pred-- he took me off the pred, and I had 5 -ok- years-- then it went nuts and systemic, and here we are today.

Take care,

Tracie

NS Co-owner/moderator

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  • 4 weeks later...

Forgive me for butting in, but when they did my

broncoscopy my bronchial tubes were full of granulomas

and were causing the severe restriction on my

breathing....Connie

--- tiodaat@... wrote:

> ,

> I would request that they do a bronchoscopy, and see

> what is in that area.

> It's probably lymphnodes that are swollen-- or it

> could be the area outside of

> the lungs where they attach to the spine--- and that

> could be why it's showing

> up and your back gives you such pain.

>

> When my MD looked at my original chest xray and ct--

> he was sure I had

> advanced lung cancer. Nothing looked like " typical

> sarcoidosis. " The pulmonologist

> did the bronch- and that was when it was finally

> confirmed as Stage 3 pulm

> sarc. We backed it down to Stage 2-- then after 2

> yrs on high dose pred-- he

> took me off the pred, and I had 5 -ok- years-- then

> it went nuts and systemic,

> and here we are today.

>

> Take care,

> Tracie

> NS Co-owner/moderator

>

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