Remicade infusion moved up

[Guest guest]

Hello to all...My Remicade infusion has been moved up from eight weeks to six because my right eye is in a terrible flair. It was either move up the Remicade or do another injection so I was very relieved that The eye doc was able to convince the Rheumy Doc to move the date up. SO very thankful that my eyes remained calm long enough to have the cataract surgeries. I've been having a lot of bone pain but thought it was just the wet cold weather we have been having. Also having neck pain, headaches and lower back pain. I noticed the neck pain when I started a class this fall and I'd have a headache after I sat through 3 hours of class. I also start back on water therapy again on Monday and can't wait for that. I had to stop it when I couldn't see to drive. Hard to find someone to drive you when you live way out in the country. I don't want to give up my family home before I have to move to town. I'd been doing so well on the Remicade so I hope I can get back in control again. As much as I once loved winter I now hate the thought of cold Indiana winter days again Hope everyone is having a good weekend...none of my pain meds are working so I'm vegging trying to find a position that causes the least amount of pain and catch up on posts. TTFNRuth

[Guest guest]

Ruth,Must be something about eye flairs right now b/c my left eye has been flaring since last week...pred eye drops and another nsaid eye drop have helped but it's been hard b/c othyer body parts are flairing too. Ususally I like Florida living but the thought of cooler weather seems nice right now to me! My pain meds aren't working as well either with this. You're in my thoughts and prayers.Best to all,Beckyolehomepla wrote: Hello to all...My Remicade

infusion has been moved up from eight weeks to six because my right eye is in a terrible flair. It was either move up the Remicade or do another injection so I was very relieved that The eye doc was able to convince the Rheumy Doc to move the date up. SO very thankful that my eyes remained calm long enough to have the cataract surgeries. I've been having a lot of bone pain but thought it was just the wet cold weather we have been having. Also having neck pain, headaches and lower back pain. I noticed the neck pain when I started a class this fall and I'd have a headache after I sat through 3 hours of class. I also start back on water therapy again on Monday and can't wait for that. I had to stop it when I couldn't see to drive. Hard to find someone to drive you when you live way out in the country. I don't want to give up my family home before I have to

move to town. I'd been doing so well on the Remicade so I hope I can get back in control again. As much as I once loved winter I now hate the thought of cold Indiana winter days again Hope everyone is having a good weekend...none of my pain meds are working so I'm vegging trying to find a position that causes the least amount of pain and catch up on posts. TTFNRuth

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[Guest guest]

Ruth,

You can get the infusions at 4 wk intervals if that is how long you stay symptom free between infusions. The closer together the infusions-- the higher the risk of side effects and I will say that the longer I am on it at 4wk interval-- I do find that I'm more worn out-- simply because of my immune system being so suppressed.

However, if it's exhaustion for a week following the infusion followed by 2 1/2-3wks of being able to function at a higher level-- so far-- I'm willing to do it this way.

Do take care.

Tracie

NS Coowner/moderator