Guest guest Posted October 1, 2006 Report Share Posted October 1, 2006 Debby, that is very sweet and considerate of you to think of me, and be concerned that I've had enough.. That's one thing when you have this God aweful disease you know plenty about and its pain.. The doctors look at you like your crazy, if you say you have pain, you can tell them where but you can't tell them why.. isn't that their job? I do not plan to ever have anytype of metal placed in my back that I know for sure.. I'd rather just let this die down and just deal with it, than get it fixed than to live with that.. I get by usually day by day taking 1 lortab, in the evening when the pain gets so unbearable, otherwise naprosyn usually keeps it from being to bad, till evening... Maybe they'll believe that I'm having bone pain in my lower legs as well now.. I've got several medical problems along with the sarc, including chronic illness anemia, I have just gone through the biggest fight with my doctor to get me procrit, since blood transfusions don't bring up my Hct or Hgb neither does it make me feel any better or stronger. Once I wrestled my useless doctor down to agreeing Medicare only approve 1 month, but that gave me the information that I needed that it worked.. I didn't feel like running a marathon, but I definately did feel better.. I have bad diabetes, etc.. thank goodness I don't go through all the eye stuff that a lot of the members do.. Thank you again for your kindness.. Hugs, > > Hi, . When I mentioned second opinion, I was thinking (rather > fuzzily and sleepily) about whether the particular surgery was the > best way to address this. It sounds, unfortunately, like you > definitely have the condition. And more diagnostic procedures are > definitely a no-no! > > I don't know much about the options for disc problems, although I have > heard that there is controversy among doctors about whether surgery is > the best way to address this kind of condition and, if so, what kind > of surgery. I think someone else posted a note about whether there > are newer options or different types of surgery. We learned with my > son that sometimes doctors are very eager to do a particular surgery-- > but the results are not always best for the patient, especially with > underlying CNS problems. But it sounds like you have some good > doctors to help explore the options. Good luck with it--I'm hoping > there's a procedure that will reliably (and painlessly!) fix the > problem. You definitely deserve that after living through the > diagnostics! Hugs, Debby > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2006 Report Share Posted October 1, 2006 Debby, that is very sweet and considerate of you to think of me, and be concerned that I've had enough.. That's one thing when you have this God aweful disease you know plenty about and its pain.. The doctors look at you like your crazy, if you say you have pain, you can tell them where but you can't tell them why.. isn't that their job? I do not plan to ever have anytype of metal placed in my back that I know for sure.. I'd rather just let this die down and just deal with it, than get it fixed than to live with that.. I get by usually day by day taking 1 lortab, in the evening when the pain gets so unbearable, otherwise naprosyn usually keeps it from being to bad, till evening... Maybe they'll believe that I'm having bone pain in my lower legs as well now.. I've got several medical problems along with the sarc, including chronic illness anemia, I have just gone through the biggest fight with my doctor to get me procrit, since blood transfusions don't bring up my Hct or Hgb neither does it make me feel any better or stronger. Once I wrestled my useless doctor down to agreeing Medicare only approve 1 month, but that gave me the information that I needed that it worked.. I didn't feel like running a marathon, but I definately did feel better.. I have bad diabetes, etc.. thank goodness I don't go through all the eye stuff that a lot of the members do.. Thank you again for your kindness.. Hugs, > > Hi, . When I mentioned second opinion, I was thinking (rather > fuzzily and sleepily) about whether the particular surgery was the > best way to address this. It sounds, unfortunately, like you > definitely have the condition. And more diagnostic procedures are > definitely a no-no! > > I don't know much about the options for disc problems, although I have > heard that there is controversy among doctors about whether surgery is > the best way to address this kind of condition and, if so, what kind > of surgery. I think someone else posted a note about whether there > are newer options or different types of surgery. We learned with my > son that sometimes doctors are very eager to do a particular surgery-- > but the results are not always best for the patient, especially with > underlying CNS problems. But it sounds like you have some good > doctors to help explore the options. Good luck with it--I'm hoping > there's a procedure that will reliably (and painlessly!) fix the > problem. You definitely deserve that after living through the > diagnostics! Hugs, Debby > Quote Link to comment Share on other sites More sharing options...
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