Guest guest Posted November 8, 2001 Report Share Posted November 8, 2001 Because eye flares are my most frequent problem, maybe I can help. For me an eye flare starts with a headached over the affected eye and the next thing I notice is that the white of the eye is starting to look sort of grey-ish near the corner. It continues on to become red ( bright red ) and when I move the eye or quickly shift focus I have extreme pain! If this flare continues, I become very sensitive to light as well. Pred forte eye drops used to help as long as the inflamation is in the outer layer ( epi clseritis) if it is deeper, the only thing that has helped me is dilating drops put in by the opthamologist. Good Luck- Lillian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2001 Report Share Posted November 8, 2001 Because eye flares are my most frequent problem, maybe I can help. For me an eye flare starts with a headached over the affected eye and the next thing I notice is that the white of the eye is starting to look sort of grey-ish near the corner. It continues on to become red ( bright red ) and when I move the eye or quickly shift focus I have extreme pain! If this flare continues, I become very sensitive to light as well. Pred forte eye drops used to help as long as the inflamation is in the outer layer ( epi clseritis) if it is deeper, the only thing that has helped me is dilating drops put in by the opthamologist. Good Luck- Lillian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2001 Report Share Posted November 8, 2001 --I am so glad to hear that someone else has eye problems. My eyes always feel like sandpaper and they are red. When I wake sometimes the eyelashes have a small crust on them but not all the time. Is this RP also. what do you put in them. Is it over the counter. Thanks for any info. See ya, - In Rpolychondritis@y..., bklyn1429@a... wrote: > Because eye flares are my most frequent problem, maybe I can help. > For me an eye flare starts with a headached over the affected eye and the > next thing I notice is that the white of the eye is starting to look sort of > grey-ish near the corner. It continues on to become red ( bright red ) and > when I move the eye or quickly shift focus I have extreme pain! If this > flare continues, I become very sensitive to light as well. > Pred forte eye drops used to help as long as the inflamation is in the outer > layer ( epi clseritis) if it is deeper, the only thing that has helped me is > dilating drops put in by the opthamologist. > Good Luck- > Lillian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2001 Report Share Posted November 8, 2001 --I am so glad to hear that someone else has eye problems. My eyes always feel like sandpaper and they are red. When I wake sometimes the eyelashes have a small crust on them but not all the time. Is this RP also. what do you put in them. Is it over the counter. Thanks for any info. See ya, - In Rpolychondritis@y..., bklyn1429@a... wrote: > Because eye flares are my most frequent problem, maybe I can help. > For me an eye flare starts with a headached over the affected eye and the > next thing I notice is that the white of the eye is starting to look sort of > grey-ish near the corner. It continues on to become red ( bright red ) and > when I move the eye or quickly shift focus I have extreme pain! If this > flare continues, I become very sensitive to light as well. > Pred forte eye drops used to help as long as the inflamation is in the outer > layer ( epi clseritis) if it is deeper, the only thing that has helped me is > dilating drops put in by the opthamologist. > Good Luck- > Lillian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2006 Report Share Posted October 1, 2006 Well guys, I'm with you on this one. My iritis is starting to flare, so tommorow I'll be getting in to see the MD. I know mine is from all the smoke in the air-- and harvest dust. Unfortunately, alot of no. California is on fire-- so we're having a bugger of a time. Since I have NO sense of smell, it's only when my lungs shut down, and my eyes are burning-- and the artificial tears are cutting it-- that I realize I'm in trouble. The end of summer and beginning of fall is especially hard on my eyes-- and now they've gotten light sensitive- not a good sign. Later, Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2006 Report Share Posted October 2, 2006 Tracie, Let us know how you make out at the eye doctors. I hate it when my eye flares. I also have lost much of my sense of smell, which, actually can come in handy. Humor gets us throught it all, no??? Bonnie B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2006 Report Share Posted October 3, 2006 This sounds so ridiculous but it's very comforting to hear people with the same symptoms as me!!!! My eyes are flaring and dry right now too. Thought it might be my prednisone dose but perhaps it is the fall season? And my smell and taste have never come back fully since April when my 8th nerve was attacked. Thanks for sharing. Having suffered from this since 2000 with nobody understanding my symptoms -- thank you all for being here! > > Tracie, > Let us know how you make out at the eye doctors. I hate it when my eye > flares. I also have lost much of my sense of smell, which, actually can come in > handy. Humor gets us throught it all, no??? > > Bonnie B > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 It is strange that so many of us are having eye flares right now. It is comforting to be ablr to talk with others who know what we're going through.Beckywendy_cidp wrote: This sounds so ridiculous but it's very comforting to hear people with the same symptoms as me!!!! My eyes are flaring and dry right now too. Thought it might be my prednisone dose but perhaps it is the fall season? And my smell and taste have never come back fully since April when my 8th nerve was attacked. Thanks for sharing. Having suffered from this since 2000 with nobody understanding my symptoms -- thank you all for being here! > > Tracie, > Let us know how you make out at the eye doctors. I hate it when my eye > flares. I also have lost much of my sense of smell, which, actually can come in > handy. Humor gets us throught it all, no??? > > Bonnie B > How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Part of the reason for our dry eye problem is that the lacrimal glands under the eyelids get inflammed, and can't produce tears the way they should. Artificial tears can be used as often as you feel you need them. Since the cornea is 80% water, and it has to have that film of fluid to refract the images that you see-- if it gets dry- it distorts the view. Restasis is an eyedrop available by prescription- and was developed for treatment of inflammation due to lacrimal inflammation. For us, we can end up with iritis--inflammation of the iris, uveitis--inflammation of the spider-like web ligaments that allow the iris to open and close to let in the light. when either of these becomes inflammed- you run an extreme risk of acute glaucoma. If you become light sensitive- (photophobic), find that tears aren't helping-- your eyes get red and inflammed, then it's time to get them checked. Many of our patients used to come in with "flu-like symptoms" but never had a fever-- but had the headache, the light sensitivity, were nauseated, and had lost peripheral vision-- only to find out that the problem wasn't the flu-- but was glaucoma pressures so high that if they'd gone ot the GP-- they would have lost their vision. The problem with glaucoma is that in most cases, it comes on slowly-- so over a period of years, people find that they've lost that peripheral vision. It's like looking thru a straw, and only seeing what is in front of you- and you can't see what's beside you. Diabetes, Glaucoma and Macular degeneration are the top 3 robbers of vision. Most of the meds we take make our eyes dry. They also have an increased risk of glaucoma and cataracts. If you are on Plaquenil, you should be getting full exams every six months--as Plaquenil can be toxic to the macula and retina of the eyes. this can be seen with the symptom of losing your central vision. It's like someone plugged up that straw-- and now you see peripherally, but not what is directly in front of you. There is what is called an Amsler Grid-- its a simple graph paper square with 1/4 inch squares-- and a dot in the middle. Your MD can give you this-- and you hang it on the refrigerator--and look at it each day-- if you notice that you can't see the dot or center squares-- get in to the OPHTHALMOLOGIST (md) and get it checked out. When you call-- explain that you feel you're losing your central vision-- and they should get you in immediately. As for me, I've got some cataracts developing, and my eyes are very dry-- but no iritis right now. so this is good. I do have to go back Friday for a visual field test-- as my eye pressures were high- and we want to be sure the Plaquenil and sarcoidosis isn't putting me into the glaucoma world. Take care, Tracie NS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
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