Re: Qts for those with eye flares

[Guest guest]

Do any of you that are having the eye flares have swelling in you

eye lids? It is in the inner upper eye lid. I go through this with

each eye flare. I do the warms soak (althought cold feels better)

but eye doc can't tell me anythine else to do. It is better in the

morning, but by the end of the day it looks like I've been hit in

the eye. Also have a lot of dark area under my eye this time. It

almost looks like I have a black eye. I was just wondering if

anyone else had the same problem?

Had Remicade on Monday. Problems with IV, but other than that ok.

Didn't spike the temp this time as in the past. I think it has

helped the bone pain a little but my eye is still swollen. I know I

need to give it a few days..but gee I am losing patience. So much

to do and so little " good feeling " time!!

Take care all...

Ruth

> >

> > Tracie,

> > Let us know how you make out at the eye doctors. I hate it

when my

> eye

> > flares. I also have lost much of my sense of smell, which,

actually

> can come in

> > handy. Humor gets us throught it all, no???

> >

> > Bonnie B

> >

>

>

>

>

>

>

> ---------------------------------

> How low will we go? Check out Yahoo! Messenger's low PC-to-Phone

call rates.

>

[Guest guest]

Ruth,

Have him put you on Restasis drops. These are by prescription-- but work very well for the inflammation.

also, if you aren't using artificial tears thruought the day-- do so. It will help.

Blessings,

Tracie

NS Co-owner/moderator

[Guest guest]

Well, when my eye flares, I get a dull pain around my orbit, light hurts and usually my vision is affected. I get more floaters and sometimes, new strands of them. My ophthamologist lets me treat my symptoms myself as I've been doing this for awhile. I get uveitis fairly frequently.

There is a web site, ask Dr. . He is an occular immunologist and will answer questions. There is also a wealth of info on his web site. I think it's uveitis.com. That being said, if it's not your usual problem, it should be evaluated by an ophthamologist. I am not a steroid responder (glaucoma) but many people are. Uveitis is a sight threatening development of sarcoidosis for some people. Bonnie B

[Guest guest]

I use an eye ointment at night. It helps quite a bit. I also have

drops that I use during the day. Nothing seems to help the light

sensitivity and headaches except steroids, but can't up my dose.

-W.

>

> Ruth,

>

> Have him put you on Restasis drops. These are by prescription-- but

work

> very well for the inflammation.

>

> also, if you aren't using artificial tears thruought the day-- do

so. It

> will help.

>

> Blessings,

> Tracie

> NS Co-owner/moderator

>

[Guest guest]

Thanks for your replies. Yep, my eyes are definitely flares. I've had

these problems since 2000. They always gave other reasons for them. I

get my eyes checked by an ophthomologist/neurologist every year. So

far, no problems other than mild cataracts. But I have to where these

wierd, big sunglasses. My kids think I look so dorky! Oh well. Nice to

know why my eyes have been hurting all these years.

-

>

> Well, when my eye flares, I get a dull pain around my orbit, light

hurts and

> usually my vision is affected. I get more floaters and sometimes,

new strands

> of them. My ophthamologist lets me treat my symptoms myself as I've

been doing

> this for awhile. I get uveitis fairly frequently.

> There is a web site, ask Dr. . He is an occular immunologist

and will

> answer questions. There is also a wealth of info on his web site. I

think it's

> uveitis.com. That being said, if it's not your usual problem, it

should be

> evaluated by an ophthamologist. I am not a steroid responder

(glaucoma) but many

> people are. Uveitis is a sight threatening development of

sarcoidosis for

> some people. Bonnie B

>