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EMG Experiences?

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Hi, again, everyone. My son is still going through the diagnostic

process for neurosarcoidosis, as well as several mitochondrial

diseases. There are lots of different tests for these, but the

neurologist also wants to do an EMG. This sounds like a really bad

idea to us because my son has really severe pain and, whenever he has

had intramuscular needles since developing this illness (e.g., flu

shot, injections of prednisone to try to treat some of his pain) he

has suffered days of excruciating pain at the site plus (in most

cases) recurrent pain at that site. So we are pretty leery about

doing a test that involves inserting needles and adding electric

current! And it's not really clear from the doctor's explanation how

this particular test would aid or narrow the diagnosis anyway. Most

of the specific diseases seem to have their own blood tests or other

tests in any event.

Do any of you have advice on whether an EMG is worth doing? Did it

provide any useful diagnostic information? Did it worsen your pain?

Did any of you have doctors who thought it was contraindicated for

someone with severe pain? Thanks for any thoughts on this! Debby

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