looking for doctor to treat dysautonomia

[Guest guest]

There aren't any doctors in my area who treat this condition so I am

looking for one familiar with these disorders. I would like to stay

as close to home (Buffalo) as possible so a doctor in Ohio, New York,

etc. would be helpful. I've done some research and have come up with

a few names but not sure where to go. Has anyone seen Dr. Chelimsky?

Please let me know your recommendations.

[Guest guest]

Have you tried to look for a doctor using the web site DYNA? It's the

Dysautonomia Youth Network of America, or something very similar. I know

that Dr. Grubb, in Toledo, Ohio, is considered very, very good with

dysautonomia, and the lady that runs the site will be very patient, and let

you know where other very good dysautonomic docs are located.

looking for doctor to treat dysautonomia

There aren't any doctors in my area who treat this condition so I am

looking for one familiar with these disorders. I would like to stay

as close to home (Buffalo) as possible so a doctor in Ohio, New York,

etc. would be helpful. I've done some research and have come up with

a few names but not sure where to go. Has anyone seen Dr. Chelimsky?

Please let me know your recommendations.

Please contact mito-owner with any problems or questions.

[Guest guest]

This is the lady I sent your email to. She is great! She will also give Dr. Grubb great reviews.

Blessings,

Horsley

RE: looking for doctor to treat dysautonomia

Have you tried to look for a doctor using the web site DYNA? It's theDysautonomia Youth Network of America, or something very similar. I knowthat Dr. Grubb, in Toledo, Ohio, is considered very, very good withdysautonomia, and the lady that runs the site will be very patient, and letyou know where other very good dysautonomic docs are located.-----Original Message-----From: hanna5918 Sent: Monday, July 05, 2004 7:10 PMTo: Mito Subject: looking for doctor to treat dysautonomiaThere aren't any doctors in my area who treat this condition so I amlooking for one familiar with these disorders. I would like to stayas close to home (Buffalo) as possible so a doctor in Ohio, New York,etc. would be helpful. I've done some research and have come up witha few names but not sure where to go. Has anyone seen Dr. Chelimsky?Please let me know your recommendations.Please contact mito-owner with any problems or questions.

[Guest guest]

> There aren't any doctors in my area who treat this condition so I am

> looking for one familiar with these disorders.

Our son has dysautonomia. There are not a whole lot of things that are

reallydone

for it. We had a meeting with a dysautonomia expert. We have friends whose

children

have it too. The standard treatments seem like they would be pretty easy for

most

docs to do. Ous son is 15. He is supposed to drink 2-4L of fluid a day. He is to

get up

from the seated position slowly. Other docs also give scripts for beta blockers

and

antidepressants for dysautonomia.