Possible Mitochondria Disease

[Guest guest]

Hi I am a 32 year old female with a possible mitochondria disease. I

want to first start by giving a little history about myself. Last

year I began having a lot of neurological symptoms such as

weakness,fatigue,blurred vision,double vision,numbness,balance

problems and went to a neuro who took a lot of test, MRIs, CTs,

bloodwork by the gallons, I was in the hospital for 2 weeks in

Boston. They mentioned Mitochondrial diseases but my neuro never

really followed through. So now I have shortness of breath,

swallowing difficulties, coughing because I can't catch my breath. I

am also aspirating on liquids. So anyway went to a new neurologist

who was great and discussed the mitochondria possibility. I have to

have a muscle biopsy and a EEG because I have severe memory and

cognitive thinking problems. Sorry this is long, I just want to give

my history. I have looked at the symptoms of mitochondria diseases

and unfortunately It fits.

I am really scared as I have two small children at home and a

wonderful husband. Can someone explain what happens with these

disease, I know I am probably jumping the gun but what other

possibility can it be, I have went through a lot and whatever this is

is progressing. I didn't see where there were any

treatments,medicines to take etc. I guess I am wondering what will

happen if I have a mito disease.

Thanks, sorry so long