odd rash dr. thinks maybe sun allergy/photosensitivity?

[Guest guest]

I do not know too much about photosentitivity, sorry. Did your doctor consider a heat rash? Gracie gets prickly heat very easy from being outside, and we have had it last for a day or so, at least until her body temperature regains to normal. For her, she has heat sensitivity due to her dystautonomia. We have to be extremely carefull in the warm weather, because she can get very ill. For example yesterday we were at the pool all day. It was about 82 and she was in the pool for the greater part of the day. We did everything "right" and she still came home and got very ill last night. The poor baby even got a migrane, and could not eat. Thankfully she is better this morning, but I hope this is not a sign that our one outdoor activity left we can do is no longer going to be possible.

Best wishes,

[Guest guest]

,

I was just talking to friend last night who said (at age 64) that

she had a photosensitivity reaction from the sun coming into her

window while driving. She has never had this issue before but the

doc cannot figure out anything else that it may be. I just sent her

info on Mito and UMDF becuase physically she fits the profile. Sorry

this didn't help, but I thought it was a weird coincidence.

Dawn