Re: Re: Confused new member (to from Joan)

[Guest guest]

The doctors here feelit is too rare of a disease for me to have. Whatever!

This statement absolutely infuriates me!!! Who do the docs think will get this too rare of a disease to get?!?!?! Yes!, we know it's rare ... personally, I don't think it is as rare as the medical community seems to think it is ... just look how the group has grown!! Anyway, your docs know that "someone" gets it ... why not you? why you, obviously is the most important question...

, I am surprised your docs are going to try Remicade before MTX. It is usually the other way around. MTX seems to help all of us that are on it. In fact, I don't ever want to have to go off it. If I skip my weekly dose, I am in agony by day 4 without it.

Oh well, just sharing my thoughts as I am reading along some posts...

love, hugs, prayers to all,

Joan

[Guest guest]

Joan, good to see you posting. I also believe that there are alot more cases than what the doctors believe of sarc out there, too. I think more and more of them will be popping up over time and that it will finally be a more 'popular' (ha) disease and will finally get more notice...as in research and funding. I hope you're hanging in there and taking good care of yourself. hugs S.pickstands@... wrote: In a message dated 9/11/2006 3:10:56 A.M. Eastern Standard Time, statpdq (AT) yahoo (DOT) com writes: The doctors here feelit is too rare of a disease for me to have. Whatever! This statement absolutely infuriates me!!! Who do the docs think will get this too rare of a disease to get?!?!?! Yes!, we know it's rare ... personally, I don't think it is as rare as the medical community seems to think it is ... just look how the group has grown!! Anyway, your docs know that "someone" gets it ... why not you? why you, obviously is the most important question... , I am surprised your docs are going to try Remicade before MTX. It is usually

the other way around. MTX seems to help all of us that are on it. In fact, I don't ever want to have to go off it. If I skip my weekly dose, I am in agony by day 4 without it. Oh well, just sharing my thoughts as I am reading along some posts... love, hugs, prayers to all, Joan

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