About Luke: migraine & paralysis

[Guest guest]

Darla,

I usually have a numbness/ and drooping of the right side of my face and neck from migranes. I also can have tingling in my fingers and other extremities, usually only on the right side. I have seen a neurologist for this and he said it is not typical but nothing to worry about. I have also experienced all the sypmtoms above, but without the migrane pain, I guess these are called silent migranes. I have never been diagnosed (or even tested) for mito. I have asked Dr. Cohen what he thinks but he stated that I probally do have a mild case, but not bad enough to worry about as far as treatment goes. Hopefully Luke does well on his trip, and listens to his body. I will be thinking of him.

Best wishes,

[Guest guest]

One thing I forgot to mention about this last migraine is how at one point he felt paralyzed and could not move any part of his body. He said when he was lying there unable to move, he thought he was close to death. I know that migraines can be quite excruciating and was wondering if anyone else has had the paralysis he spoke of? Darla: mommy to: Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy,SID, dev. delays, asthma/airway issues... Zipporrah (8 mon.) Mito, strokes, SID, GERD, 100% G-tube fed, asthma/airway/trach issues, disautonomy, hypo & hypertonicity, migraines, major swallowing/feeding issues... Luke (16) Assumed Mito w/ migraines, hypoglycemia, strokes, sensory issues, vision issues... Leah, Rachael, Isaac, Tirzah, Kezia, and MarquisGet more from the Web. FREE MSN Explorer download : http://explorer.msn.com

[Guest guest]

Darla,

I've had hundreds of these type of episodes over the years. They can

be scary, and I sometimes wonder when I'm in the midst of one if it

will be my last. Mine have been increasing in frequency in the last

six months, from one or two a month to one or two a week.

I hope you find some help for Luke.

Theresa

> One thing I forgot to mention about this last migraine is how

at one point he felt paralyzed and could not move any part of his

body. He said when he was lying there unable to move, he thought he

was close to death. I know that migraines can be quite excruciating

and was wondering if anyone else has had the paralysis he spoke of?

>

> Darla: mommy to:

> Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-

tube, hypotonicity, disautonomy,SID, dev. delays, asthma/airway

issues...

> Zipporrah (8 mon.) Mito, strokes, SID, GERD, 100% G-tube fed,

asthma/airway/trach issues, disautonomy, hypo & hypertonicity,

migraines, major swallowing/feeding issues...

> Luke (16) Assumed Mito w/ migraines, hypoglycemia, strokes, sensory

issues, vision issues...

> Leah, Rachael, Isaac, Tirzah, Kezia, and MarquisGet more from the

Web. FREE MSN Explorer download : http://explorer.msn.com

[Guest guest]

Darla, hemiplegic migraine can cause that. The hemiplegia usually

passes after a short time. Hemiplegic migraine does not cause lasting

damage, unless a small stroke occurs during it. Strokes are a bit more

likely during any form of migraine (if I am remembering right), because

the blood vessels are often constricted. But they are still rare.

Hemiplegic migraine could explain the transient symptoms. But you

would want to get TIA's ruled out first. Hemiplegic migraine is a

diagnosis of exclusion, so you have to rule everything else out, first.

But if he does have that, there are meds such as verapamil and several

others, which can help decrease the frequency and severity of the

attacks.

Has he been checked out by a doctor?

If he is actually having strokes, or could be, he should go to the

ER the next time to get it checked out. If it is a stroke, he could get

meds that would help to limit the amount of damage done. The meds are

only good if used in the first 12 hours or so, I think - I could be

wrong on the time-frame, but I know it's a relatively short time-frame.

They are supposed to help a lot, though. I think they work by reducing

inflammation which can damage other parts of the brain, following the

stroke - but again, I could be wrong, as I only skimmed that info while

looking for something else.

Good luck, whatever it is! Hemiplegic migraine would not be such a

bad thing, in the overall scope of things, if that is what it is.

What is your feeling about the camp? Would it help to talk to the

director, to be sure Luke gets breaks as needed, and stays

well-hydrated? Or is this something Luke really needs to do himself?

I'm guessing this is a coming-of-age thing for Luke and something he

will need to handle. But do you feel pretty confident that he will be

listened to if needed, and not pushed beyond his limits? Is the camp

aware of his issues?

Lynne