Re: SC/all-Luke (Asenath's brother)

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Thanks for your prayers and notes. I hope all is well at your home. Thanks to everyone else who has been writing and praying. Darla Re: Luke (Asenath's brother) Hi Darla,I did not recognize your email address. I have to pick and choose what to read as we are very busy around here.I will definitely be praying for Luke that he will have a fun, growing and healthy time. Am praying for you too.Hugs, Shirley, mom to and Jordan, mito myopathy> I'll keep Luke and your family in our prayers.> Shelby> >>> I am writing to ask for prayer for my oldest son Luke for >> several reasons. He just left for Colorado on a missions trip >> with about 20 members of his church. He is very excited about the >> trip as he desires to become a missionary after college. But I have >> concerns about his health and his ability to remain safe on this >> trip. As some of you may know, he had a stroke in January that >> affected his left side. He had vision problems, speech difficulty, a >> drooping mouth w/ paralysis still apparent on the left side, writing >> difficulty w/ problems still, and some more sensory issues. We feel >> he had already had a stroke before this as he had already been >> dealing with lack of the ability to feel temperatures (for >> instance-not being able to feel the heat from a camp fire or the >> coldness of an ice pack) or pain sensations are quite limited. He >> has told us on rare occasions he can feel things or in cer! tain >> spots he can feel temperature such as his spine. ANYWAY...this past >> weekend after a very long, tiring day at my parent's home Luke had a >> horrible migraine. He was writhing in pain and we were extremely >> worried as the last stroke came with a migraine less painful than >> this one. Luke didn't want to talk about it until yesterday and I >> tried to leave him alone even though I had noticed increased drooping >> of the left side of his face. Yesterday he revealed that since the >> migraine he has been experiencing tons of needle-like prickles/stabs >> in his legs; in particular his left one. When he walks around it >> begins and has happened up to 6 times a day lasting about 20 >> minutes. He also commented that whenever he does his >> routine crunches/situps it happens each time. Of course the recent >> episode with more problems makes me worried about him being up in the >> Rockies, hiking up Pike's Peak, too much sun, working too hard, etc. >> as his la! st two migraines causing strokes happened following lots >> of exercise, clearly wearing himself out. He is 16 now and he >> usually can listen to his body and slow down, but I am really worried >> what will happen if he has a migraine or stroke while being so far >> away or while hiking or on the river they plan to raft on just before >> coming home. I would appreciate your prayers for Luke and if anyone >> has experienced the stabbing needle issues and knows anything that >> might help him I would appreciate your advice.>> I hope everyone's holiday went well! >> I just started a Caringbridge page for the kids that you can check >> out at: www.caringbridge.org/ia/mitomomof9! No photos yet, but our >> stories.>> Darla: mommy to:>> Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, >> G-tube, hypotonicity, disautonomy! , SID, dev. delays, asthma/airway >> issues... >> Zipporrah (7 mon.) Mito, strokes, SID, G-tube, asthma/airway issues, >> trach issues, disautonomy, hypo & hypertonicity, migraines, major >> swallowing/feeding issues...>> Luke (16) strokes, sensory issues, migraines, hypoglycemia, etc...>> Leah, Rachael, Isaac, Tirzah, Kezia, Marquis>> >> >>>>>> Please contact mito-owner with any problems or >> questions.>>>>>>>>>>