Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 Thanks Quint. You were so supportive too during our chatroom talks. I will have the left eye done tomorrow.Blessings,Beckysarcdogg@... wrote: I AM SO GLAD YOUR EYE SURGERY WENT WELL TAKE CARE AND GET SOME REST........QUINT Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 AICD-- automatic implantable cardioverter defibrillators This will automatically fire off and convert the heart back to normal rhythm. which is important for those of us who have atrial fib. That wonderful "flutter" of the heart is one of the signs that we should heed-- it means that the chances of a blood clot following is getting closer. I sent a email out that had a site for AICD placement with sarcoidosis-- and had alot of info-- I think I sent it via the group-- but I can't remember tonight-- so will check again and send the link. Take care, Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 Sweetie, I was trying to look up what type of surgery it is you need and I think I've missed something.. ACID, is that like for reflux? Or is this like to implant a defibulator? Can you help me out so I can do some research? Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 Thanks Tracie. I will look for this site. I spoke with my pcp yesterday about my concerns (high risk of clots b/c increased factor 8 and von willebrands; infection potential b/c immunocompromised b/c longterm steroid use and upcoming cellcept to begin; my hx of actually throwing a clot back in 1999 postop). My doctor said he could understand my fears but that the clotting d/o shouldn't have an impact (small chance of problem) since will be on the OR table only about an hour and then out to move around soon which would prevent clots. He also said that waiting to do the AICD since am beginning the cellcept is a consideration since I've had no problems with irreg beats in a while (last documented was April/May when was decreasing my pred). In other words as long as I'm covering myself with the steroids there shouldn't be a problem since they keep my heart from misbehaving. The cellcept will take at least 4 months to kick in so that I can begin to lower the pred IF I can tolerate it with my hx of GI problems (loose stools with many meds....cellcept is known for this). Then there's whether or not the cellcept will even do anything to help me anyway...spoke to Bob on the religious chat last night and he had taken it without success. I did have a-flutter/a-fib documented via a 30 day event monitor back in April/May so that added to the reasons why I should have this procedure done...that along with the patchy uptake during rest/exercise during the thallium cardiac stress test in summer of 2005. I was ready and set to do the AICD procedure and then got the call that the surgery was cx the day before b/c of the abn labs...referred to hematologist...narrow angle glaucoma laser surgery an issue (will finish all this up today)...guess it all spooked me and left me thinking if it was ok to proceed since have been doing ok heart skip wise. My cardio did say that even though I haven't had readings of V-fib/tach, that at any time during one of my flares my heart could pop up with a sarcoid granuloma that would interfere with conduction and throw me into a bad way = sudden cardiac death. Now, that's scary. Feels like I have a ticking time bomb.....feels like I'm darned if I do this and darned if I don't. Plus, I'm just a plain old chicken anyway. Thanks for listening. Blessings,Beckytiodaat@... wrote: AICD-- automatic implantable cardioverter defibrillators This will automatically fire off and convert the heart back to normal rhythm. which is important for those of us who have atrial fib. That wonderful "flutter" of the heart is one of the signs that we should heed-- it means that the chances of a blood clot following is getting closer. I sent a email out that had a site for AICD placement with sarcoidosis-- and had alot of info-- I think I sent it via the group-- but I can't remember tonight-- so will check again and send the link. Take care, Tracie Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 Hi , it's an automatic implantable cardioverter defibulator and is used in cardiac sarcoid (and other heart disorders) to shock the heart back from irreg beats. It's funny that you mentioned reflux b/c I have that too and boy does it act up when I think about this AICD surgery. I think "calm down" (remember what you said?) and that helps steer me in the "take a deep breath" direction and move on. Thanks so much .Blessings,Becky wrote: Sweetie, I was trying to look up what type of surgery it is you need and I think I've missed something.. ACID, is that like for reflux? Or is this like to implant a defibulator? Can you help me out so I can do some research? Hugs, Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 Hi ,My right eye (lasered on Monday) is great. I go today for the left eye. I can see so much better out of the right eye already. My left eye is the one that gets red with sarcoid flares so will be interesting to see how the laser affects that. Had a bit of a scare yesterday with my 22yo son. He's been having some weird heart symptoms (maybe skipping and a little discomfort) so took him in to our pcp and they did an EKG which showed incomplete right bundle branch block (was NOT there a couple of yrs ago when he went through tests for being a voluntary firefighter). Doctor didn't think it would be a problem but ordered an echo of the heart today at noon so will see what that shows. My concern is that he is heading out in the field tomorrow and the next day to do some camping/GI Joe stuff and being a mom I don't like it one bit. Blessings,Becky wrote: And we are family even if we've never laid eyes upon each other. There's a connection that holds us together and it was meant to be b/c of our disease. So seeing the glass half full (hard for me to do sometimes) is knowing that there is something positive coming out of a very negative situation: meeting great folks who care and are willing to share with others. Thank you for who you are and what you do to help others. I think sometimes we are closer than family, because we do know what each other is going through. Or we've just overcame the very same thing. We can support each other, and we can become really great friends on here. How's the eyes a day later? Can you see any better? I'm hoping you will get full vision back, and that you will have a wonderful rest of the week. Stay in the know. Pulse on the new Yahoo.com. Check it out. Quote Link to comment Share on other sites More sharing options...
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