Have had neurosarcoid off and on since birth

[Guest guest]

Hi folks,

I thought I would jump in with my story. I am a 59 woman who had

surgery at age 2 for non hodgkins lymphoma. After which came diabetis

insipidis and partial face Bells Palsy. By school age was hearing

impaired and now profoundly deaf but still kicking that " old Sarcoid

around " though. Most recent bout is in my eyes, tired all the time,

and pains in my shoulders from repeative finger use. I use eye drops

for the eyes to keep them from becoming too dry. I am on a self

imposed, non meat, grain, dairy, diet...sort of a Paleo (veggies,

nuts, fruits) This diet may have saved my life as I was in sorry shape

this spring. The swellings all over the body are almost gone, the

lumpy skin is cleared, and my bouts of shingles is way down.

I am sure glad to be aboard and what great welcomes from you all.

Thanks!

Clare

[Guest guest]

Hi Clare,

I haven’t been around much trying to

recover from a vacation with the family and I decided to read the email from

newest to oldest so I don’t repeat things, which I’ve done before, I’m

glad you found this very loving supportive and informative family of Sarcoid.

You sure have a history, I’m sorry

to hear of all you’ve been through.

Welcome and God Bless,

Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of weebeit

Sent: Thursday, October 26, 2006

8:55 PM

To: Neurosarcoidosis

Subject: Have

had neurosarcoid off and on since birth

Hi folks,

I thought I would jump in with my story. I am a 59 woman who had

surgery at age 2 for non hodgkins lymphoma. After which came diabetis

insipidis and partial face Bells Palsy. By school age was hearing

impaired and now profoundly deaf but still kicking that " old Sarcoid

around " though. Most recent bout is in my eyes, tired all the time,

and pains in my shoulders from repeative finger use. I use eye drops

for the eyes to keep them from becoming too dry. I am on a self

imposed, non meat, grain, dairy, diet...sort of a Paleo (veggies,

nuts, fruits) This diet may have saved my life as I was in sorry shape

this spring. The swellings all over the body are almost gone, the

lumpy skin is cleared, and my bouts of shingles is way down.

I am sure glad to be aboard and what great welcomes from you all.

Thanks!

Clare

[Guest guest]

Hi Marla, Thanks for your e-mail and warm welcome. I hope your vacation with family went well. ClareMarla Bramer wrote: Hi Clare, I haven’t been around much trying to recover

from a vacation with the family and I decided to read the email from newest to oldest so I don’t repeat things, which I’ve done before, I’m glad you found this very loving supportive and informative family of Sarcoid. You sure have a history, I’m sorry to hear of all you’ve been through. Welcome and God Bless, Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of weebeitSent: Thursday, October 26, 2006 8:55 PMTo: Neurosarcoidosis Subject: Have had neurosarcoid off and on since birth Hi folks,I thought I would jump in with my story. I am a 59 woman who had surgery at age 2 for non hodgkins lymphoma. After which came diabetis insipidis and partial face Bells Palsy. By school age was hearing impaired and now profoundly deaf but still kicking that "old Sarcoid around" though. Most recent bout is in my eyes, tired all the time, and pains in my shoulders from repeative finger use. I use eye drops for the eyes to keep them from becoming too dry. I am on a self imposed, non meat, grain, dairy, diet...sort of a Paleo (veggies, nuts, fruits) This diet may have saved my life as I was in sorry shape this spring. The swellings all over the body are almost gone, the lumpy skin is cleared, and my bouts of shingles is way down. I am sure

glad to be aboard and what great welcomes from you all.Thanks!Clare

Get your email and see which of your friends are online - Right on the new Yahoo.com

[Guest guest]

Hi Marla, Thanks for your e-mail and warm welcome. I hope your vacation with family went well. ClareMarla Bramer wrote: Hi Clare, I haven’t been around much trying to recover

from a vacation with the family and I decided to read the email from newest to oldest so I don’t repeat things, which I’ve done before, I’m glad you found this very loving supportive and informative family of Sarcoid. You sure have a history, I’m sorry to hear of all you’ve been through. Welcome and God Bless, Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of weebeitSent: Thursday, October 26, 2006 8:55 PMTo: Neurosarcoidosis Subject: Have had neurosarcoid off and on since birth Hi folks,I thought I would jump in with my story. I am a 59 woman who had surgery at age 2 for non hodgkins lymphoma. After which came diabetis insipidis and partial face Bells Palsy. By school age was hearing impaired and now profoundly deaf but still kicking that "old Sarcoid around" though. Most recent bout is in my eyes, tired all the time, and pains in my shoulders from repeative finger use. I use eye drops for the eyes to keep them from becoming too dry. I am on a self imposed, non meat, grain, dairy, diet...sort of a Paleo (veggies, nuts, fruits) This diet may have saved my life as I was in sorry shape this spring. The swellings all over the body are almost gone, the lumpy skin is cleared, and my bouts of shingles is way down. I am sure

glad to be aboard and what great welcomes from you all.Thanks!Clare

We have the perfect Group for you. Check out the handy changes to Yahoo! Groups.

[Guest guest]

Hi Clare,You've come to the best place for support and help. We're all in this together. I'm new myself and am so glad I found this group...more like a family.Blessings,BeckyClare Weeman wrote: Hi Marla, Thanks for your e-mail and warm welcome. I hope your vacation with family went well. ClareMarla Bramer <mebramer (AT) gmail (DOT) com> wrote: Hi Clare, I haven’t been around much trying to recover from a vacation with the family and I decided to read the email from newest to oldest so I don’t repeat things, which I’ve done before, I’m glad you found this very loving supportive and informative family of Sarcoid. You sure have a history, I’m sorry to hear of all you’ve been through. Welcome and God Bless, Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf

Of weebeitSent: Thursday, October 26, 2006 8:55 PMTo: Neurosarcoidosis Subject: Have had neurosarcoid off and on since birth Hi folks,I thought I would jump in with my story. I am a 59 woman who had surgery at age 2 for non hodgkins lymphoma. After which came diabetis insipidis and partial face Bells Palsy. By school age was hearing impaired and now profoundly deaf but still kicking that "old Sarcoid around" though. Most recent bout is in my eyes,

tired all the time, and pains in my shoulders from repeative finger use. I use eye drops for the eyes to keep them from becoming too dry. I am on a self imposed, non meat, grain, dairy, diet...sort of a Paleo (veggies, nuts, fruits) This diet may have saved my life as I was in sorry shape this spring. The swellings all over the body are almost gone, the lumpy skin is cleared, and my bouts of shingles is way down. I am sure glad to be aboard and what great welcomes from you all.Thanks!Clare We have the perfect Group for you. Check out the handy changes to Yahoo! Groups.

Check out the New Yahoo! Mail - Fire up a more powerful email and get things done faster.

[Guest guest]

Thanks

Clare, it was difficult trying to stay out of the sun, but I did pretty well,

and only had to sleep one day away, but I paid the price when I got home.

Oh well, we play we pay! I just need to slow down in life in

general!

Blessings,

Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Clare Weeman

Sent: Friday, October 27, 2006

11:23 PM

To: Neurosarcoidosis

Subject: RE:

Have had neurosarcoid off and on since birth

Hi Marla,

Thanks for your e-mail and warm welcome. I hope your vacation with

family went well.

Clare

Marla Bramer

<mebramer (AT) gmail (DOT) com> wrote:

Hi Clare,

I haven’t been around much trying to

recover from a vacation with the family and I decided to read the email from

newest to oldest so I don’t repeat things, which I’ve done before,

I’m glad you found this very loving supportive and informative family of

Sarcoid.

You sure have a history, I’m sorry

to hear of all you’ve been through.

Welcome and God Bless,

Marla

From: Neurosarcoidosis

[mailto:Neurosarcoidosis ]

On Behalf Of weebeit

Sent: Thursday, October 26, 2006

8:55 PM

To: Neurosarcoidosis

Subject: Have

had neurosarcoid off and on since birth

Hi folks,

I thought I would jump in with my story. I am a 59 woman who had

surgery at age 2 for non hodgkins lymphoma. After which came diabetis

insipidis and partial face Bells Palsy. By school age was hearing

impaired and now profoundly deaf but still kicking that " old Sarcoid

around " though. Most recent bout is in my eyes, tired all the time,

and pains in my shoulders from repeative finger use. I use eye drops

for the eyes to keep them from becoming too dry. I am on a self

imposed, non meat, grain, dairy, diet...sort of a Paleo (veggies,

nuts, fruits) This diet may have saved my life as I was in sorry shape

this spring. The swellings all over the body are almost gone, the

lumpy skin is cleared, and my bouts of shingles is way down.

I am sure glad to be aboard and what great welcomes from you all.

Thanks!

Clare

We have the perfect Group for you. Check out the handy

changes to Yahoo! Groups.

[Guest guest]

Hi Becky, Yes, we all need a few more family, especially ones who understand the nature of what Sarcoidosis is all about. Have a nice day. ClareMac Tosh wrote: Hi Clare,You've come to the best place for support and help. We're all in this together. I'm new myself and am so glad I found this group...more like a family.Blessings,BeckyClare Weeman <cweeman (AT) yahoo (DOT) com> wrote: Hi Marla, Thanks for your e-mail and warm welcome. I hope your vacation with family went well. ClareMarla Bramer <mebramer (AT) gmail (DOT) com> wrote: Hi Clare, I haven’t been around much trying to recover from a vacation with the family and I decided to read the email from newest to oldest so I don’t repeat things, which I’ve done before, I’m glad you found this very loving supportive and

informative family of Sarcoid. You sure have a history, I’m sorry to hear of all you’ve been through. Welcome and God Bless, Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of weebeitSent: Thursday, October 26, 2006 8:55 PMTo: Neurosarcoidosis Subject: Have had neurosarcoid off and on since birth Hi folks,I thought I

would jump in with my story. I am a 59 woman who had surgery at age 2 for non hodgkins lymphoma. After which came diabetis insipidis and partial face Bells Palsy. By school age was hearing impaired and now profoundly deaf but still kicking that "old Sarcoid around" though. Most recent bout is in my eyes, tired all the time, and pains in my shoulders from repeative finger use. I use eye drops for the eyes to keep them from becoming too dry. I am on a self imposed, non meat, grain, dairy, diet...sort of a Paleo (veggies, nuts, fruits) This diet may have saved my life as I was in sorry shape this spring. The swellings all over the body are almost gone, the lumpy skin is cleared, and my bouts of shingles is way down. I am sure glad to be aboard and what great welcomes from you all.Thanks!Clare We have the perfect Group for you. Check out the handy changes to Yahoo! Groups. Check out the New Yahoo! Mail - Fire up a more powerful email and get things done faster.

Everyone is raving about the all-new Yahoo! Mail.