Desperately need respite help...

[Guest guest]

HI EVERYONE,

I'VE NEVER POSTED ON HERE YET, BUT HAVE LOOKED IN FROM TIME TO

TIME.WE LIVE IN S.W. PA. (NEAR THE UMDF OFFICE) & I WAS WONDERING IF

ANYONE OUT THERE, KNOWS HOW I CAN GET SOME TEMP. RESPITE HELP FOR

JASON.

I'VE TRIED CALLING A BUNCH OF PLACES SUGGESTED TO ME ,BUT THEY

EITHER DON'T HAVE THE FUNDING OR DON'T CATER TO CHILDREN UNDER 18

ANYMORE( JASON IS 9&1/2).HIS INS. CO. HASN'T BEEN ABLE TO FIND

ANYONE FOR US FOR THE LAST 3 SUMMERS WHILE HE'S ON SUMMER VACATION

FROM THE CHILDREN'S INSTITUTE WHRE HE ATTENDS THE DAY SCHOOL.

ANOTHER MITO MOM HAS SUGGESTED THAT I CALL THE OFFICE & SEE IF THEY

KNOW OF ANYONE WHO MAY BE ABLE TO HELP ME OUT,WOULD HAVE TO HAVE ALL

THE CLEARENCES TO BE PAID BY THE STATE FUNDING WE RECIEVE,WHICH I

WAS TRYING TO GET A FRIEND INTO , BUT SHE DOESN'T SEEM ALL THAT

ANXIOUS ABOUT MAKING $10 /HR. JUST TO SIT /W/ HIM & PLAY /W/ HIS

TOYS. ( IMAGINE THAT!)

ANYWAYS, I HOPE SOMEONE CAN REPLY & POSS. HELP ME OUT /W /SOME KIND

OF INFO. I'M WAITING TO HEAR BACK FROM THE SPCL.KIDS NETWORK,

THEY'RE LAST ON MY LIST. THANK YOU ~ GOD BLESS .

[Guest guest]

I can't beleive that you cannot find respite care-that stinks. How

about nursing agencies that could give you nursing aides? would

insurance pay for that? We have an MRDD (county mental retardation

program) that handles this kind of stuff. Have you asked for a

referral from your state insurance agency? I am sure that you have

checked all of this out-just thinking out loud. Wish I lived closer

I would do it! Sorry, welcome aboard though.

Dawn

[Guest guest]

I don't know whether you live near a college or not. When our daughter

was younger we used college students to help with . Some high

schools and colleges have service clubs and students will be happy to

sit for service credit. If you have a college nearby that offers

special education courses sometimes the professors will allow students

to do a practicum with a special needs child. If you do the latter you

will have some paper work to fill out. We have done all of the above

with success.

Shelby, mother of with mitochondrial encephalopathy

> HI EVERYONE,

> I'VE NEVER POSTED ON HERE YET, BUT HAVE LOOKED IN FROM TIME TO

> TIME.WE LIVE IN S.W. PA. (NEAR THE UMDF OFFICE) & I WAS WONDERING IF

> ANYONE OUT THERE,  KNOWS HOW I CAN GET SOME TEMP. RESPITE HELP FOR

> JASON.

>

> I'VE TRIED CALLING A BUNCH OF PLACES SUGGESTED TO ME ,BUT THEY

> EITHER DON'T HAVE THE FUNDING OR DON'T CATER TO CHILDREN UNDER 18

> ANYMORE( JASON IS 9&1/2).HIS INS. CO. HASN'T BEEN ABLE TO FIND

> ANYONE FOR US FOR THE LAST 3 SUMMERS WHILE HE'S ON SUMMER VACATION

> FROM THE CHILDREN'S INSTITUTE WHRE HE ATTENDS THE DAY SCHOOL.

>

> ANOTHER MITO MOM HAS SUGGESTED THAT I CALL THE OFFICE & SEE IF THEY

> KNOW OF ANYONE WHO MAY BE ABLE TO HELP ME OUT,WOULD HAVE TO HAVE ALL

> THE CLEARENCES TO BE PAID BY THE STATE FUNDING WE RECIEVE,WHICH I

> WAS TRYING TO GET A FRIEND INTO , BUT SHE DOESN'T SEEM ALL THAT

> ANXIOUS ABOUT MAKING $10 /HR. JUST TO SIT /W/ HIM & PLAY /W/ HIS

> TOYS. ( IMAGINE THAT!)

>

> ANYWAYS, I HOPE SOMEONE CAN REPLY & POSS. HELP ME OUT /W /SOME KIND

> OF INFO. I'M WAITING TO HEAR BACK FROM THE SPCL.KIDS NETWORK,

> THEY'RE LAST ON MY LIST.  THANK YOU ~ GOD BLESS . 

>

>

>

>

> Please contact mito-owner with any problems or

> questions.

>

>

>

>

>