vomiting and heavy bloodynoses help

[Guest guest]

Logans vomiting has gotten worse and the dr.s have changed his meds

to prilosec. I was wondering if any of you have experianced a

worsening in vomiting when the heat rises up. It seems the more he

is outside or riding for long trips to KU his vomiting gets worse.

The drs are setting him up for another upper GI and going to do

another Barrium swallow test. Also have any of you dealt with severe

bloody noses in your mito kids? Logan has them at least 10 times a

day and they last betwwen 15 and 30 min. We have tried everything

from a vaporizer to a humidifier and nasal sprays galore, but

nothing seems to work the drs are doing a ct scan turs on his

sinuses. I was just wondering if any of you or your children dealing

with a mitochondrial disease have had this side effect?Again it

seems the longer Logan is exposed to the heat the more side effects

we are having. He can only stay outside for a maximum of 20 min

before a seizure or any of these other two things kick in. Do you

guys ever have to deal with this? If so any ideas on how to make his

summer fun without having to take away the things he likes? I would

appreciate any help .

Thank you Jennie mito mom of Logan

[Guest guest]

I do know that bloody noses can be caused by a lack of Vitamin K, and they are also a symptom of Marfan Syndrome. Could he be dehydrated? We put our pool in the shade under heavy tree growth to try and get around the effects of the heat & sun & to keep the water cool. It does help.

Cindy-GA

vomiting and heavy bloodynoses help

Logans vomiting has gotten worse and the dr.s have changed his meds to prilosec. I was wondering if any of you have experianced a worsening in vomiting when the heat rises up. It seems the more he is outside or riding for long trips to KU his vomiting gets worse. The drs are setting him up for another upper GI and going to do another Barrium swallow test. Also have any of you dealt with severe bloody noses in your mito kids? Logan has them at least 10 times a day and they last betwwen 15 and 30 min. We have tried everything from a vaporizer to a humidifier and nasal sprays galore, but nothing seems to work the drs are doing a ct scan turs on his sinuses. I was just wondering if any of you or your children dealing with a mitochondrial disease have had this side effect?Again it seems the longer Logan is exposed to the heat the more side effects we are having. He can only stay outside for a maximum of 20 min before a seizure or any of these other two things kick in. Do you guys ever have to deal with this? If so any ideas on how to make his summer fun without having to take away the things he likes? I wouldappreciate any help . Thank you Jennie mito mom of Logan

[Guest guest]

They did labs yesterday and i am waiting the results, his bun level was high on the labs done thurs but they never brought up dehydration . he does drink alot i will check this out. thanks for the inout

jennieCj wrote:

I do know that bloody noses can be caused by a lack of Vitamin K, and they are also a symptom of Marfan Syndrome. Could he be dehydrated? We put our pool in the shade under heavy tree growth to try and get around the effects of the heat & sun & to keep the water cool. It does help.

Cindy-GA

vomiting and heavy bloodynoses help

Logans vomiting has gotten worse and the dr.s have changed his meds to prilosec. I was wondering if any of you have experianced a worsening in vomiting when the heat rises up. It seems the more he is outside or riding for long trips to KU his vomiting gets worse. The drs are setting him up for another upper GI and going to do another Barrium swallow test. Also have any of you dealt with severe bloody noses in your mito kids? Logan has them at least 10 times a day and they last betwwen 15 and 30 min. We have tried everything from a vaporizer to a humidifier and nasal sprays galore, but nothing seems to work the drs are doing a ct scan turs on his sinuses. I was just wondering if any of you or your children dealing with a mitochondrial disease have had this side effect?Again it seems the longer Logan is exposed to the heat the more side effects we are having. He can only stay outside for a maximum of 20 min before a

seizure or any of these other two things kick in. Do you guys ever have to deal with this? If so any ideas on how to make his summer fun without having to take away the things he likes? I wouldappreciate any help . Thank you Jennie mito mom of Logan

[Guest guest]

had bad nose bleeds until we took her to an ear, nose, throat

doctor. He found the blood vessels in her nose were barely under the

skin. When the air was dry she would have a severe nose bleed. After

the ENT doctor cauterized her nose she rarely has a nose bleed. She

handled the procedure very well with local anesthetic.

Shelby, mother of , mitochnodrial encephalopathy

> I do know that bloody noses can be caused by a lack of Vitamin K, and

> they are also a symptom of Marfan Syndrome. Could he be dehydrated? We

> put our pool in the shade under heavy tree growth to try and get

> around the effects of the heat & sun & to keep the water cool. It does

> help.

> Cindy-GA

> vomiting and heavy bloodynoses help

>

> Logans vomiting has gotten worse and the dr.s have changed his meds

> to prilosec. I was wondering if any of you have experianced a

> worsening in vomiting when the heat rises up. It seems the more he

> is outside or riding for long trips to KU his vomiting gets worse.

> The drs are setting him up for another upper GI and going to do

> another Barrium swallow test. Also have any of you dealt with severe

> bloody noses in your mito kids? Logan has them at least 10 times a

> day and they last betwwen 15 and 30 min. We have tried everything

> from a vaporizer to a humidifier and nasal sprays galore, but

> nothing seems to work the drs are doing a ct scan turs on his

> sinuses. I was just wondering if any of you or your children dealing

> with a mitochondrial disease have had this side effect?Again it

> seems the longer Logan is exposed to the heat the more side effects

> we are having. He can only stay outside for a maximum of 20 min

> before a seizure or any of these other two things kick in. Do you

> guys ever have to deal with this? If so any ideas on how to make his

> summer fun without having to take away the things he likes? I would

> appreciate any help .

>

>    Thank you Jennie mito mom of Logan

>

>

>

>

> Please contact mito-owner with any problems or

> questions.

>