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i hear talk of avoiding this so i asked doc and she said to avoid if i have a dx

of INTERSTITIAL CYSTITIS. - what is this?? would i have to ask gi for a certain

test??

thanks

eileen

23 months scd

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It's a bladder condition, a form of chronic urinary tract inflammation. If you

don't have urinary symptoms- like with an infection, then you don't have it. A

urologist would test for this, not a GI.

PJ

>

> i hear talk of avoiding this so i asked doc and she said to avoid if i have a

dx of INTERSTITIAL CYSTITIS. - what is this?? would i have to ask gi for a

certain test??

>

> thanks

> eileen

> 23 months scd

>

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oh thank you so much! no symptoms so something I don't have to worry about for

once - what a concept - I heard on pecanbread oxylates could get in the way of

treating yeast

thanks

eileen

> >

> > i hear talk of avoiding this so i asked doc and she said to avoid if i have

a dx of INTERSTITIAL CYSTITIS. - what is this?? would i have to ask gi for a

certain test??

> >

> > thanks

> > eileen

> > 23 months scd

> >

>

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Eileen

You'd know if you had Interstitial cystitis [grin]. I have it -- symptoms are unmistakable. Inflammation of the bladder lining; urinary urgency and frequency, burning, pelvic pain. Interstitial cystitis is a condition that can be controlled and managed, however. Certain vitamins and medications and other supplements can trigger a symptom flare. All depends on how much of something irritating ends up in the bladder.

My gynecologist diagnosed my having it, as he has made himself an expert on it since so many of his patients have it. Urologists perform the test that confirms it; rather painful test too. Not all urologists feel that this is a "real" condition, so it can be difficult finding one who will test and treat it. Most of the time patients just deal with the symptoms once they've confirmed, by routine urinanalysis ordered by a primary care physician, that they don't have a bladder or kidney infection.

By the way, once you know you have Interstitial Cystitis, you can expect a higher-than-normal blood cell count in your urine all the time, so you have to warn doctors when you're getting a urinanalysis so they will order a lab culture to confirm that you really do have an infection. I had a bad experience before I knew I had Interstitial Cystitis, getting heavy-duty antibiotics unnecessarily and ending up in the ER from the anaphylactic response. Now I inform my doctors about having IC, and insist on a lab culture.

Kim M.

SCD 5+ years

>>>>>>>>>

i hear talk of avoiding this so i asked doc and she said to avoid if i have a dx of INTERSTITIAL CYSTITIS. - what is this?? would i have to ask gi for a certain test??thankseileen23 months scd

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sorry to hear!! thanks - sure now i don't just seemed like a lot of peoople were

avoiding these oxylates -

thanks Eileen 23 months

>

> Eileen

>

> You'd know if you had Interstitial cystitis [grin]. I have it -- symptoms are

unmistakable. Inflammation of the bladder lining; urinary urgency and frequency,

burning, pelvic pain. Interstitial cystitis is a condition that can be

controlled and managed, however. Certain vitamins and medications and other

supplements can trigger a symptom flare. All depends on how much of something

irritating ends up in the bladder.

>

> My gynecologist diagnosed my having it, as he has made himself an expert on it

since so many of his patients have it. Urologists perform the test that

confirms it; rather painful test too. Not all urologists feel that this is a

" real " condition, so it can be difficult finding one who will test and treat it.

Most of the time patients just deal with the symptoms once they've confirmed, by

routine urinanalysis ordered by a primary care physician, that they don't have a

bladder or kidney infection.

>

> By the way, once you know you have Interstitial Cystitis, you can expect a

higher-than-normal blood cell count in your urine all the time, so you have to

warn doctors when you're getting a urinanalysis so they will order a lab culture

to confirm that you really do have an infection. I had a bad experience before

I knew I had Interstitial Cystitis, getting heavy-duty antibiotics unnecessarily

and ending up in the ER from the anaphylactic response. Now I inform my doctors

about having IC, and insist on a lab culture.

>

> Kim M.

> SCD 5+ years

>

> >>>>>>>>>

> i hear talk of avoiding this so i asked doc and she said to avoid if i have a

dx of INTERSTITIAL CYSTITIS. - what is this?? would i have to ask gi for a

certain test??

>

> thanks

> eileen

> 23 months scd

>

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