Twins with Myopathic Mitochondrial

[Guest guest]

Hi, we are a family from Mexico City, who wants to know somebody to

have some experience about this kind of disease,actually our babys

afther stayed more than 3 months in the hospital, finally arrived at

home.. For us.....was a Miracle¡¡¡

Just one of them, was operated to take some portion of muscle for

the genetic result and the pathologyst describes this disease like

Myopathic Mitochondrial with minimal variations....

Sorry.. I forgot to mention they were analized by all the helpful

test for this kind of disease

Please if you have some therapies, recomendations, comments....

Thanks in advance¡¡¡

[Guest guest]

Hello and welcome to the group. Please tell us a little more about your

babies and the journey you all have faced so far. I felt compelled to write

as I also have twins with a mitochondrial disorder. They are girls,

and Lindsey, who will be 3 in October. You have come to the right place for

advice and support.

Again, welcome.

Kim - Mom to and Lindsey - 2.5 - Partial Complex I

> Hi, we are a family from Mexico City, who wants to know somebody to

> have some experience about this kind of disease,actually our babys

> afther stayed more than 3 months in the hospital, finally arrived at

> home.. For us.....was a Miracle¡¡¡

> Just one of them, was operated to take some portion of muscle for

> the genetic result and the pathologyst describes this disease like

> Myopathic Mitochondrial with minimal variations....

> Sorry.. I forgot to mention they were analized by all the helpful

> test for this kind of disease

> Please if you have some therapies, recomendations, comments....

>

>

>

> Thanks in advance¡¡¡

>

>

>

>

>

>

>

> Please contact mito-owner with any problems or questions.

>