Flaring - Trying to Figure out the Culprit

[Guest guest]

,You said:'I'm kind of in a mini-flare. I've got a tiny amount of B that I

can't get rid of. I also wax and wane from a normal BM to a little C.

I'm beginning to suspect that I'm sensitive to dairy or too much

calcium, because this seems to happen when I take calcium supplements

or eat dairy. I'm going to try a 3-day experiment with no dairy and see

what happens. For calcium, I guess I'll eat a lot of broccoli and

greens.

'I am wondering why you are on a calcium supplement. If you are eating dairy and if the nuts you are eating are almonds, you are more than set to go on the calcium. Another thing to keep in mind is that iron and calcium will bind together and you won't get the benefit from either and that could cause you to have C. So if you are having almonds/dairy with a meal that contains iron (meat or veggies), there is a good chance you will be negating some of each. It isn't necessary to get paranoid about it, just something to keep in mind.Regards,AmeliaHusband UC 9 years, SCD 17monthsLDN from last night!

[Guest guest]

Thanks. Scaling back to nut butters, zucchini, applesauce, and meat.  Feeling a bit better, we'll see what the results are.  I tend to forget that I can drop back to the easier-to-digest foods.--

On Thu, Dec 10, 2009 at 2:08 PM, Wizop Marilyn L. Alm wrote:

 

At 10:52 AM 12/10/2009, you wrote:

Other than that, maybe I should

scale back on the nuts. I'm eating a lot of homemade trail mix -and

sometimes 2 almond flour muffins a day.

Yep. Whole nuts -- especially raw nuts -- can be a bit of a problem,

especially if you don't chew them completely. If you're backing off, nut

butters are easier to digest.

—

Marilyn

    New

Orleans, Louisiana, USA

    Undiagnosed IBS since 1976, SCD since 2001

    Darn Good SCD Cook

    No Human Children

    Shadow & Sunny Longhair Dachshund

       

[Guest guest]

>

>

> I'm kind of in a mini-flare. I've got a tiny amount of B that I can't get rid

of. I also wax and wane from a normal BM to a little C. I'm beginning to

suspect that I'm sensitive to dairy or too much calcium, because this seems to

happen when I take calcium supplements or eat dairy. I'm going to try a 3-day

experiment with no dairy and see what happens. For calcium, I guess I'll eat a

lot of broccoli and greens.

>

>

> I'd like to get rid of the B because I'm sensitive to the 5-ASA drugs. Rowasa

and Canasa work, but both give me heart palpitations for some reason. So

probably the next solution would be cortisone enemas or foam, which I'd like to

avoid because I have osteopenia. I've been using the Carlson Vitamin E

suppositories, but they don't seem to get rid of it completely. I've been

contemplating the Vitamin E enema.

Yeah - the suppositories are more for localized internal healing (like if you

are sore from too

much D) and soothing. They don't have enough vitamin E to stop the B, just 30

IUs. For that you need

the big guns.

I'd definitely try the vitamin E enema - by all accounts, takes care of the

problem

handily. Dose from 4000-8000 IUs daily, or 4000 IUs twice daily, as I believe

Alyssa did.

Make sure that the tocopherols are natural.

Try a brand like NOW (I use that brand orally) or something of that quality.

Mara

[Guest guest]

So if I eat a meal with almonds and dairy, but no meat, does that allow the calcium to be absorbed, even if I have meat at another meal on the same day?--

 

,You said:'I'm kind of in a mini-flare. I've got a tiny amount of B that I

can't get rid of. I also wax and wane from a normal BM to a little C.

 I'm beginning to suspect that I'm sensitive to dairy or too much

calcium, because this seems to happen when I take calcium supplements

or eat dairy. I'm going to try a 3-day experiment with no dairy and see

what happens.  For calcium, I guess I'll eat a lot of broccoli and

greens.

'I am wondering why you are on a calcium supplement.  If you are eating dairy and if the nuts you are eating are almonds, you are more than set to go on the calcium.   Another thing to keep in mind is that iron and calcium will bind together and you won't get the benefit from either and that could cause you to have C.  So if you are having almonds/dairy with a meal that contains iron (meat or veggies), there is a good chance you will be negating some of each.  It isn't necessary to get paranoid about it, just something to keep in mind.

Regards,AmeliaHusband UC 9 years, SCD 17monthsLDN from last night!

[Guest guest]

I bought Trader Joe's 100% natural Vitamin E, it has d-alpha-tocopherol, which is the " good " kind.Is distilled water a requirement for an enema like this, or would filtered tap water work as well?

--

 

>

>

> I'm kind of in a mini-flare. I've got a tiny amount of B that I can't get rid of. I also wax and wane from a normal BM to a little C. I'm beginning to suspect that I'm sensitive to dairy or too much calcium, because this seems to happen when I take calcium supplements or eat dairy. I'm going to try a 3-day experiment with no dairy and see what happens. For calcium, I guess I'll eat a lot of broccoli and greens.

>

>

> I'd like to get rid of the B because I'm sensitive to the 5-ASA drugs. Rowasa and Canasa work, but both give me heart palpitations for some reason. So probably the next solution would be cortisone enemas or foam, which I'd like to avoid because I have osteopenia. I've been using the Carlson Vitamin E suppositories, but they don't seem to get rid of it completely. I've been contemplating the Vitamin E enema.

Yeah - the suppositories are more for localized internal healing (like if you are sore from too

much D) and soothing. They don't have enough vitamin E to stop the B, just 30 IUs. For that you need

the big guns.

I'd definitely try the vitamin E enema - by all accounts, takes care of the problem

handily. Dose from 4000-8000 IUs daily, or 4000 IUs twice daily, as I believe Alyssa did.

Make sure that the tocopherols are natural.

Try a brand like NOW (I use that brand orally) or something of that quality.

Mara

[Guest guest]

At 10:00 AM 12/11/2009, you wrote:

Thanks. Scaling back to nut

butters, zucchini, applesauce, and meat. Feeling a bit better,

we'll see what the results are. I tend to forget that I can drop

back to the easier-to-digest foods.

Heh. Our problem is that we work so hard to get more foods in our diet

after we come off the intro diet that most times we don't WANT to think

about dropping back to the easier to digest foods until someone whaps us

'bout the head and ears and reminds us.

Glad you're feeling better!

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

Hi

–

I saw

your posts about your bleeding. I’ve also been struggling with a similar

situation off and on since March of this year, when I had surgery and they gave

me IV antibiotics. Prior to the surgery, I had been on SCD for a year and a

half, and had been symptom free and med-free for about 9 months. From the time

of my original diagnosis in May 2006 until two weeks after the surgery, I had

never seen a trace of blood. I would get loose stools, which I thought was

ironic because my whole life I’d struggled with C! That alone showed me

that the diet had made some dramatic changes in my bowel processes (not to

mention that it got rid of my frequent bloating and gas pains).

In

any event, I’ve had this B off and on since March and have tried

everything. I’ve gone back to intro, I’ve eliminated dairy, nuts,

fruit, I’ve tried LDN, and most recently, I’ve done the Vitamin E

enemas. In May, I was able to use Canasa and that stopped it after just two

days of using it. I kept using it for about 3-4 weeks and everything was fine.

I started LDN the first of August, and started having B again the end of

August. It’s just a small amount, not much (if any) mucus, and my stools

are just perfect. However, the Canasa doesn’t seem to work like it did in

May. I used it for most of October and November and I would get a day or two

without B, but it never stopped completely. Then I started the Vitamin E enemas

(in addition to the Canasa) and the B stopped after the 4th day of

the enemas.

However,

I’ve just recently submitted samples for testing to Genova Diagnostics in

the hope that they can identify something that might be the culprit. In order

to do the stool test, I had to stop the Vitamin E enemas, the Canasa, and my

SCD yogurt. Sure enough, the B came back on the second day after I stopped everything.

It’s

so frustrating! I’m not sure how I’m going to proceed next, because

I’m waiting for the results from Genova.

That

said, I’d echo what others have said, which is to try going back to intro

and see if that helps. Maybe eliminating all the nut products for a few days

will help.

Good

luck – and let me know what ends up working (if something does).

Kathy

UC

since 12/05, dx 5/06

Sulfasalazine

worked until mid-2007

Started

SCD 7/07

Totally

symptom free and med free from 7/08 until 3/09

Intermittent

B since 3/09, no other symptoms

Back

on sulfasalazine, LDN, tried Vitamin E enemas, and Canasa

[Guest guest]

With just a small amount of B and everything else fine, is it possible that you

have a hemorrhoid?

PJ

>

> Hi -

>

>

>

> I saw your posts about your bleeding. I've also been struggling with a

> similar situation off and on since March of this year, when I had surgery

> and they gave me IV antibiotics. Prior to the surgery, I had been on SCD for

> a year and a half, and had been symptom free and med-free for about 9

> months. From the time of my original diagnosis in May 2006 until two weeks

> after the surgery, I had never seen a trace of blood. I would get loose

> stools, which I thought was ironic because my whole life I'd struggled with

> C! That alone showed me that the diet had made some dramatic changes in my

> bowel processes (not to mention that it got rid of my frequent bloating and

> gas pains).

>

>

>

> In any event, I've had this B off and on since March and have tried

> everything. I've gone back to intro, I've eliminated dairy, nuts, fruit,

> I've tried LDN, and most recently, I've done the Vitamin E enemas. In May, I

> was able to use Canasa and that stopped it after just two days of using it.

> I kept using it for about 3-4 weeks and everything was fine. I started LDN

> the first of August, and started having B again the end of August. It's just

> a small amount, not much (if any) mucus, and my stools are just perfect.

> However, the Canasa doesn't seem to work like it did in May. I used it for

> most of October and November and I would get a day or two without B, but it

> never stopped completely. Then I started the Vitamin E enemas (in addition

> to the Canasa) and the B stopped after the 4th day of the enemas.

>

>

>

> However, I've just recently submitted samples for testing to Genova

> Diagnostics in the hope that they can identify something that might be the

> culprit. In order to do the stool test, I had to stop the Vitamin E enemas,

> the Canasa, and my SCD yogurt. Sure enough, the B came back on the second

> day after I stopped everything.

>

>

>

> It's so frustrating! I'm not sure how I'm going to proceed next, because I'm

> waiting for the results from Genova.

>

>

>

> That said, I'd echo what others have said, which is to try going back to

> intro and see if that helps. Maybe eliminating all the nut products for a

> few days will help.

>

>

>

> Good luck - and let me know what ends up working (if something does).

>

>

>

> Kathy

>

> UC since 12/05, dx 5/06

>

> Sulfasalazine worked until mid-2007

>

> Started SCD 7/07

>

> Totally symptom free and med free from 7/08 until 3/09

>

> Intermittent B since 3/09, no other symptoms

>

> Back on sulfasalazine, LDN, tried Vitamin E enemas, and Canasa

>

[Guest guest]

Hi – It’s so frustrating! I’m not sure how I’m going to proceed next, because I’m waiting for the results from Genova.Surely you can go back in to the enemas in between waiting. There's noreason not to, as far as I can see. Also, be warned that sometimes they screw up your test - and youonly hear that you need to resubmit one a long time later. that happened to me. Only by then I was feeling so much betteron the LDN, I just didn't bother. Mara

[Guest guest]

So if I eat a meal with almonds and dairy, but no meat, does that

allow the calcium to be absorbed, even if I have meat at another meal

on the same day?,That would be correct. If you are concerned about calcium intake, I would do it that way. It is kind of like when the directions for a supplement says 'take away from food' for example. You would then know to take it at least 1 hour before eating or at least 2 hours after eating. As long as they are not taken together and there is adequate separation, they will be digested and absorbed in a way that keeps them from binding.I learned this in an accidental college course. I thought I was enrolling in a 'nutrition' class as an elective and found out it was actually a microbiology class for nurses! There are so many things that revolve around nutrition that we don't know and the doctors don't tell us. Vitamin C with iron, no milk with oats and no tannins (grapes/wine/tea) with iron (binding thing again), selenium with thyroid medication (needed to convert the T4 from

the pill into T3 in the body), etc. Although, to be fair, a doctor told me that last one, but no other doctor since has EVER mentioned it.AmellaHusband UC 9 years, SCD 17monthsLDN 1 day

[Guest guest]

Thanks, that's interesting. I need all the bone building help I can get.

--

 

So if I eat a meal with almonds and dairy, but no meat, does that

allow the calcium to be absorbed, even if I have meat at another meal

on the same day?,That would be correct.  If you are concerned about calcium intake, I would do it that way.  It is kind of like when the directions for a supplement says 'take away from food' for example.  You would then know to take it at least 1 hour before eating or at least 2 hours after eating.  As long as they are not taken together and there is adequate separation, they will be digested and absorbed in a way that keeps them from binding.

I learned this in an accidental college course.  I thought I was enrolling in a 'nutrition' class as an elective and found out it was actually a microbiology class for nurses!  There are so many things that revolve around nutrition that we don't know and the doctors don't tell us.  Vitamin C with iron, no milk with oats and no tannins (grapes/wine/tea) with iron (binding thing again), selenium with thyroid medication (needed to convert the T4 from

the pill into T3 in the body), etc.  Although, to be fair, a doctor told me that last one, but no other doctor since has EVER mentioned it.AmellaHusband UC 9 years, SCD 17months

LDN 1 day

[Guest guest]

Sounds frustrating. I'll be interested in hearing about your Genova test results. What dosage did you use for the enema - 4000-8000 IU as Mara suggested? I notice that the protocol mentioned on the web - I think this is the one Alyssa used- starts with 1 400 IU softgel and works up to the full dosage by adding a capsule every day.

Just curious as to what you used.Today I had no B, at least not what I could notice. So either scaling back foods or cutting dairy worked. Trying some cheese today.

Good luck with your testing!

 

Hi

–

 

I saw

your posts about your bleeding. I’ve also been struggling with a similar

situation off and on since March of this year, when I had surgery and they gave

me IV antibiotics. Prior to the surgery, I had been on SCD for a year and a

half, and had been symptom free and med-free for about 9 months. From the time

of my original diagnosis in May 2006 until two weeks after the surgery, I had

never seen a trace of blood. I would get loose stools, which I thought was

ironic because my whole life I’d struggled with C! That alone showed me

that the diet had made some dramatic changes in my bowel processes (not to

mention that it got rid of my frequent bloating and gas pains).

 

In

any event, I’ve had this B off and on since March and have tried

everything. I’ve gone back to intro, I’ve eliminated dairy, nuts,

fruit, I’ve tried LDN, and most recently, I’ve done the Vitamin E

enemas. In May, I was able to use Canasa and that stopped it after just two

days of using it. I kept using it for about 3-4 weeks and everything was fine.

I started LDN the first of August, and started having B again the end of

August. It’s just a small amount, not much (if any) mucus, and my stools

are just perfect. However, the Canasa doesn’t seem to work like it did in

May. I used it for most of October and November and I would get a day or two

without B, but it never stopped completely. Then I started the Vitamin E enemas

(in addition to the Canasa) and the B stopped after the 4th day of

the enemas.

 

However,

I’ve just recently submitted samples for testing to Genova Diagnostics in

the hope that they can identify something that might be the culprit. In order

to do the stool test, I had to stop the Vitamin E enemas, the Canasa, and my

SCD yogurt. Sure enough, the B came back on the second day after I stopped everything.

 

It’s

so frustrating! I’m not sure how I’m going to proceed next, because

I’m waiting for the results from Genova.

 

That

said, I’d echo what others have said, which is to try going back to intro

and see if that helps. Maybe eliminating all the nut products for a few days

will help.

 

Good

luck – and let me know what ends up working (if something does).

 

Kathy

UC

since 12/05, dx 5/06

Sulfasalazine

worked until mid-2007

Started

SCD 7/07

Totally

symptom free and med free from 7/08 until 3/09

Intermittent

B since 3/09, no other symptoms

Back

on sulfasalazine, LDN, tried Vitamin E enemas, and Canasa

[Guest guest]

It's possible because I occasionally have sharp pain with it. I'm thinking maybe a small fissure or hemorrhoid. The Carlson's suppositories help with that.  I had a normal scope last summer. What would they do in this case? a sigmoidoscopy? I don't think I need an entire colonoscopy for this. Well, hopefully, not.

--

 

With just a small amount of B and everything else fine, is it possible that you have a hemorrhoid?

PJ

>

> Hi -

>

>

>

> I saw your posts about your bleeding. I've also been struggling with a

> similar situation off and on since March of this year, when I had surgery

> and they gave me IV antibiotics. Prior to the surgery, I had been on SCD for

> a year and a half, and had been symptom free and med-free for about 9

> months. From the time of my original diagnosis in May 2006 until two weeks

> after the surgery, I had never seen a trace of blood. I would get loose

> stools, which I thought was ironic because my whole life I'd struggled with

> C! That alone showed me that the diet had made some dramatic changes in my

> bowel processes (not to mention that it got rid of my frequent bloating and

> gas pains).

>

>

>

> In any event, I've had this B off and on since March and have tried

> everything. I've gone back to intro, I've eliminated dairy, nuts, fruit,

> I've tried LDN, and most recently, I've done the Vitamin E enemas. In May, I

> was able to use Canasa and that stopped it after just two days of using it.

> I kept using it for about 3-4 weeks and everything was fine. I started LDN

> the first of August, and started having B again the end of August. It's just

> a small amount, not much (if any) mucus, and my stools are just perfect.

> However, the Canasa doesn't seem to work like it did in May. I used it for

> most of October and November and I would get a day or two without B, but it

> never stopped completely. Then I started the Vitamin E enemas (in addition

> to the Canasa) and the B stopped after the 4th day of the enemas.

>

>

>

> However, I've just recently submitted samples for testing to Genova

> Diagnostics in the hope that they can identify something that might be the

> culprit. In order to do the stool test, I had to stop the Vitamin E enemas,

> the Canasa, and my SCD yogurt. Sure enough, the B came back on the second

> day after I stopped everything.

>

>

>

> It's so frustrating! I'm not sure how I'm going to proceed next, because I'm

> waiting for the results from Genova.

>

>

>

> That said, I'd echo what others have said, which is to try going back to

> intro and see if that helps. Maybe eliminating all the nut products for a

> few days will help.

>

>

>

> Good luck - and let me know what ends up working (if something does).

>

>

>

> Kathy

>

> UC since 12/05, dx 5/06

>

> Sulfasalazine worked until mid-2007

>

> Started SCD 7/07

>

> Totally symptom free and med free from 7/08 until 3/09

>

> Intermittent B since 3/09, no other symptoms

>

> Back on sulfasalazine, LDN, tried Vitamin E enemas, and Canasa

>

[Guest guest]

From what I've read it has more to do with the animal protein then anything else

so dairy wouldn't help as much as we'd like it to. If you have meat or dairy at

another meal it's perfectly fine and shouldn't interfere with your calcium

absorption. Plant proteins do not result in calcium loss in the same way that

animal proteins do. Broccoli, baked beans, and leafy green vegetables such as

collard greens and kale are a good source for calcium

Stacey

>

> >

> >

> > ,

> >

> > You said:

> > 'I'm kind of in a mini-flare. I've got a tiny amount of B that I can't get

> > rid of. I also wax and wane from a normal BM to a little C. I'm beginning

> > to suspect that I'm sensitive to dairy or too much calcium, because this

> > seems to happen when I take calcium supplements or eat dairy. I'm going to

> > try a 3-day experiment with no dairy and see what happens. For calcium, I

> > guess I'll eat a lot of broccoli and greens. '

> >

> > I am wondering why you are on a calcium supplement. If you are eating

> > dairy and if the nuts you are eating are almonds, you are more than set to

> > go on the calcium. Another thing to keep in mind is that iron and calcium

> > will bind together and you won't get the benefit from either and that could

> > cause you to have C. So if you are having almonds/dairy with a meal that

> > contains iron (meat or veggies), there is a good chance you will be negating

> > some of each. It isn't necessary to get paranoid about it, just something

> > to keep in mind.

> >

> > Regards,

> >

> > Amelia

> > Husband UC 9 years, SCD 17months

> > LDN from last night!

> >

> >

> >

> >

> >

> >

>

[Guest guest]

Thanks, Marilyn.On Fri, Dec 11, 2009 at 9:01 AM, Wizop Marilyn L. Alm wrote:

 

At 10:00 AM 12/11/2009, you wrote:

Thanks. Scaling back to nut

butters, zucchini, applesauce, and meat.  Feeling a bit better,

we'll see what the results are.  I tend to forget that I can drop

back to the easier-to-digest foods.

Heh. Our problem is that we work so hard to get more foods in our diet

after we come off the intro diet that most times we don't WANT to think

about dropping back to the easier to digest foods until someone whaps us

'bout the head and ears and reminds us.

Glad you're feeling better!

—

Marilyn

    New

Orleans, Louisiana, USA

    Undiagnosed IBS since 1976, SCD since 2001

    Darn Good SCD Cook

    No Human Children

    Shadow & Sunny Longhair Dachshund

       

[Guest guest]

What dosage did you use for the enema - 4000-8000 IU as

Mara suggested? I notice that the protocol mentioned on the web - I think this

is the one Alyssa used- starts with 1 400 IU softgel and works up to the full dosage

by adding a capsule every day.

Just curious as to what you used.

- I started with 1 400 IU softgel and worked up to 4000 (4 of the 1000 IU

softgels) like Alyssa did.

Mara –

yes, I could start them back up again, but they are really a pain in the a@@

(no pun intended) to do. Since the B isn’t getting worse, I figured I

would wait for the results and then figure out my next strategy, which will

probably be to go back to intro and pureed foods and start the enemas again.

According to the guy who promotes them, you may need to do them for 3 months

for a lasting effect. Ugh.

I’m

wondering if the steroid enemas would be worth trying? I’m committed to

try and stay away from oral steroids, but wonder if the enemas would help long

enough for my ulcer to heal.

PJ –

I’m pretty sure it’s an ulcer, but I suppose it could be a hemorrhoid

or a fissure. That’s actually what I thought my problem was back before I

was diagnosed with UC.

Kathy

[Guest guest]

The steroid enema was the only thing that worked for me when I was at my worst. That took me out of a bad flare and now SCD seems to be keeping me out of it. I would try it if your going more than twice a day with blood and discomfort. Otherwise maybe just give it time?-UC - 1 yearSCD - 3.5 months 100% strict and 4 months restricted diet.Asacol - 4 pills 3 times a day - hopefully scd will help me get off these!

No more Hydrocortisone or Prednisone!To: BTVC-SCD From: s2kredhead@...Date: Sat, 12 Dec 2009 13:06:38 -0800Subject: Re: Flaring - Trying to Figure out the Culprit

What dosage did you use for the enema - 4000-8000 IU as

Mara suggested? I notice that the protocol mentioned on the web - I think this

is the one Alyssa used- starts with 1 400 IU softgel and works up to the full dosage

by adding a capsule every day.

Just curious as to what you used.

- I started with 1 400 IU softgel and worked up to 4000 (4 of the 1000 IU

softgels) like Alyssa did.

Mara –

yes, I could start them back up again, but they are really a pain in the a@@

(no pun intended) to do. Since the B isn’t getting worse, I figured I

would wait for the results and then figure out my next strategy, which will

probably be to go back to intro and pureed foods and start the enemas again.

According to the guy who promotes them, you may need to do them for 3 months

for a lasting effect. Ugh.

I’m

wondering if the steroid enemas would be worth trying? I’m committed to

try and stay away from oral steroids, but wonder if the enemas would help long

enough for my ulcer to heal.

PJ –

I’m pretty sure it’s an ulcer, but I suppose it could be a hemorrhoid

or a fissure. That’s actually what I thought my problem was back before I

was diagnosed with UC.

Kathy

Hotmail: Trusted email with Microsoft’s powerful SPAM protection. Sign up now.

[Guest guest]

Well so far, no dairy, dropping back to easier foods, and two days of Vitamin E enemas have stopped the B (!)I'm going to go ahead and do the full 12 weeks of Vitamin E enemas at this point.  They seem soothing. So far, so good.

I wonder if I'm truly dairy-intolerant or if eating too much of it is binding me up.  I miss eating cheese. But for now, will avoid it.Thanks everyone, for your suggestions.

--