Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 Hi Eileen, Welcome and good luck-actually I discussed it with my internist after tossing it around for a few years- my pressure was out of wacky and I had to have meds adjusted a few times, I was always bloated and uncomfortable, my weight bearing joints were very painful, I have always had a bad back but it has been horrible for the last 5-7 years, I am missing a good part of my family life and life in general as I cannot move around easily and on and on-sorry for rambling but back to my internist--- he actually suggested I see Dr G as he as a patient that has had a lot of success and Dr G did the surgery- My internist is not exactly a pusher of this surgery as my brother who is also quite heavy has asked him about it and he said he thought that at this time my brother should try to do it on his own- My brother is a lot younger than I am by 12 years and has bad knees but no other co-morbidities. He told my brother that my situation was different that his ( reasons listed above.) It was after my appt with my internist that I searched the web diligently so as to decide what surgeries were out there and which was best-I had heard of Carnie and that was what was in the back of my mind at the time I asked. I came across the gastric banding and really was seeking that surgery first- I had a list of questions when I went for my appt. mostly about the gastric banding, but they really applied to any of the choices- It was really Dr G who explained each of the surgeries and based on his statements I made the decision (along with my husband) to have the more extensive surgery. Some of my reasons were 1- my bmi is 53 and with the % of success of each of the surgeries I have the best chance of getting to my goal weight with the DS. 2- It seems that you also have the best chance of eating more normally without having too much of a problem with dumping and vomiting (not that it can't happen with this but it is "less" likely) 3- I felt that taking nutritional supplements for the rest of my life was not that big a deal. I am 51 and have had to take meds for various co-morbidities for the last 10 years so if I can reduce some of those meds and replace them with nutritional supplements I think that is a great exchange. 4- There is less chance of regaining the weight with this surgery than the others and I only want to do this once and not have to worry about having a revision if the RNY didn't work. I'm sure the RNY is great for some people but I just felt this one was better for me. I hope I didn't ramble too much for you but most of all I hope I helped you- Email me anytime if I can be of help and good luck to you new at this Saw your posting and I am new at this and scared. I have my first apt. With Dr. Gagner in early Sept. Any pointers on how you made this decision? JEB874@... Eileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2004 Report Share Posted August 25, 2004 Welcome to the group. It is hard dealing with the uncertainty of this disease. I am glad I found this group because it is a great deal of support for our family. Every time something "new" comes up, someone here has already delt with it, and can help me deal. How old is your son? When was he diagnosed? Best wishes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2004 Report Share Posted August 25, 2004 Hi there. Well, you've come to the right place for support. The folks on here are incredibly helpful and supportive. I don't participate much, but I learn a lot just from reading other people's questions and the answers they receive. I don't know much about mito either. My nephew was just diagnosed with mito, but they don't know yet what kind. The uncertainty is one of the most difficult things to deal with. My sister cries and asks how doctors are going to fix the fact that her son just plain does not eat. He has no interest at all. How are they going to fix that? We don't know, but right now he seems to be holding his own. It's all very scary and frustrating. On this thread, there are people who have already been thru what you are experiencing. Best wishes and take heart. There are lots of people who care. morganmito wrote: We are new to mitochondrial diseases. Our son is diagnosed with non specific mitochondrial disorder. He has "episode" of lethargy, no muscle tone, myoclonic seizures, retracting respirations. How do you deal with the uncertainty? The mito cocktail doesn't seem to help much. Any advice?Please contact mito-owner with any problems or questions. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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