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dystautonomia question

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Does anyone know any type of treatment for dystatuonomia? Grace seems to be getting more and more sypmtoms from this all the time, and the old problems are just getting worse. She has had all the testing to make sure none of the symptoms are related to anything else, but I don't know if any of this can cause serious problems or not.

Here is what seems to be "off" most often now.

High BP average is 120/90 (this week in the hosp. it got up to 210/120)

Resting Pulse is now about 100

Very severe Heat intolerance

Hypoglycemia (but this seems to be pretty in control right now.)

Any help is appreciated?

,Mommy to (9), (7), Bre-Anne (6), Grace (2) and our newest arrival is due Sept. 20thFor the latest baby info, and to see our family check out:www.BabyCountDown.com?baby=4007

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> Does anyone know any type of treatment for dystatuonomia? Grace seems

to be

> getting more and more sypmtoms from this all the time, and the old

problems

There are not a lot of treatments. The main treatment is to drink tons and

tons.

My teen is supposed to drink 2-4L of fluid a day. Antidepressants are also

sometimes used. Some may use blood pressure meds too. Dysautonomia

patients tend to have low blood pressure though. It goes down as you get up

from a seated position and you lose consciousness. I would be concerned

about the high blood pressure.

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