Has anyone ever heard of EndoCinch? A new GI procedure!

[Guest guest]

Hello!! First of all I hope everyone is doing good. A great healthy

day.

I talked to Joey's GI doctor yesterday in St. Louis, Missouri. We

have really been concidering doing a Fundoplitation. I think we

decided it was too much of a risk because of airway issues. We would

rather not take the gamble with Joey.

He told me about a new procedure that they are only doing on adults

right now...called EndoCinch. I'm sure there is a longer name for

it!!! Where they actually go in with a Endo scope and use two stiches

at the bottom of the stomach to help keep acid down. Sounds too easy

I'm sure. Yet sounds much safer and easier. My doctor plans to do

alittle research and find out first if it has ever been done on

children then if it would be effected with Mito. Wouldn't that be

great!!! Something so simple to make our babies lives that much

easier.

Have any of you ever heard of this or know anyone who has used this?

Any help would be great!!!!!!!

Tamara(Mommy of 5 year old Joey, unspecific Mito)Dakota age 10,

starting to show soft signs of Mito, Stevie age 14 Healthy!!!

[Guest guest]

Tamara,

Never heard of it and we don't have these problems-about the only

ones we don't have. I found this site online about it. hope it helps

and good luck with your decision.

http://www.endocinch.com/pat_proc.cfm

Dawn