Re: Mito Memoir Deadline Extended/Suhad

[Guest guest]

Dear Suhad-

Thank you for sharing Samya's story and photograph. It is my hope

that stories such as yours will bring light to medical professions

when the answers just don't add up. Perhaps one day mito will be a

disease of the past and no one will suffer this deadly disease.

You know what said when he saw her pic.. " I love this little

girl. " I told him Samya is with Jesus. He said, " Go see her and Jesus

too? Someday we will, huh Mommy? " I smiled, " Yes sweetie. Someday. "

Thanks again.

Ann

> Dear Anne,

> I am not really sure if I was aware of this or not or maybe my

brain is

> not working well. Is this a book written to help raise awareness

about mito.

> If so, I would love to be a participant.. I already have my story

written on

> my daughter's website at www.samya.org. I have 2 stories, one is a

short

> one and one is much longer and more informative. If I could, I

would like to

> submit the longer one along with a picture. What are the details

and to what

> e-mail address do I send it to. If it just as easy for the person

to take my

> story from the website and a picture (There are many on it) that is

fine or

> if I must submit it myself, please let me know.

> Thanks,

>

>

>

> Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) &

Leanna

> with same disease.

> Samya's Memorial Site: www.Samya.org

> Email: Suhad1970@s...

> Alt Email: Suhad@S...

> AiM Chat: Suhad1970

>

> Mito Memoir Deadline Extended

>

> Dear Friends,

>

> The deadline for story submissions to Mito Memoirs has been

extended

> to August 1st, 2004. A few people expressed they needed more time

to

> write/re-word their stories.

>

> It is not too late to be included in the project, if you so wish.

> There is no length limit. You may include a photograph, or a poem...

>

> Those included in the project will receive a free copy of Mito

> Memoirs: A Journey Into Our Lives.

>

> memoir@h...

>

> Thank you.

>

> Ann Eide

>

>

>

>

> Please contact mito-owner with any problems or

questions.

>