Thanks

[Guest guest]

.. I know there are doctors who will do that but I don't know if there is one near my family that will. I have found a doctor there who does the surgery. His name is Dr. Booth in Biloxi, MS. Anyone out there have any info on him??

Dr Booth is very good and there are many here on the list that have used him. I'm sure they will respond. Also, I'm sure about the insurance thing, but there is Dr. Baltasar in Spain, Who I'm going to that does the DS....just wanted to throw it out there in case that would be possible.

Good luck

~~* AJ *~~

BMI 59

Surgery date 7/24/01

going self pay - Dr Baltasar Spain

Check out the

Bellingham Support for WLS

WWW.lookin2bthin.homestead.com

[Guest guest]

At 10:34 AM +0000 7/8/01, armywife1993@... wrote:

>...Now I

>have different problems because my husband is in the military and we

>are currently stationed in Germany. I have met online several

>military spouses who are stationed not only in Germany but in Europe

>and found out there are no military doctors in Germany who do the

>surgery. I have also been pursuing having the military send me back

>to the states to have the surgery but it seems to be taking to long.

You needn't fly home to the States. Dr. Baltasar in Spain has a fine

reputation. Many people from the States fly over to have the DS with

him if they cannot get insurance coverage. I believe that the total

cost, exclusive of air fare, is less than $11,000. His excellent

article on the DS and other information is at:

http://www.drbaltasar.com/Cruce_duodenal_Ing.html

I think that there is also a special e-mail group at Yahoo for his patients.

Am besten,

Steve

--

[Guest guest]

Thanks to everyone for giving me some advice and direction on where I might find a helpful doctor. I had really good ones that I liked in CA, and I am sure the Lord will also help lead me to the right one again. It is good to know there are others out there willing to help or just lend and ear for support.

God Bless, Debbie

[Guest guest]

Thanks to everyone for giving me some advice and direction on where I might find a helpful doctor. I had really good ones that I liked in CA, and I am sure the Lord will also help lead me to the right one again. It is good to know there are others out there willing to help or just lend and ear for support.

God Bless, Debbie

[Guest guest]

That is so good, These folks are also very caring folks as well. I am sure

you'll also be able to help in posts too. Each person has something to offer

We welcome you !!

LOVE & HUGS, grandmomBEV

(grandmom) to a gal 19yrs. with CF

thanks

I wanted to thank all those who answered my post.this really is a

teriffic list,and a great resorce of information.Ive already lernt a

few thing from reading everyones posts & answers.

gran3108

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

In a message dated 5/19/2003 4:22:23 PM Central Daylight Time,

Torstenkrafft@... writes:

> Thank you all for the lovely congrats to the birth of our son. Hope I can

> bring Silke and Sebastian home tomorrow, they both are doing fine.

>

>

> Peace

> Torsten, dad of Fiona 6wcf and Sebastian newborn wocf

> e-mail: torstenkrafft@...

>

Was he on time? Or was he early? I don't remember when his due date was. Deb

A

[Guest guest]

I am so overwhelmed by the support that I am receiving right now. I feel so

icky, sicky right now and all I can think of is please organize this surgery

soon. I don't think I can't take too much of these awful days and being so

spacey. I hate it when my children come into my room and try and talk to me and

I

am in another time zone. All I keep telling myself is this is not forever this

yucky, horrible feeling. It will be over soon. The other part of waiting for

thjis surgery is I am learning how fast the pancreas ist destroying itself. I

know that I am sick, though I have admitted it to very few. Of those few, they

are standing by me. Now I have this wonderful group to help me make it through

this disease with my chin up, and a positive attitude...........What can I

say, except thank you thank you from the bottom of my heart. It feels so good

to know that others that you have never met in person, will still give you love

and support..... I promise I will keep in touch ...Love Paget

[Guest guest]

I am so overwhelmed by the support that I am receiving right now. I feel so

icky, sicky right now and all I can think of is please organize this surgery

soon. I don't think I can't take too much of these awful days and being so

spacey. I hate it when my children come into my room and try and talk to me and

I

am in another time zone. All I keep telling myself is this is not forever this

yucky, horrible feeling. It will be over soon. The other part of waiting for

thjis surgery is I am learning how fast the pancreas ist destroying itself. I

know that I am sick, though I have admitted it to very few. Of those few, they

are standing by me. Now I have this wonderful group to help me make it through

this disease with my chin up, and a positive attitude...........What can I

say, except thank you thank you from the bottom of my heart. It feels so good

to know that others that you have never met in person, will still give you love

and support..... I promise I will keep in touch ...Love Paget

[Guest guest]

I am getting the message loud and clear that the Puestrow is not a procedure

that I should not be thinking about, even if it is with the top Dr's. Thank

you all for all your honesty. I will keep in touch of what I finally end up

doing. I have a feeling that it is going to be the whipple. I wish there was a

surgery out there that was a guarantee that once you had it you were cured. Not

with this disease. Thank again Paget

[Guest guest]

Paget,

The real message I was trying to get across to you wasn't to say don't

have a puestow, or don't have a whipple. It was to please get all the

facts from your doctors, get a second opinion, maybe a third, and put

it all together and make an informed decision. I am not qualified to

put a band-aid on so please make your choices with the advice of your

doctors. Have your discussed your surgical options with Dr. Sutherland?

Health to you!

Bert

[Guest guest]

> I am getting the message loud and clear that the Puestrow is not a

procedure

> that I should not be thinking about, even if it is with the top

Dr's. I have a feeling that it is going to be the whipple. >

>

>

[Guest guest]

There is nothing wrong or bad about bottle feeding either. I don't think I

will be comfortable breastfeeding either and I bottle fed my others and they are

all healthy, event he preemie twins.

God Bless,

Robin, NorthEastern, NY

EDD- July 27th, 2004

IT'S A BOY!!!!!!

Mommy to:

&

(twin boys 7 1/2),

Madison, daughter, 5 years and

Wife to Pup 15 years (October 31, 1988)

Gastric Bypass Surgery-

October 18th 2002

Start-378, current- 246(pregnant)

goal 170 after baby

[Guest guest]

I hope you will be very happy with Dr. Von stein. We could not be more

pleased with her. Kelsey had been through 9 months of non-ponseti

treatment which took us nowhere and the progress with Dr. VS has been

amazing. She also just has a wonderful bedside manner with Kelsey and

when she casted Kelsey's foot, Kelsey didn't cry once so she has a very

gentle touch. Good luck with it all.

Jenni

Goodin wrote:

>I was already considering everything you told me on this board; however, with

everything my son had been through, I hated hiking him out of state. The poor

kid can't get on any kind of good sleeping schedule. This being said, we called

and made an appointment with Dr. Von Stein in Cincinnati. Hopefully, no more

casting will be necessary, but we do want to continue with the Ponseti method.

Early on, it just was not possible to travel. We had originally planned to go

to Dr. Ponseti, but were not able to. Thank you again to everyone! Oh, and his

shoes stayed on last night. We adjusted the straps and tightened them down.

>

>Thanks,

>

>

>

>

[Guest guest]

That's good news!

s.

Thanks

I was already considering everything you told me on this board; however, with

everything my son had been through, I hated hiking him out of state. The poor

kid can't get on any kind of good sleeping schedule. This being said, we called

and made an appointment with Dr. Von Stein in Cincinnati. Hopefully, no more

casting will be necessary, but we do want to continue with the Ponseti method.

Early on, it just was not possible to travel. We had originally planned to go

to Dr. Ponseti, but were not able to. Thank you again to everyone! Oh, and his

shoes stayed on last night. We adjusted the straps and tightened them down.

Thanks,

[Guest guest]

Thanks to all of you who gave me referrals to neurosarcoidodis

specialists. The entire left side of hubby's left leg is numb and he

can't turn his left foot outside. Neurologist sent him for an EMG

next Tuesday. I know about the test, just had it on my hands for

carpel tunnel.

Next week neurologist is scheduling a spinal tap. What does the

spinal tap show if you have neurosarcoidosis? Is is a definitive

test or just another indicator?

The neurologist seems very young and fresh out of med school. If the

diagnosis is neurosarcoidosis we will be taking him to University of

Pennsylvania at Philadelphia based on the referral we got from this

bulletin board.

He is now 46 years old. Had sarcoid since about 26 years old.

Spleen was removed 4 years and was three times it's normal size with

sarcoid granulomas.

Over the last 3 years he has been diagnosed with a tumor on the nerve

for the ear and had radiation therapy. It has not gotten smaller. I

asked the neurologist if it actually could have been a sarcoid

granuloma and not an accoustic neuroma (tumor). He's not sure.

Over the last two years he has lost some of his sight, headache about

monthly, taste is wacked, smell is wacked, he is hearing things not

there, leg has gotten numb, he is now stumbling and can't walk

straight. He is falling once a week. He has urinary incontenance,

occasional slurred speech and occasionally can't find words or mixes

them up. Mood swings and anger problems.

Is this just normal progression of neurosarcoidosis or has the

disease progressed to a bad stage?

Thanks for everyone's help. I am reading as many past postings on

this bulletin board and any other websites I can find. Hubby is the

passive type and I don't work, so I am directing his care.

Thanks,

Kathleen

[Guest guest]

Hi Kathleen,Sounds like a lot of the same things that has happened and still happens to me except for the spleen. Have they done an MRI or brain scans or anything like that? or given him the dreaded preds? At least it brought back 75% of my sight! Thank heavens! There are very good neuro specialists at the Mayo clinic in Minnesota. I was referred there by my neurologist in 2003 and are they very thorough, they do every test in the book that they can they think of and when you leave, you leave with a diagnosis and referral to good local doctors. There is one thing about this, it seems to affect everyone differently. I hope this helps.Shyrose"You cannot do a kindness too soon. because you never know how soon it will be too late." Thanks

Thanks to all of you who gave me referrals to neurosarcoidodis

specialists. The entire left side of hubby's left leg is numb and he

can't turn his left foot outside. Neurologist sent him for an EMG

next Tuesday. I know about the test, just had it on my hands for

carpel tunnel.

Next week neurologist is scheduling a spinal tap. What does the

spinal tap show if you have neurosarcoidosis? Is is a definitive

test or just another indicator?

The neurologist seems very young and fresh out of med school. If the

diagnosis is neurosarcoidosis we will be taking him to University of

Pennsylvania at Philadelphia based on the referral we got from this

bulletin board.

He is now 46 years old. Had sarcoid since about 26 years old.

Spleen was removed 4 years and was three times it's normal size with

sarcoid granulomas.

Over the last 3 years he has been diagnosed with a tumor on the nerve

for the ear and had radiation therapy. It has not gotten smaller. I

asked the neurologist if it actually could have been a sarcoid

granuloma and not an accoustic neuroma (tumor). He's not sure.

Over the last two years he has lost some of his sight, headache about

monthly, taste is wacked, smell is wacked, he is hearing things not

there, leg has gotten numb, he is now stumbling and can't walk

straight. He is falling once a week. He has urinary incontenance,

occasional slurred speech and occasionally can't find words or mixes

them up. Mood swings and anger problems.

Is this just normal progression of neurosarcoidosis or has the

disease progressed to a bad stage?

Thanks for everyone's help. I am reading as many past postings on

this bulletin board and any other websites I can find. Hubby is the

passive type and I don't work, so I am directing his care.

Thanks,

Kathleen