Re: seizures or tremors/Darla

[Guest guest]

Darla,

has grand mal seizures and we often saw te tremore that you

described, especially when she was falling asleep or waking up. We always

thought of them as just a weird mito thing, until she started getting her

phenobarb IV and the tremors went completely away. So, I'd bet that they

were seizures. BTW, became much more alert after her seizures were

under better control, so I think it's worth it to treat them if they turn

out to be seizures. I'm praying for you and the girls. Seizures are so

scary. It's so difficult to see your child's body completely out of their

control. Do you have diastat at home? Is Zipporah on any meds right now?

Take care,

Heidi, 's Mom

www.caringbridge.org/ma/heather

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