Re: seizures or tremors/Heidi

July 18, 2004

We do not have any diastat as Zipporrah hasn't been diagnosed

with seizures, only suspected of them, and Asenath's seizures have

been well controlled by Topamax. I plan to discuss the issue with

Dr. Whiteman on the 29th and if she does it again I will call him

sooner as well as her neurologist at Mayo.

Darla

> Darla,

> has grand mal seizures and we often saw te tremore that you

> described, especially when she was falling asleep or waking up. We

always

> thought of them as just a weird mito thing, until she started

getting her

> phenobarb IV and the tremors went completely away. So, I'd bet

that they

> were seizures. BTW, became much more alert after her

seizures were

> under better control, so I think it's worth it to treat them if

they turn

> out to be seizures. I'm praying for you and the girls. Seizures

are so

> scary. It's so difficult to see your child's body completely out

of their

> control. Do you have diastat at home? Is Zipporah on any meds

right now?

>

> Take care,

> Heidi, 's Mom

>

>

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