Help!

March 21, 2005

Hello

Yes, what state and what insurance do you have? The only thing I can say is

that we had some issues at first. Our insurance company was only paying 20 or

30%, once I called them and explained the situation and the reason for the

shoes, they had to get more information from my son's doctor. They now pay 75%,

so I would look into it. I am not sure about the AFO's are they the same as DBB,

because that's what my son wears. Still check with your insurance company, and

if you meet income requirements your state might pay those bills as well. This

was a dispute on here before, but you are paying insurance for them to take care

of these thing's, so make sure they do they share.

Liana mom to Jaren 10/05/97, Jamia 04/30/99, and n 07/30/04, RCF, DBB 12/7

nights

lmorrow9 lmorrow9@...> wrote:

What state are you in?

>

> I just got a call from the place making the AFOs for

> ...after insurance our portion is $231! We

> don't have that!! Do you guys know of any place were

> we parents can get assistance when we can't cover all

> this stuff?

>

> Any info would be appreciated...

>

> " Without music, life would be a mistake. " --Nietzsche

> " Heaven's not beyond the clouds, it's just beyond the fear.

> No heaven's not beyond the clouds, it's for us to find right here. " -

-Garth , " Belleau Wood "

>

> __________________________________________________

>

March 22, 2005

Does SD have a Shriners or anything sponsored by the Masons or

anything like that. In Texas, we have ish Rite in Dallas that

is totally philanthropic - we don't pay a dime - even if you have

insurance, they don't even file claims against it.

> > >

> > > I just got a call from the place making the AFOs

> > for

> > > ...after insurance our portion is $231! We

> > > don't have that!! Do you guys know of any place

> > were

> > > we parents can get assistance when we can't cover

> > all

> > > this stuff?

> > >

> > > Any info would be appreciated...

> > >

> > > " Without music, life would be a

> > mistake. " --Nietzsche

> > > " Heaven's not beyond the clouds, it's just beyond

> > the fear.

> > > No heaven's not beyond the clouds, it's for us to

> > find right here. " -

> > -Garth , " Belleau Wood "

> > >

> > > __________________________________________________

> > >

March 22, 2005

,

I bet you are overwhelmed by all of this info. It just really seems

as though your son has been treated thus far with the Ponseti Method

and the next step is to get the right shoe size to go on the bar.

From what I have read from people here the AFO's just don't work, you

are already at the corrected foot phase, you just need to keep it.

The story about his foot being two small, or whatever, is, excuse me,

CRAP! You just need the littlest Markell shoe done up very tight.

What 2-3 month old doesn't have little itty bitty feet? I would

consider checking out what size shoe you have, going to Markell's

website and getting info on his smallest size which is 0000 and tell

that orthotist that they need to get the correct size at no charge

because they gave you the wrong ones in the first place. Be armed

with info. In the mean time your baby should probably be casted to

maintain the correction while they get the shoes, although I don't

see how if this is done today they could not be in tomorrow via

courier. How long has he been out of casts and not wearing the

brace?

Here is the link to Markell's sight.

http://www.markellshoe.com/ponsetiflyer.pdf

Look forward to hearing about how you get on.

Louisa

Rachael 6-27-99

Zoe 2-22-04 RCF FAB 14/7

>

> I just got a call from the place making the AFOs for

> ...after insurance our portion is $231! We

> don't have that!! Do you guys know of any place were

> we parents can get assistance when we can't cover all

> this stuff?

>

> Any info would be appreciated...

>

> " Without music, life would be a mistake. " --Nietzsche

> " Heaven's not beyond the clouds, it's just beyond the fear.

> No heaven's not beyond the clouds, it's for us to find right here. " -

-Garth , " Belleau Wood "

>

> __________________________________________________

>

November 15, 2006

I'm in desperaqte need of information regarding the seattle sarciod clinic (if

there really is one) . I'm at the end of my rope and the only option left for

me is to leave the country to get treatment, so I'm trying to locate the

nearest clinic to British Columbia. You see, I'm prednisone resistant, all it

did was deteriorate my quadriceps-now i can't walk. Then I tried Imuran-no

change. I've been on chemotherapy since June and i got the results today-

It's getting worse and options are running out. It is almost certain that i will

die from this, which is why I'm making a last ditch attempt to get to a

sarcoid clinic. Any advice is welcome.

Alyssa

Ps: tomorrow is my 26th Birthday!Yay!

November 16, 2006

Hi Alyssa,Happy Birthday, sorry to hear what's happening with you. I also live in Canada, Ontario to exact. I asked my Dr to refer me to the Mayo Clinic in Rochester, Minnesota.. If your doctor make a good and strong case for you to OHIP they will approve the application. but first your doctor will have to do all the ground work and send your case history, MRI's and all that stuff to the sarcoid clinic at the Mayo. Also if you are on disability and it is approved by OHIP disability will pay for the trip. But it all depends on your doctor. Your Dr. can write to Dr. Noseworthy, in the Mayo Bldg, 8th Floor, Desk 8, Dept of Neurology, rather fax everything. Here is number your Dr. can call to get the fax number .Hope this

helps.Shyrose "You cannot do a kindness too soon. because you never know how soon it will be too late." Help!