Asymptomatic vs. no signs of disease

[Guest guest]

I was reading through an SCD blog that I stumbled upon today, and the person had

been following SCD for 4 years. He ended up getting a scope done, and, though he

had no symptoms and had strictly followed the SCD it showed signs of active

Crohn's. This made me wonder how often this happens.

I'm not doubting that the SCD can help heal your gut, but I wonder how often it

helps heal the symptoms, but there is still active disease. I'm not saying that

can't happen with medications as well, but are there many cases of people who go

med free and SCD and find no signs of active Crohn's or UC when they get scoped?

[Guest guest]

Was this Stocker? He posts here sometimes and also on his blog. This kind

of news is discouraging, but I see it as the glass half full, as it would be

better to have no symptoms on SCD, than symptoms off SCD.

I also have a hard time seeing how someone could have severe disease and no

symptoms. If anything, maybe SCD decreased the activity of the disease somewhat,

if not entirely. Some people also decide to do SCD with medication as well.

I too would love to hear stories of people with IBD and normal scopes. I believe

I have seen them posted here.

I have only been on SCD 7 months, so I can not report on this..

PJ

>

> I was reading through an SCD blog that I stumbled upon today, and the person

had been following SCD for 4 years. He ended up getting a scope done, and,

though he had no symptoms and had strictly followed the SCD it showed signs of

active Crohn's. This made me wonder how often this happens.

>

> I'm not doubting that the SCD can help heal your gut, but I wonder how often

it helps heal the symptoms, but there is still active disease. I'm not saying

that can't happen with medications as well, but are there many cases of people

who go med free and SCD and find no signs of active Crohn's or UC when they get

scoped?

>

[Guest guest]

Yup! I have been on SCD for 3 years and was scoped about 4 weeks ago with the result being absolutely no sign of Crohn's disease.  I have never been on meds for Crohn's and the doctors were stunned as I had a really aggressive flare in 06 (TPN for 30 days and a resection).I am also recovering from a major operation (not related to Crohn's) and the doctors all encouraged me to "keep doing what I am doing and stay on whatever diet I am on)....Hope this gives you encouragement.JillTo: BTVC-SCD From: fossil.color@...

I'm not doubting that the SCD can help heal your gut, but I wonder how often it helps heal the symptoms, but there is still active disease. I'm not saying that can't happen with medications as well, but are there many cases of people who go med free and SCD and find no signs of active Crohn's or UC when they get scoped?

__._,_

Hotmail: Trusted email with powerful SPAM protection. Sign up now.

[Guest guest]

At 04:11 PM 12/14/2009, you wrote:

I'm not doubting that the SCD

can help heal your gut, but I wonder how often it helps heal the

symptoms, but there is still active disease. I'm not saying that can't

happen with medications as well, but are there many cases of people who

go med free and SCD and find no signs of active Crohn's or UC when they

get scoped?

The lady who was my mentor on SCD was described by her doctor as having a

gut which looked like bloody lace. He was all for immediate surgery. She

opted for SCD. 14 months later, she had a colonoscopy. Her doc said that

if he had not diagnosed her himself, he would not have believed she was

the same patient, because she was completely healed.

FYI, my grandmother died of complications of diverticulitis. My mother

was in the hospital in March of 2009 and received a unit of blood because

of bleeding caused by diverticulitis. I, on the other hand, 8 years SCD,

had a colonoscopy in January 2009, and had no sign of

diverticulitis. Hurrah, SCD!

For my colonoscopy: no sign of celiac, no sign of Crohn's or UC, no sign

of diverticulitis. No sign of any bleeding, which the PCP was hinting

darkly about. In short, my gut is apparently healed from all the issues I

battled for 25 years -- although I know there are things which,

functionally, still have to heal. And above all, no sign of cancer. (I

had surgery for endometrial cancer in 2008, and if it's going to spread,

one of the more likely places for it to spread is to the colon.)

Best of all, I don't have to do another one for another TEN

YEARS!!

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

I have been on SCD for over two years and off all medications for the same two years. I no longer have any symptoms unless I eat something I'm not supposed to, and even then the symptoms don't last very long anymore. Although I haven't been scoped yet my blood work recently came back with no signs of inflammation - which my doctor said was impossible since I've been off all my anti-inflammatory meds for so long. My doctor agreed it was working and admitted that doctors aren't trained in nutrition and medicine has a long way to go. I'm also now back to a health weight and have a lot of energy. My iron and cholesterol also came back excellent. 

This diet is amazing. It makes life hell for all my friends and family when I visit, but I couldn't be happier (or feel more in control of my own body again).HarveyCrohns 14 years

SCD 30 monthsNo meds Happy and healthy

 

I was reading through an SCD blog that I stumbled upon today, and the person had been following SCD for 4 years. He ended up getting a scope done, and, though he had no symptoms and had strictly followed the SCD it showed signs of active Crohn's. This made me wonder how often this happens.

I'm not doubting that the SCD can help heal your gut, but I wonder how often it helps heal the symptoms, but there is still active disease. I'm not saying that can't happen with medications as well, but are there many cases of people who go med free and SCD and find no signs of active Crohn's or UC when they get scoped?

[Guest guest]

I too am concerned about this I have been scd for 2 months and am wondering if

i've never had surgery and only recently diagnosed, is it possible to have no

signs of crohns on my next scope in hopefully about a year? Also was your

progression with scd smooth or were there bumps? I feel like its one step

forward two steps back at times and at times I feel more sure its the right

thing and working.

I so badly want my next scope to be clear and don't even plan on thinking about

going for one for atleast another year.

did you have surgery to remove part of your intestines and if so did you still

have active crohns on remaining parts? do you know of those who were fully clear

after being on this diet with no surgery?

>

>

> Yup! I have been on SCD for 3 years and was scoped about 4 weeks ago with the

result being absolutely no sign of Crohn's disease. I have never been on meds

for Crohn's and the doctors were stunned as I had a really aggressive flare in

06 (TPN for 30 days and a resection).

> I am also recovering from a major operation (not related to Crohn's) and the

doctors all encouraged me to " keep doing what I am doing and stay on whatever

diet I am on)....

> Hope this gives you encouragement.

> Jill

>

> To: BTVC-SCD

> From: fossil.color@...

>

>

>

>

> I'm not doubting that the SCD can help heal your gut, but I wonder how often

it helps heal the symptoms, but there is still active disease. I'm not saying

that can't happen with medications as well, but are there many cases of people

who go med free and SCD and find no signs of active Crohn's or UC when they get

scoped?

>

>

>

>

>

>

>

>

>

>

> __._,_

>

>

>

>

>

>

>

>

> _________________________________________________________________

> Hotmail: Trusted email with powerful SPAM protection.

> http://clk.atdmt.com/GBL/go/177141665/direct/01/

>

[Guest guest]

first of all congrats on your progress with scd, i hope to have such great

results to cure myself from my recently diagnosed crohns. have you ever had

surgery?

also you mentioned life is hell when you visit your friends, I'm having such a

hard time with the social aspects of this diet and going out and hanging out

with everyone eating everything. how do you handle that?

>

> >

> >

> > I was reading through an SCD blog that I stumbled upon today, and the

> > person had been following SCD for 4 years. He ended up getting a scope done,

> > and, though he had no symptoms and had strictly followed the SCD it showed

> > signs of active Crohn's. This made me wonder how often this happens.

> >

> > I'm not doubting that the SCD can help heal your gut, but I wonder how

> > often it helps heal the symptoms, but there is still active disease. I'm not

> > saying that can't happen with medications as well, but are there many cases

> > of people who go med free and SCD and find no signs of active Crohn's or UC

> > when they get scoped?

> >

> >

> >

>

[Guest guest]

I've never had surgery but that is definitely the direction I was heading. I was on Prednisone and Asacol for years and it was no longer working as well. I think Remicade and surgery was next. As far as handling the social aspects I now find it easier. Before I just never told anyone I had Crohns and often just didn't go out. Now I have to explain that I have Crohns in order to explain why I can't eat just anything - but it's an interesting discussion because of all my progress on the diet. 

I'm now talking with other people about diet and finding out that they are experiencing similar food issues. Sometimes is Celiac, other times it's problems with salt or diabetes, or often it's one food allergy or another. Tonight I had a holiday party and one person I was speaking with had Celiac and his wife was a vegetarian. We don't, as a society, talk about diet very often - and we should. I've found that it's like talking about the weather in that it makes for great small talk - but it can also really connect you to others who are either struggling with something themselves or they know someone who is.

I've been pleasantly surprised at how many people, like myself, are waking up about processed food and how we are poisoning ourselves with it - and making others wealthy in doing so. 

Try talking with your friends about the diet. But be sure to listen to their issues also and learn more about the larger issues with our food system in general. People find it more fascinating than you might think. But again - make sure you do more listening than talking once you get the discussion going.

HarveyCrohns 14 yearsSCD 30 monthsNo medsHappy and healthy

 

first of all congrats on your progress with scd, i hope to have such great results to cure myself from my recently diagnosed crohns. have you ever had surgery?

also you mentioned life is hell when you visit your friends, I'm having such a hard time with the social aspects of this diet and going out and hanging out with everyone eating everything. how do you handle that?

>

> >

> >

> > I was reading through an SCD blog that I stumbled upon today, and the

> > person had been following SCD for 4 years. He ended up getting a scope done,

> > and, though he had no symptoms and had strictly followed the SCD it showed

> > signs of active Crohn's. This made me wonder how often this happens.

> >

> > I'm not doubting that the SCD can help heal your gut, but I wonder how

> > often it helps heal the symptoms, but there is still active disease. I'm not

> > saying that can't happen with medications as well, but are there many cases

> > of people who go med free and SCD and find no signs of active Crohn's or UC

> > when they get scoped?

> >

> >

> >

>

[Guest guest]

I go to a crohn's forum (HealingWell.com), and whenever someone brings up SCD,

the moderators pipe in that it only helps your symptoms, and that the disease

continues to do microscopic damage. I would love to refute them on this!

Holly

Crohn's

SCD 12/01/08

>

> Was this Stocker? He posts here sometimes and also on his blog. This kind

of news is discouraging, but I see it as the glass half full, as it would be

better to have no symptoms on SCD, than symptoms off SCD.

>

> I also have a hard time seeing how someone could have severe disease and no

symptoms. If anything, maybe SCD decreased the activity of the disease somewhat,

if not entirely. Some people also decide to do SCD with medication as well.

>

> I too would love to hear stories of people with IBD and normal scopes. I

believe I have seen them posted here.

>

> I have only been on SCD 7 months, so I can not report on this..

> PJ

>

>

[Guest guest]

Becky-

I am in first month of diet. I also feel depressed sometimes, but forums such as

these help put things in perspective.

Well, I tend to think of the options we have: almost none except trying SCD,

irrespective of 'microscopic' inflammation theory or whatever.

Stoker does mention that the doc, after colonscopy, thought he still has

inflammation though he was asymptomatic. But the option is to take Imuran or

other meds, which are worse than staying on SCD despite 'microscopic'

inflammation.

-Andy.

> >

> >

> > Yup! I have been on SCD for 3 years and was scoped about 4 weeks ago with

the result being absolutely no sign of Crohn's disease. I have never been on

meds for Crohn's and the doctors were stunned as I had a really aggressive flare

in 06 (TPN for 30 days and a resection).

> > I am also recovering from a major operation (not related to Crohn's) and the

doctors all encouraged me to " keep doing what I am doing and stay on whatever

diet I am on)....

> > Hope this gives you encouragement.

> > Jill

> >

> > To: BTVC-SCD

> > From: fossil.color@

> >

> >

> >

> >

> > I'm not doubting that the SCD can help heal your gut, but I wonder how often

it helps heal the symptoms, but there is still active disease. I'm not saying

that can't happen with medications as well, but are there many cases of people

who go med free and SCD and find no signs of active Crohn's or UC when they get

scoped?

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > __._,_

> >

> >

> >

> >

> >

> >

> >

> >

> > _________________________________________________________________

> > Hotmail: Trusted email with powerful SPAM protection.

> > http://clk.atdmt.com/GBL/go/177141665/direct/01/

> >

>

[Guest guest]

Here is where I wish we had controlled studies, but without the interest of the

pharmaceutical companies and funding ( no profit in a diet) these are lacking.

Surely there are successes and failures with any approach...including

medication. Has anyone offered a medication for IBD that results in a cure?

SCD at least offers hope. It's hard in the beginning to think about the long

term. I took it on the short term: I will learn to make the yogurt, I will stick

to this for one month and see how I feel, etc. Each month sees improvement. I

hope and pray we will all post our normal colonoscopies on this site one day.

For now though, I know I feel a lot better- physically and mentally, on SCD. It

does help to see the progress of those who have been on SCD for a long time.

PJ

> > >

> > >

> > > Yup! I have been on SCD for 3 years and was scoped about 4 weeks ago with

the result being absolutely no sign of Crohn's disease. I have never been on

meds for Crohn's and the doctors were stunned as I had a really aggressive flare

in 06 (TPN for 30 days and a resection).

> > > I am also recovering from a major operation (not related to Crohn's) and

the doctors all encouraged me to " keep doing what I am doing and stay on

whatever diet I am on)....

> > > Hope this gives you encouragement.

> > > Jill

> > >

> > > To: BTVC-SCD

> > > From: fossil.color@

> > >

> > >

> > >

> > >

> > > I'm not doubting that the SCD can help heal your gut, but I wonder how

often it helps heal the symptoms, but there is still active disease. I'm not

saying that can't happen with medications as well, but are there many cases of

people who go med free and SCD and find no signs of active Crohn's or UC when

they get scoped?

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > __._,_

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > _________________________________________________________________

> > > Hotmail: Trusted email with powerful SPAM protection.

> > > http://clk.atdmt.com/GBL/go/177141665/direct/01/

> > >

> >

>

[Guest guest]

>> I am in first month of diet. I also feel depressed sometimes, but forums > such as these help put things in perspective.>> Well, I tend to think of the options we have: almost none except trying > SCD, irrespective of 'microscopic' inflammation theory or whatever.>> Stoker does mention that the doc, after colonscopy, thought he > still has inflammation though he was asymptomatic. But the option is to > take Imuran or other meds, which are worse than staying on SCD despite > 'microscopic' inflammation.By far the best option is to take LDN with the SCD. (See previous discussions of that here.)n-- Now available. A fine Christmas gift for cat lovers:Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addictionby n Van Tilwww.wordpowerpublishing.com ; signed copies; free shipping in U.S., reduced shipping elsewhere; free gift wrapping

[Guest guest]

> I go to a crohn's forum (HealingWell.com), and whenever someone brings > up SCD, the moderators pipe in that it only helps your symptoms, and > that the disease continues to do microscopic damage. I would love to > refute them on this!>> Holly> Crohn's> SCD 12/01/08I have a gut feeling (pardon the pun) that that is just not true. But even if it is, there's much to said for being asymtomatic as opposed to being in constant pain or at least discomfort.You might remind them also that conventional medicine almost exclusively treats symptoms and is generally lousy at getting to causes. n> >>>> Was this Stocker? He posts here sometimes and also on his blog. >> This kind of news is discouraging, but I see it as the glass half full, >> as it would be better to have no symptoms on SCD, than symptoms off SCD.>>>> I also have a hard time seeing how someone could have severe disease >> and no symptoms. If anything, maybe SCD decreased the activity of the >> disease somewhat, if not entirely. Some people also decide to do SCD >> with medication as well.>>>> I too would love to hear stories of people with IBD and normal scopes. >> I believe I have seen them posted here.>>>> I have only been on SCD 7 months, so I can not report on this..>> PJ>>>>>>-- Now available. A fine Christmas gift for cat lovers:Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addictionby n Van Tilwww.wordpowerpublishing.com ; signed copies; free shipping in U.S., reduced shipping elsewhere; free gift wrapping

[Guest guest]

> I've never had surgery but that is definitely the direction I was > heading. I was on Prednisone and Asacol for years and it was no longer working as  > well. I think Remicade and surgery was next.>> As far as handling the social aspects I now find it easier. Before I just> never told anyone I had Crohns and often just didn't go out. Now I have > to explain that I have Crohns in order to explain why I can't eat just  > anything - but it's an interesting discussion because of all my progress on the> diet.>> I'm now talking with other people about diet and finding out that they > are experiencing similar food issues. Sometimes is Celiac, other times it's> problems with salt or diabetes, or often it's one food allergy or > another.> Tonight I had a holiday party and one person I was speaking with had > Celiac and his wife was a vegetarian. We don't, as a society, talk about diet  > very often - and we should. Maybe that's a "guy thing"! Women talk about diet all the time. At least the women I associate with do; and I'm one of the women who does, obviously. Not just being on a diet, but what you're eating, what's healthy, what's not, recipes. Etc. n-- Now available. A fine Christmas gift for cat lovers:Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addictionby n Van Tilwww.wordpowerpublishing.com ; signed copies; free shipping in U.S., reduced shipping elsewhere; free gift wrapping

[Guest guest]

Hey Fossil.Color,

For what it's worth, here's the background story:

I thought I was in remission before I got the 'scope as I had no symptoms and my

SED rate was 2 (normal range for males being 0-15) and that's how I

characterized it on my blog.

After the scope the Dr. said it looked like mild Crohn's and the biopsy results

came back as active Crohn's so in light of that new information, I removed

" remission " from my blog and replaced it with " asymptomatic " . I didn't

physically feel any different after the 'scope as compared to before, but wanted

to have absolute clarity for anyone reading my story.

Cheers,

Stocker

http://eatingscd.com

>

> I was reading through an SCD blog that I stumbled upon today, and the person

had been following SCD for 4 years. He ended up getting a scope done, and,

though he had no symptoms and had strictly followed the SCD it showed signs of

active Crohn's. This made me wonder how often this happens.

>

> I'm not doubting that the SCD can help heal your gut, but I wonder how often

it helps heal the symptoms, but there is still active disease. I'm not saying

that can't happen with medications as well, but are there many cases of people

who go med free and SCD and find no signs of active Crohn's or UC when they get

scoped?

>

[Guest guest]

Jill,

That is awesome! Thank you for sharing your story with us. It's always nice to

read inspiring stories like yours that can give the rest of us hope.

Amber

[Guest guest]

Hi ,

I hope you don't mind my posting about your blog. It was just something that

really got me thinking about the possibility for me getting off my medications.

I really appreciate your honesty, and I know that you didn't have a scope

pre-SCD to compare it to, so there is that to take into consideration.

Definitely having no symptoms is better than being symptomatic, and the blood

work results are great too.

I'm not trying to be a downer or doubter, I just have concerns about my own

personal decisions about medication. I also worry, because I've read that it's

chronic inflammation that causes caner. However, I'm on Remicade and

Methotrexate- and those can cause cancer too. I know nothing is a guarantee. I

can be on meds and still have chronic inflammation and get sick. I've never been

a fan of meds, and if I can heal myself through diet, I'm all for it.

I admire your drive to stick with the SCD, and I hope that one day if you ever

have to get scoped again, that your test comes back clean and disease free. I'm

hoping that for me too!

Thanks,

Amber

[Guest guest]

Hi ,

I'm a fan of your blog. What puzzles me is how bad could the scope results have

been without symptoms and a sed rate of 2? The only thing I can come up with is,

yes there was some evidence of Chrons, but what would the results have been

without SCD? - and one will never know because we can't test " you " as a control

as well. I do wonder if this scope was a step in the right direction... that the

next one (hopefully a long way off) will be better. I certainly hope so for

everyone on this board.

PJ

> >

> > I was reading through an SCD blog that I stumbled upon today, and the person

had been following SCD for 4 years. He ended up getting a scope done, and,

though he had no symptoms and had strictly followed the SCD it showed signs of

active Crohn's. This made me wonder how often this happens.

> >

> > I'm not doubting that the SCD can help heal your gut, but I wonder how often

it helps heal the symptoms, but there is still active disease. I'm not saying

that can't happen with medications as well, but are there many cases of people

who go med free and SCD and find no signs of active Crohn's or UC when they get

scoped?

> >

>

[Guest guest]

Great news, Marilyn! Thanks for sharing!

[Guest guest]

The difference is is that the doctor is looking at the surface of the gut, while

the

biopsy tests tissues deeper within the intestines, not on the surface, and the

evidence of Crohn's is still there, but not on the surface of the intestines

which

only showed mild Crohn's. The upshot, at the moment, is that is

asymptomatic as long as he stays on SCD (and whatever drugs he is taking,

if any.)

So he can eat all (or most of) the advanced foods because there is very little

or

no inflammation left on the gut wall,

I don't think this should be discouraging, just a matter of facing reality. For

these

diseases that are written into our DNA, it can be a very long process of getting

rid of all the effects and damage, if ever, especially for people who were

symptomatic

a long time before finding SCD. On the whole, I think the ones who stand

the best chance of permanent remission are the people who turned to SCD very

soon after noticing symptoms, especially if they are young at the time, but not

limited to that certainly. (So you have a good chance, PJ.)

Mara

> Hi ,

> I'm a fan of your blog. What puzzles me is how bad could the scope results

have been without symptoms and a sed rate of 2? The only thing I can come up

with is, yes there was some evidence of Chrons, but what would the results have

been without SCD? - and one will never know because we can't test " you " as a

control as well. I do wonder if this scope was a step in the right direction...

that the next one (hopefully a long way off) will be better. I certainly hope so

for everyone on this board.

>

> PJ

>

>

>>>

>>> I was reading through an SCD blog that I stumbled upon today, and the person

had been following SCD for 4 years. He ended up getting a scope done, and,

though he had no symptoms and had strictly followed the SCD it showed signs of

active Crohn's. This made me wonder how often this happens.

>>>

>>> I'm not doubting that the SCD can help heal your gut, but I wonder how often

it helps heal the symptoms, but there is still active disease. I'm not saying

that can't happen with medications as well, but are there many cases of people

who go med free and SCD and find no signs of active Crohn's or UC when they get

scoped?

>>>

>>

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Seems to me that even in a colonoscopy does show microscopic

inflammation, this is probably HUGE progress. And maybe the next

one will show everything lovely and clear and NO inflammation. And isn't

asymptomatic a great thing on the way?

Well, I tend to think of the options we have: almost none except

trying SCD, irrespective of 'microscopic' inflammation theory or

whatever.

Stoker does mention that the doc, after colonscopy, thought he

still has inflammation though he was asymptomatic. But the option is to

take Imuran or other meds, which are worse than staying on SCD despite

'microscopic' inflammation.

-Andy.

[Guest guest]

After traveling the country and meeting many people (in person) who have been on the SCD for years and also looking at my own experience (3 years med free with no signs of Crohns via CT scan or scope) it is clear to me that the SCD prevents (at least in some people) progression of the disease and even kicks it back into its most benign state. Without SCD we would have fistulas, abscesses, resections, pain, and all other ways that the disease manifests itself.  On the diet we are not only asymptomatic but also do not have to deal with major Crohn's related issues.  It really is a shame that Crohn's sites dismiss the SCD.  I actually stopped visiting them because I saw how easily the SCD was dismissed and that lead me to doubt the value of their other advice.  I really do not understand why some people in the medical and Crohn's community appear so closed minded to the SCD but I am hoping science will prove them wrong one day so that others can benefit from this most healthy solution.Three years ago when I first started with my GI she was "ho hum" about the SCD and now she is the biggest advocate always encouraging me to stay on the diet and introducing me to her residents as "her poster child for alternative medicine."Jill> I go to a crohn's forum (HealingWell.com), and whenever someone brings > up SCD, the moderators pipe in that it only helps your symptoms, and > that the disease continues to do microscopic damage. I would love to > refute them on this!> Hotmail: Powerful Free email with security by Microsoft. Get it now.

[Guest guest]

If I am being too repetitious, forgive me.

Low Dose Naltrexone (LDN) , in addition to being used for

auto-immune disease, is being used for treatment and prevention of cancer. You

might want to research LDN. You would have to get off the immune suppressant

drugs, though, for it to work. www.ldninfo.org

Carol

From:

BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of fossil.color

I'm not trying to be a downer or doubter, I just have

concerns about my own personal decisions about medication. I also worry,

because I've read that it's chronic inflammation that causes caner. However,

I'm on Remicade and Methotrexate- and those can cause cancer too. I know

nothing is a guarantee. I can be on meds and still have chronic inflammation

and get sick. I've never been a fan of meds, and if I can heal myself through

diet, I'm all for it.

[Guest guest]

My wish is that we all may be " poster children " for alternative medicine

PJ

>

>

> After traveling the country and meeting many people (in person) who have been

on the SCD for years and also looking at my own experience (3 years med free

with no signs of Crohns via CT scan or scope) it is clear to me that the SCD

prevents (at least in some people) progression of the disease and even kicks it

back into its most benign state.

> Without SCD we would have fistulas, abscesses, resections, pain, and all other

ways that the disease manifests itself. On the diet we are not only

asymptomatic but also do not have to deal with major Crohn's related issues.

> It really is a shame that Crohn's sites dismiss the SCD. I actually stopped

visiting them because I saw how easily the SCD was dismissed and that lead me to

doubt the value of their other advice. I really do not understand why some

people in the medical and Crohn's community appear so closed minded to the SCD

but I am hoping science will prove them wrong one day so that others can benefit

from this most healthy solution.

> Three years ago when I first started with my GI she was " ho hum " about the SCD

and now she is the biggest advocate always encouraging me to stay on the diet

and introducing me to her residents as " her poster child for alternative

medicine. "

> Jill

>

>

>

> > I go to a crohn's forum (HealingWell.com), and whenever someone brings

> > up SCD, the moderators pipe in that it only helps your symptoms, and

> > that the disease continues to do microscopic damage. I would love to

> > refute them on this!

> >

> _________________________________________________________________

> Hotmail: Powerful Free email with security by Microsoft.

> http://clk.atdmt.com/GBL/go/171222986/direct/01/

>

[Guest guest]

Andy-

I guess I know what you mean and am not a depressed person in general although

this " diagnosis " has defnitely done a number on me!!! I'm trying to stay strong,

the social stuff sucks on this diet especially while everyone stuffs their

mouths with everything and seems perfectly fine...so not fair but I know lifes

not supposed to be fair.

I'm doing well on diet for most part and really hope that this clears up my gut

with no symptoms. I hope that for you too. stay strong, I'm trying...

> > >

> > >

> > > Yup! I have been on SCD for 3 years and was scoped about 4 weeks ago with

the result being absolutely no sign of Crohn's disease. I have never been on

meds for Crohn's and the doctors were stunned as I had a really aggressive flare

in 06 (TPN for 30 days and a resection).

> > > I am also recovering from a major operation (not related to Crohn's) and

the doctors all encouraged me to " keep doing what I am doing and stay on

whatever diet I am on)....

> > > Hope this gives you encouragement.

> > > Jill

> > >

> > > To: BTVC-SCD

> > > From: fossil.color@

> > >

> > >

> > >

> > >

> > > I'm not doubting that the SCD can help heal your gut, but I wonder how

often it helps heal the symptoms, but there is still active disease. I'm not

saying that can't happen with medications as well, but are there many cases of

people who go med free and SCD and find no signs of active Crohn's or UC when

they get scoped?

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > __._,_

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > _________________________________________________________________

> > > Hotmail: Trusted email with powerful SPAM protection.

> > > http://clk.atdmt.com/GBL/go/177141665/direct/01/

> > >

> >

>