Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 Well we are finally close enough I don't think I'll jinx things by posting. We are going to do the muscle biopsy at Children's tomorrow. They will also do a repeat of Will's head MRI, since he's having so many more head related problems. Hopefully something will show up? Will is down to about 15 min of activity before he's wiped out for the day or longer, so we are really hoping that starting the cocktail will help. Our biggest concern is Will's airway right now, it has caused us nothing but problems for the past couple of months, so we're not sure how it's going to do with the intubation and sedation. They say we will be there at least overnight (trying to coordinate some other things for while we are there) and maybe longer. I've set messages to digest and will keep up as well as possible, hope everyone stays happy and healthy, and I'll post with any useful information. J Will 9/7/01 Rush Colorado Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 , our thoughts and prayers will be with Will during this time. I hope he comes through with flying colors and you get the answers you are hoping for! Dawn Quote Link to comment Share on other sites More sharing options...
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