Guest guest Posted July 21, 2004 Report Share Posted July 21, 2004 She asked me to update the list. Karlee had a bad night. She is just very uncomfortable...a lot of jerking and wierd mouth moving (grimacing). Davonne is desperate just to make her comfortable and we talked about trying Neurontin in case it is neuropathic pain. Tomorrow is Davonne's birthday and she is just so worried that Karlee will get her angel wings on that day. I assured her that even if she did, eventually she would be able to see it as a special thing. Davonne is so exhausted but her family and friends are really being supportive and helping out. deb...mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and Bliss age 3 with very very mild Cerebral Palsy. www.LifeofLoveProject.orgwww.HeartLiftersGallery.com Quote Link to comment Share on other sites More sharing options...
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