Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Hi, I haven't been alble to read all of your messages and being new I don't really know any of your stories. I do have a question, does anybody have a child who was not diagnosed until later (10)? My son is just now going through tests because he was in the hospital 2 years ago with encephelitis and they found high levels of lactic acid. thanks Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2004 Report Share Posted July 22, 2004 Welcome to the group. My daughter was diagnosed at one year of age but, it is common for an older child to be diagnosed. There are people in this group who were not dianosed until there 20's. ,Mommy to (9), (7), Bre-Anne (6), Grace (2) and our newest arrival is due Sept. 20thFor the latest baby info, and to see our family check out:www.BabyCountDown.com?baby=4007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2004 Report Share Posted July 22, 2004 the same with us daughter (10) still waiting for the biopsy confirmation, all roads lead to mito. we thought she just had CP ataxia & Nystagmus. now other symptoms are arising. Amy -----Original Message-----From: sweetpea889496 Sent: Monday, July 19, 2004 11:56 AMTo: Mito Subject: new to this siteHi, I haven't been alble to read all of your messages and being new I don't really know any of your stories. I do have a question, does anybody have a child who was not diagnosed until later (10)? My son is just now going through tests because he was in the hospital 2 years ago with encephelitis and they found high levels of lactic acid. thanks DawnPlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2004 Report Share Posted July 22, 2004 Welcome. Your message went through. Post your questions and someone will answer. Geri-Anne and Wyatt, Complex I > Hi, > I haven't been alble to read all of your messages and being new > I don't really know any of your stories. I do have a question, does > anybody have a child who was not diagnosed until later (10)? My son > is just now going through tests because he was in the hospital 2 > years ago with encephelitis and they found high levels of lactic > acid. thanks > Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2004 Report Share Posted July 22, 2004 Mito can start to show up at any point in a person's life. I have a son who had (now that I look back) very small signs such as migraines and lots of susseptability towards illness since he was about 8-9 but really just began being affected more seriously within the last two years and especially so this year at the age of 16. There are no rules with when Mito begins to affect people, but many times a major illness, stress, lack of sleep, or major occurrences in one's life usually preceeds the beginning of worsening. This was the case with my oldest son, and was the same for myself at 20. Welcome to the group and feel free to ask furhter questions. Darla: mommy to Asenath (4), Zipporrah (9 months), Luke (16) and the other 6 kiddos VISIT OUR WEB PAGE AT: caringbridge.org/ia/mitomomof9 > Hi, > I haven't been alble to read all of your messages and being new > I don't really know any of your stories. I do have a question, does > anybody have a child who was not diagnosed until later (10)? My son > is just now going through tests because he was in the hospital 2 > years ago with encephelitis and they found high levels of lactic > acid. thanks > Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2004 Report Share Posted July 22, 2004 My daughter was diagnosed clinically at age 25. Shelby, mother of age 30, mitochondrial encephalopathy > Hi, > I haven't been alble to read all of your messages and being new > I don't really know any of your stories. I do have a question, does > anybody have a child who was not diagnosed until later (10)? My son > is just now going through tests because he was in the hospital 2 > years ago with encephelitis and they found high levels of lactic > acid. thanks > Dawn > > > > > Please contact mito-owner with any problems or > questions. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2004 Report Share Posted July 22, 2004 Hi my name is . I have not been able to be on this list as much as I used to but can check in every now and then. My daughter has had problems since birth but we never got any answers. Finally after her muscle biopsy in Atlanta by Dr. Shoffner Sept 2001 we recieved a diagnosis mito complex 1 & 4. was age 11 when we got her diagnosis. Blessings to all here....know you all are prayed for everyday. Horsley Re: new to this site My daughter was diagnosed clinically at age 25.Shelby, mother of age 30, mitochondrial encephalopathy Hi, I haven't been alble to read all of your messages and being new I don't really know any of your stories. I do have a question, does anybody have a child who was not diagnosed until later (10)? My son is just now going through tests because he was in the hospital 2 years ago with encephelitis and they found high levels of lactic acid. thanks DawnPlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
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