Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 Hello my name is Missy and my son was recently diagnosed with MNGIE, I am looking for support in this matter as this is all new to us. is 13 years old and TPN dependant and currently has a lot of medical issues that now we can relate to the MITO disorder. I am looking foreward to meeting new people and to gain as much knowledge as possible about this disorder. Thanks, missy mom to jeremy www.caringbridge.org/co/jeremy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2004 Report Share Posted July 22, 2004 Welcome to the group. I am sure you will find out that this group is a great source of information and support. ,Mommy to (9), (7), Bre-Anne (6), Grace (2) and our newest arrival is due Sept. 20thFor the latest baby info, and to see our family check out:www.BabyCountDown.com?baby=4007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2004 Report Share Posted July 22, 2004 Welcome to the group. There is a lot of knowledgable people here. Post your questions and some one will respond. Geri-Anne and Wyatt, Complex I- -- In Mito , Miswillis68@a... wrote: > Hello my name is Missy and my son was recently diagnosed with MNGIE, I > am looking for support in this matter as this is all new to us. is 13 > years old and TPN dependant and currently has a lot of medical issues that now > we can relate to the MITO disorder. > > I am looking foreward to meeting new people and to gain as much knowledge as > possible about this disorder. > > Thanks, missy mom to jeremy > www.caringbridge.org/co/jeremy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2004 Report Share Posted July 22, 2004 (((Missy))) Just wanted to welcome you to the group! So glad you joined! Say hi to for me. I'm praying for him as always. Cindy Cruz (Seth and Ben's mom) Quote Link to comment Share on other sites More sharing options...
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