Guest guest Posted July 22, 2004 Report Share Posted July 22, 2004 Geri-Anne, Thanks for asking about Audrey. She will soon be three, I can hardly believe it, especially since the Docs never thought she would see 2!!!!!!!!!Goes to show what the power of prayer will do. For now Audrey is doing OK. She has seizures daily and is very weak but she is still able to give me her most wonderful smile. She is having problems with temperature regulation, one minute her temp will be 96 and within a very short time it will be 101. Her Ped doesn't quite know what to think other than to say he thinks she has a virus. I wonder if all the seizures have done something to her internal temperature regulator. I know I have taken care of Cancer patients and that happens to them sometimes. Sorry I haven't been posting much lately, but I read everyday and my prayers are with each and every one of you. Sometimes I just have to take a break from things. My husband and I have just bought two motorcycles and are going to try to get away for a few days. Amie isn't real happy with us right now for buying these but we felt it was something we needed to do now and not wait. I want everyone to know how much you all mean to me and that I think of you all daily. This disease is never out of my mind. You are a great group of people and I don't know what I would do without all of you. Take care all of you, and thank you for asking about my precious Audrey, Kathy, grandma to Audrey, 35 mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2004 Report Share Posted July 22, 2004 I've been wondering about you. How is Audrey doing? Geri-Anne and Wyatt, complex I > GeriAnne, > > Please let Davonne know that there are many prayers being said for Karlee > and their entire family. > > Kathy, Grandma to Audrey, 35 mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2004 Report Share Posted July 23, 2004 Zipporrah seems to have temperature regulation issues as well. I haven't really taken the time to take her temp regularly but when feeling her head she seems to go up and down throughout the day. This has been going on for the past several months. I assumed it was part of her disautonomia. Darla: mommy to Asenath, Zipporrah, Luke, and the other 6 kiddos > Geri-Anne, > > Thanks for asking about Audrey. She will soon be three, I can hardly > believe it, especially since the Docs never thought she would see 2!!!!!!!!!Goes to > show what the power of prayer will do. For now Audrey is doing OK. She has > seizures daily and is very weak but she is still able to give me her most > wonderful smile. She is having problems with temperature regulation, one > minute her temp will be 96 and within a very short time it will be 101. Her Ped > doesn't quite know what to think other than to say he thinks she has a virus. > I wonder if all the seizures have done something to her internal temperature > regulator. I know I have taken care of Cancer patients and that happens to > them sometimes. > > Sorry I haven't been posting much lately, but I read everyday and my prayers > are with each and every one of you. Sometimes I just have to take a break > from things. My husband and I have just bought two motorcycles and are going > to try to get away for a few days. Amie isn't real happy with us right now > for buying these but we felt it was something we needed to do now and not > wait. > > I want everyone to know how much you all mean to me and that I think of you > all daily. This disease is never out of my mind. You are a great group of > people and I don't know what I would do without all of you. > > Take care all of you, and thank you for asking about my precious Audrey, > Kathy, grandma to Audrey, 35 mos Quote Link to comment Share on other sites More sharing options...
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