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UPDATE ON KARLEE

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hi everyone.

this is the first time in a week or so that i sat down and looked at

the list, i have mailed some of ya'll, but not read any posts. i am

sitting here just in awe of all the prayers,love, and words of

support that you have sent to karlee,me,and my wonderful family. you

ALL are so great!!! i cant help but cry. this has been so hard for

us. last thursday her doc and hospice nurse told us 24-48 hours and

look a week later she is still fighting and not ready to go yet. the

way karlee has done is just amazing. we think she is gone because she

has stopped breathing for 5minutes and i will put my head down to her

sweet little mouth and she takes this HUGE! gasp of air. how can a

baby do this? we just cant understand. i know her doc is very very

baffeled by the whole situation.

she is not had any pedialite through her g-tube since wed . we dont

hear any bowels

sounds,but we are flushing her meds with pedialite then water. she

had 2 wet diapers yesterday. her heart rate goes way way up and then

way way down, then back normal. she is sometimes bubbily,sounds like

she is drowning, we suction,its gone, then back. they put he on

amitripriline wed nite and i think it has helped so far. i dont want

to brag to much. she slept all nite last nite, but i still had to get

up and give morphine every 2hrs and valium every 4. i am tired, but i

am not going to complain about it. i have took naps with her during

the day, i cant sleep to good at nite.

i have accepted that she is not going to he with me forever, but it

is still so very hard. i feel so helpless. all i can do is hold her

tight and love her so much. and that is exactly what i am doing.

my husband is doing ok, karson is ok and kailtin my 8year old is a

trooper, she is so strong and a blessing to me.

sorry this long, but i just wanted you all to know how much i

appreciate all the sweet messages that have been sent my way. geri-

ann,deb,and kim have let me known ya'll were thinking and praying for

us. please continue to remember us. i feel like it is going to get

alot harder and worse. kip bought me a digital camera for my birthday

and i will try to send a new pic of karlee beth in the photo section.

love you all!!!!

davonne

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Your family is in our prayers. Karlee is blessed to have a strong and loving mom like you.

Kathy

UPDATE ON KARLEE

hi everyone.this is the first time in a week or so that i sat down and looked at the list, i have mailed some of ya'll, but not read any posts. i am sitting here just in awe of all the prayers,love, and words of support that you have sent to karlee,me,and my wonderful family. you ALL are so great!!! i cant help but cry. this has been so hard for us. last thursday her doc and hospice nurse told us 24-48 hours and look a week later she is still fighting and not ready to go yet. the way karlee has done is just amazing. we think she is gone because she has stopped breathing for 5minutes and i will put my head down to her sweet little mouth and she takes this HUGE! gasp of air. how can a baby do this? we just cant understand. i know her doc is very very baffeled by the whole situation. she is not had any pedialite through her g-tube since wed . we dont hear any bowels sounds,but we are flushing her meds with pedialite then water. she had 2 wet diapers yesterday. her heart rate goes way way up and then way way down, then back normal. she is sometimes bubbily,sounds like she is drowning, we suction,its gone, then back. they put he on amitripriline wed nite and i think it has helped so far. i dont want to brag to much. she slept all nite last nite, but i still had to get up and give morphine every 2hrs and valium every 4. i am tired, but i am not going to complain about it. i have took naps with her during the day, i cant sleep to good at nite. i have accepted that she is not going to he with me forever, but it is still so very hard. i feel so helpless. all i can do is hold her tight and love her so much. and that is exactly what i am doing.my husband is doing ok, karson is ok and kailtin my 8year old is a trooper, she is so strong and a blessing to me.sorry this long, but i just wanted you all to know how much i appreciate all the sweet messages that have been sent my way. geri-ann,deb,and kim have let me known ya'll were thinking and praying for us. please continue to remember us. i feel like it is going to get alot harder and worse. kip bought me a digital camera for my birthday and i will try to send a new pic of karlee beth in the photo section.love you all!!!!davonne Please contact mito-owner with any problems or questions.

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May God grant you tons of strength for the days that lie ahead

and rest. We will continue to send prayers heavenwards for Karlee

and your entire family.

Darla: mommy to Asenath, Zipporrah, Luke, and the 6 other kiddos

>

>

> hi everyone.

>

> this is the first time in a week or so that i sat down and looked

at

> the list, i have mailed some of ya'll, but not read any posts. i am

> sitting here just in awe of all the prayers,love, and words of

> support that you have sent to karlee,me,and my wonderful family.

you

> ALL are so great!!! i cant help but cry. this has been so hard for

> us. last thursday her doc and hospice nurse told us 24-48 hours and

> look a week later she is still fighting and not ready to go yet.

the

> way karlee has done is just amazing. we think she is gone because

she

> has stopped breathing for 5minutes and i will put my head down to

her

> sweet little mouth and she takes this HUGE! gasp of air. how can a

> baby do this? we just cant understand. i know her doc is very very

> baffeled by the whole situation.

> she is not had any pedialite through her g-tube since wed . we dont

> hear any bowels

> sounds,but we are flushing her meds with pedialite then water. she

> had 2 wet diapers yesterday. her heart rate goes way way up and

then

> way way down, then back normal. she is sometimes bubbily,sounds

like

> she is drowning, we suction,its gone, then back. they put he on

> amitripriline wed nite and i think it has helped so far. i dont

want

> to brag to much. she slept all nite last nite, but i still had to

get

> up and give morphine every 2hrs and valium every 4. i am tired, but

i

> am not going to complain about it. i have took naps with her during

> the day, i cant sleep to good at nite.

> i have accepted that she is not going to he with me forever, but it

> is still so very hard. i feel so helpless. all i can do is hold her

> tight and love her so much. and that is exactly what i am doing.

> my husband is doing ok, karson is ok and kailtin my 8year old is a

> trooper, she is so strong and a blessing to me.

>

> sorry this long, but i just wanted you all to know how much i

> appreciate all the sweet messages that have been sent my way. geri-

> ann,deb,and kim have let me known ya'll were thinking and praying

for

> us. please continue to remember us. i feel like it is going to get

> alot harder and worse. kip bought me a digital camera for my

birthday

> and i will try to send a new pic of karlee beth in the photo

section.

>

> love you all!!!!

>

> davonne

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