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Teresea:

I have had that same surgery on my eyes my pressure was 96, then they operated opened them up and I went into shock and started to throw up, It was all horrible. I wonder if there is a sarc connection.

MAry M

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Hi , I really do think there is a connection, as today I'm as sick as I've been in a long time. I'm not hurting per say, but I"m aching all over, and I feel like I've been hit by a truck.. I'm also having myoclonic jerks, which to me is unbearable.. I hate that and every time that's happened, I've had to go to the emergency room..and they certainly don't know what's going on, and they don't like to take suggestions..but if I'm no better tomorrow, I'll go to the er and get some IV fluids which will help some.. and they call and get some balls rolling, just hope its the right ones..lol Take care of yourself tomorrow..Hope to hear from you soon.. I do need to know, though How do they diagnosis Cardiac Sarcoidsis?I'm having some strong palapatations up in my neck,they feel irregular at times mostly when I'm busy doing something... any suggestions?

Hugs,

-- teresea

Teresea:

I have had that same surgery on my eyes my pressure was 96, then they operated opened them up and I went into shock and started to throw up, It was all horrible. I wonder if there is a sarc connection.

MAry M

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Hi ,I'm not trying to butt in but any sarcoid pt with any type of heart irregularities should be checked out for cardiac sarcoid. For me it was a thallium cardiac stress test that showed a "patchy uptake" during exercise and even more significantly during rest (showed inflammation in my heart muscle). Also, had a PDS 30 day heart monitor and when was trying to decrease my pred (only by 2.5mg) I went into A-fib and had other arrythmias. My doctor at s Hopkins said those things alone were indicative of cardiac sarcoid. I have read a lot of info about cardiac involvement and there are many more sarcoid pts with heart sarcoid than was ever believed. But, you just went through a lot with this procedure so it could be that your body is ultra stressed right now and that is bringing on these feelings that you're having. I know that when I get really tired, etc., I have skips. But DO get this checked out. You're in my prayers.Blessings,Becky

wrote: Hi , I really do think there is a connection, as today I'm as sick as I've been in a long time. I'm not hurting per say, but I"m aching all over, and I feel like I've been hit by a truck.. I'm also having myoclonic jerks,

which to me is unbearable.. I hate that and every time that's happened, I've had to go to the emergency room..and they certainly don't know what's going on, and they don't like to take suggestions..but if I'm no better tomorrow, I'll go to the er and get some IV fluids which will help some.. and they call and get some balls rolling, just hope its the right ones..lol Take care of yourself tomorrow..Hope to hear from you soon.. I do need to know, though How do they diagnosis Cardiac Sarcoidsis?I'm having some strong palapatations up in my neck,they feel irregular at times mostly when I'm busy doing something... any suggestions? Hugs, -- teresea Teresea: I have had that same surgery on my eyes my pressure was 96, then they operated opened them up and I went into shock and started to throw up, It was all horrible. I wonder if there is a sarc connection. MAry M

Everyone is raving about the all-new Yahoo! Mail beta.

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Thanks Becky, I appreciate your help!!!

-- teresea

Teresea:

I have had that same surgery on my eyes my pressure was 96, then they operated opened them up and I went into shock and started to throw up, It was all horrible. I wonder if there is a sarc connection.

MAry M

Everyone is raving about the all-new Yahoo! Mail beta.

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