SCD was the only thing that worked until I opted out.

[Guest guest]

I must agree with many things here but one.The SCD kept me out of the hospital for over a year as my UC kept flaring. I did the SCD strictly and it worked better than my prednisone, remicade and LDN. But after a year things continued to spiral downward and I couldn't get out of bed by October. I never could taper off prednisone and it was making me into a hardcore diabetic. I opted for surgery and am not looking back. No more drugs! I blogged about the whole thing here:a second chance Best of luck to you and thanks to those of you who answered my many questions in the past,> >> > > I'm starting to feel like getting Ulcerative Colitis was the BEST > > > thing to ever happen to me and not the worst like I originally > > > thought. It's given me such a brouder outlook on life in general not > > > to mention what I put into my body. Even if they come out with a > > > cure for UC by taking one simple pill... I doubt I would do it and > > > even if I would there is 100% chance I would stay on this diet > > > anyway. Such a great way of keeping your whole body ready for > > > anything!> > >> > >> > > If you're getting discouraged by the diet and how insanely hard it > > > is, maybe the hardest things in life reap the greatest rewards. Not > > > everyone is capable of following this diet, so prove you can do it > > > and stick with i> > > > > > Amen!> > > > Peace =)> > Alyssa 15 yo> > UC April 2008, dx Sept 2008> > SCD June 2009 (restarted)> > No meds!> >>

[Guest guest]

At 08:25 PM 12/17/2009, you wrote:

I must agree with many things

here but one.

I can't disagree that for some people, surgery becomes necessary. Elaine

Gottschall never said any one who needed it was a failure.

But I will say that you can prevent further issues with your ostomy by

sticking with SCD. Your body doesn't tolerate non-SCD foods. Removing the

organ most affected by it will help in the short term. What you eat will

help in the long-term.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

I don't think Ulcerative Colitis is the same thing for everyone. It's like Autism... such a broad range of symptoms that it could be 5, 10, 15, ect. ilnesses all luimped into one diagnosis.For example I just read an article (i'll post it if you want) about a man who was diagnosed with Ulcerative Colitis and YEARS later he was "cured" once he found out he had an allergy to wheat. Scd would have "cured" him from the start, but not everyone diagnosed with Ulcerative Colitis has an unknown wheat allergy. -UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a dayTo: BTVC-SCD From: LouisianaSCDLagniappe@...Date: Thu, 17 Dec 2009 20:47:15 -0600Subject: Re: SCD was the only thing that worked until I opted out.

At 08:25 PM 12/17/2009, you wrote:

I must agree with many things

here but one.

I can't disagree that for some people, surgery becomes necessary. Elaine

Gottschall never said any one who needed it was a failure.

But I will say that you can prevent further issues with your ostomy by

sticking with SCD. Your body doesn't tolerate non-SCD foods. Removing the

organ most affected by it will help in the short term. What you eat will

help in the long-term.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Hotmail: Trusted email with Microsoft’s powerful SPAM protection. Sign up now.

[Guest guest]

"What you eat will help in the long term...".

The above saying is very very true, not only for UC , but also for all the gastrointestinal diseases starting from gastritis and GERD.

I know it is frustrating at times, but pls do not give up.

Sandhya

I must agree with many things here but one.I can't disagree that for some people, surgery becomes necessary. Elaine Gottschall never said any one who needed it was a failure.But I will say that you can prevent further issues with your ostomy by sticking with SCD. Your body doesn't tolerate non-SCD foods. Removing the organ most affected by it will help in the short term. What you eat will help in the long-term.

— Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund

[Guest guest]

Is wheat allergy the same as celiac?  I think that may happen more than we think (check different Crohn's forums) for changed dx.  I was originally dx with Crohns Colitis then Crohn's and I think with the new doctor since he switched the medicine--we are back to CC.  I'd like a true test for celiac but no point now...

 

It is a large spectrum of symptoms but by biopsy, blood tests, etc. I think they are pretty well narrowing it down.  At least that's what they say.  It's kind of hard because everyone knows someone who 'does just fine' so what's up with you? type of thinking.  ;-).

 

Debbie 40 cd

 

I don't think Ulcerative Colitis is the same thing for everyone. It's like Autism... such a broad range of symptoms that it could be 5, 10, 15, ect. ilnesses all luimped into one diagnosis.For example I just read an article (i'll post it if you want) about a man who was diagnosed with Ulcerative Colitis and YEARS later he was " cured " once he found out he had an allergy to wheat. 

Scd would have " cured " him from the start, but not everyone diagnosed with Ulcerative Colitis has an unknown wheat allergy. -UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.

Asacol - 5 pills a day

To: BTVC-SCD From: LouisianaSCDLagniappe@...Date: Thu, 17 Dec 2009 20:47:15 -0600

Subject: Re: SCD was the only thing that worked until I opted out. 

At 08:25 PM 12/17/2009, you wrote:

I must agree with many things here but one.I can't disagree that for some people, surgery becomes necessary. Elaine Gottschall never said any one who needed it was a failure.But I will say that you can prevent further issues with your ostomy by sticking with SCD. Your body doesn't tolerate non-SCD foods. Removing the organ most affected by it will help in the short term. What you eat will help in the long-term. — Marilyn    New Orleans, Louisiana, USA    Undiagnosed IBS since 1976, SCD since 2001

    Darn Good SCD Cook    No Human Children    Shadow & Sunny Longhair Dachshund        

Hotmail: Trusted email with Microsoft’s powerful SPAM protection. Sign up now.

[Guest guest]

I think sticking with SCD afterwards is a fantastic idea but if you decide to do

it, be careful. A friend of mine was SCD for a long time before she eventually

ended up needing surgery (CD). She found that she couldn't do SCD after (even

though she wanted to) because she'd end up getting sick constantly. I don't

really have more details than that because I'm still getting to know her. I

know that she still does stuff like make almond bread but she's just not able to

eat completely SCD. I suspect that it has something to do with the change in

her digestive system (shortening it?) and that she might be able to go back

fully if she focused on more digestible foods but...yeah, I just wanted to

suggest starting back from intro again if you decide to stick to SCD just to be

careful.

Stacey

>

> But I will say that you can prevent further

> issues with your ostomy by sticking with SCD.

> Your body doesn't tolerate non-SCD foods.

> Removing the organ most affected by it will help

> in the short term. What you eat will help in the long-term.

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

>