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Hi all, I have been reading from you all daily and your words have encouraged me. I haven't really chatted due to chat time issues. I am going for my hearing this month or possibly in February. I am really scared becasue I have been turned down twice and this will be my hearing. I really hope that I will be able to convince all that this condition affects me daily and that I am really in need of some help. Please say a prayer for me and i will keep reading from you daily. Stay encouraged all. Hopefully one day there will be a cure. Shauna in Atlanta

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Hi Shauna,You will be in my thoughts and prayers. No one can understand "sarcoid gone bad" unless they have been through it, especially disability beaurocrats. They are there to make sure no one or at least few and far between gets through. But from what I have heard (a friend has SS disabilty) once you make it to a judge it's better for your chances b/c he/she will hopefully realistically look at your problems. Sometimes (again I was told this) once SS knows you're going before a judge, in some instances, they might go ahead and approve your SS. Some states are harder also to get disability. There are wonderful people on this site who I'm sure can tell you their stories and approval/disapproval of disability. Anyway, best of luck to you. Hang in there. Blessings,BeckyShauna Glaspie wrote: Hi all, I have been reading from you all daily and your words have encouraged me. I haven't really chatted due to chat time issues. I am going for my hearing this month or possibly in February. I am really scared becasue I have been turned down twice and this will be my hearing. I really hope that I will be able to convince all that this condition affects me daily and that I am really in need of some help. Please say a prayer for me and i will keep reading from you daily. Stay encouraged all. Hopefully one day there will be a cure. Shauna in Atlanta Need a

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Hi Shauna, I was VERY nervous about social security too. It really needed to be part of the necessary income of the household. I was turned down once before and was scheduled to go for a hearing in front of a judge. I was advised by a lot of people to get a lawyer that specialized in disability . Even if he took a certain percentage of the awards, it would be worth it. I am so glad that I listened to this advice. This lawyer went right to bat for me. I didn't even have to go BEFORE a judge . I only met with the lawyer once. He did all the paperwork, running around and met with the judge. He got it approved right away even before the hearing date. So I advise you if you don't have a lawyer already, to find one that specializes in social security disability cases. It will relieve a lot of stress on your part, too. You don't need all that stress right

now. You and I know how it affects our bodies and how much pain and discomfort we are in. Keep in touch . There are plenty of people here that can relate to your situation and help you out as well. Most of them were at this point at one time or another. We are here for questions and other support also. I am glad we have encouraged you. I will be praying for you as to having a successful hearing. Good luck.Debbie T.Co-Moderator Shauna Glaspie wrote: Hi all, I have been reading from you all daily and your words have encouraged me. I haven't really chatted due to chat time issues. I am going for my hearing this month or possibly in February. I am really scared

becasue I have been turned down twice and this will be my hearing. I really hope that I will be able to convince all that this condition affects me daily and that I am really in need of some help. Please say a prayer for me and i will keep reading from you daily. Stay encouraged all. Hopefully one day there will be a cure. Shauna in Atlanta Need a quick answer? Get one in minutes from people who know. Ask your question on Yahoo! Answers.

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Thanks for all the help. I tried to get a lawyer last year but was

told since with prednisone I am able to function that I probably

wouldn't win. He suggested that I fight it myself and just present

all my doctors notes and letters from people that know how this

affects me. I am hoping for the best with this hearing because I am

not able to afford basic medical care that I need due to not

insurance and barely working. My symptoms have come back once I get

of prednisone so I am off about 2 to 3 months and then I have to be

put back on. I really hope that I am able to convince them that I

am unable to work substantially. I have been trying to do temp

position but found that I am extremely exhausted and symptoms flare

back up. All prednisone has done is mask my symptoms. But it does

temporarily stop the pain. That is about all I can afford at the

moment that helps but I know that it is causing long term damage.

Thanks for responding and I will keep trying to win this thing.

Shauna in Atlanta

Hi all,

> I have been reading from you all daily and your words have

encouraged me. I haven't really chatted due to chat time issues. I

am going for my hearing this month or possibly in February. I am

really scared becasue I have been turned down twice and this will be

my hearing. I really hope that I will be able to convince all that

this condition affects me daily and that I am really in need of some

help. Please say a prayer for me and i will keep reading from you

daily. Stay encouraged all. Hopefully one day there will be a cure.

>

> Shauna in Atlanta

>

>

> ---------------------------------

> Need a quick answer? Get one in minutes from people who know. Ask

your question on Yahoo! Answers.

>

>

> ---------------------------------

> Everyone is raving about the all-new Yahoo! Mail beta.

>

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Hi shauna,

Many of us have gone thru the SSDI process. I've written many articles on this subject, and if you search the ARCHIVES with SSDI and Disabilty you'll find many of them.

The main thing is to have documentation (letters from a couple of friends, or ex-employers) that state that the level you were able to work at is no longer what you are able to do now.

My letters from a couple of people that worked with me and saw how compentent and able I was at multi-tasking, problem solving, explaining situations to others-- all wrote stating that I can no longer do any of those things.

My short-term memory is lost-- I could no longer recall what my clients were calling about, and so explaining their bills, or figuring out why their phones weren't working was no longer possible. I lost the ability to handle the home finances, and even making brownies from a box mix was impossible.

It's important to state what it is that you can no longer do. If you have only the energy to get up and get your shower, then take a nap-- tell them that. If you've found the milk in the pantry, and the cereal in the refrigerator -- tell them that.

If you find that going to the mall leaves you lost and unable to remember where you've parked-- tell them that. If you have lost the ability to do the laundry, or fix meals, or read and comprehend the newspaper-- tell them that.

One of my closest friends explained that when we worked together, I held the office together, and filled in all the spots if someone did not show up for work. Now, it's like talking with someone that has early Alzheimers when she and I discuss anything.

If you need oxygen or a walker, or a wheelchair to get around-- state that.

You should have all the medical documentation to support these complaints-- and if they've not done neuropsych testing-- then that could be a option if they were to still deny you. (I don't think they will.)

There are a tremendous amount of letters and articles in both ARCHIVES and in LINKS-- that you can print out and share with your MD's and with your Attorney that explain NS in detail. Feel free to use what is available. (Scroll down to the bottom of this and every email and you should see the section that gives the site address for LINKS and ARCHIVES. )

Take care, and know that you are among friends, going thru the same challenges.

Blessings,

Tracie

NS Co-owner/moderator

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