Guest guest Posted July 23, 2004 Report Share Posted July 23, 2004 Hi all, We finally made it home, after having to go right back to hospital. Long story, but the biopsy is done along with the head MRI. If there was something that shouldn't be done with a child, even just suspected of having Mito, it is what was done to Will. We were finally so fed up that even though we knew we shouldn't we let them kick us out at 11:30 pm Wed night, and just called our Dr the next morning. We were sent right back to the hospital and were released again this morning. Will still is really out of it, and seems to be in a lot of pain, but he is better than yesterday so I guess we are ok. We have already heard that the MRI was normal, so at least that is some good news. Now we just start the long wait for biopsy results. I think there was some discussion about Propofol a few months back, but I can't find it in the archives, if anyone remembers or has any of the posts I would appreciate it. We are not sure if that was part of the problem, but want to make sure we get all the info we can to avoid this next time Thank you for thinking of us J Will 9/7/01 Colorado Quote Link to comment Share on other sites More sharing options...
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