Guest guest Posted July 23, 2004 Report Share Posted July 23, 2004 We are so delighted to announce that Gaby has recently celebrated her 9th birthday! She remains " well " despite her multiple medical and physical problems. She has made it through winter so far without illness which is a first (hopefully I am not speaking too soon) Gaby's seizures remain well controlled with the ketogenic diet. She has recovered well from her hip surgery last year, and is tolerating wearing her back brace for her scoliosis. She has learnt more songs, but still doesn't speak. My husband has wired her headphones and discman to the wheelchair head piece, so she can have mobile music! This helps with her yelling, which we feel is most likeley frustration. Gaby had a new g tube placed recently. Each time we replace it, we wonder if it will be the last..now I just plan ahead! She loves her school. Gaby had a party this year for the first time ever, with her friends from school. It was a lovely time, and I'm so glad we arranged this for her. We soemtimes forget how fragile her life is, particularly when she has long periods of wellness. But for now, we enjoy, and we are grateful ne, mum to Gaby, now 9!! PDH, microcephaly,seizures, g tube, non talker, great singer, wheelchair bound, fast crawler, and happiest little girl, Australia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2004 Report Share Posted July 24, 2004 Have a great birthday Gaby! ,Mommy to (9), (7), Bre-Anne (6), Grace (2) and our newest arrival is due Sept. 20thFor the latest baby info, and to see our family check out:www.BabyCountDown.com?baby=4007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2004 Report Share Posted July 24, 2004 HAPPY BIRTHDAY GABY! What an awesome e-mail full of great news. It's so nice to get these inspirational e-mails! Kim - Mom to and Lindsey > > We are so delighted to announce that Gaby has recently celebrated her > 9th > birthday! She remains " well " despite her multiple medical and physical > problems. She has made it through winter so far without illness which is a > first (hopefully I am not speaking too soon) > Gaby's seizures remain well controlled with the ketogenic diet. She has > recovered well from her hip surgery last year, and is tolerating wearing her > back brace for her scoliosis. She has learnt more songs, but still doesn't > speak. My husband has wired her headphones and discman to the wheelchair > head piece, so she can have mobile music! This helps with her yelling, which > we feel is most likeley frustration. > Gaby had a new g tube placed recently. Each time we replace it, we > wonder > if it will be the last..now I just plan ahead! > She loves her school. Gaby had a party this year for the first time > ever, > with her friends from school. It was a lovely time, and I'm so glad we > arranged this for her. > > We soemtimes forget how fragile her life is, particularly when she has > long > periods of wellness. But for now, we enjoy, and we are grateful > > ne, > mum to Gaby, now 9!! PDH, microcephaly,seizures, g tube, non talker, > great > singer, wheelchair bound, fast crawler, and happiest little girl, Australia > > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2004 Report Share Posted July 24, 2004 How exciting, Happy Birthday Gaby!!! Geri-Anne and Wyatt, complex I > > We are so delighted to announce that Gaby has recently celebrated her 9th > birthday! She remains " well " despite her multiple medical and physical > problems. She has made it through winter so far without illness which is a > first (hopefully I am not speaking too soon) > Gaby's seizures remain well controlled with the ketogenic diet. She has > recovered well from her hip surgery last year, and is tolerating wearing her > back brace for her scoliosis. She has learnt more songs, but still doesn't > speak. My husband has wired her headphones and discman to the wheelchair > head piece, so she can have mobile music! This helps with her yelling, which > we feel is most likeley frustration. > Gaby had a new g tube placed recently. Each time we replace it, we wonder > if it will be the last..now I just plan ahead! > She loves her school. Gaby had a party this year for the first time ever, > with her friends from school. It was a lovely time, and I'm so glad we > arranged this for her. > > We soemtimes forget how fragile her life is, particularly when she has long > periods of wellness. But for now, we enjoy, and we are grateful > > ne, > mum to Gaby, now 9!! PDH, microcephaly,seizures, g tube, non talker, great > singer, wheelchair bound, fast crawler, and happiest little girl, Australia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2004 Report Share Posted July 24, 2004 HAPPY BIRTHDAY GABY. May you have many many more healthy seasons ahead. May God bless you, dear child. Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.Samya.org Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 Gaby is 9! We are so delighted to announce that Gaby has recently celebrated her 9th birthday! She remains " well " despite her multiple medical and physical problems. She has made it through winter so far without illness which is a first (hopefully I am not speaking too soon) Gaby's seizures remain well controlled with the ketogenic diet. She has recovered well from her hip surgery last year, and is tolerating wearing her back brace for her scoliosis. She has learnt more songs, but still doesn't speak. My husband has wired her headphones and discman to the wheelchair head piece, so she can have mobile music! This helps with her yelling, which we feel is most likeley frustration. Gaby had a new g tube placed recently. Each time we replace it, we wonder if it will be the last..now I just plan ahead! She loves her school. Gaby had a party this year for the first time ever, with her friends from school. It was a lovely time, and I'm so glad we arranged this for her. We soemtimes forget how fragile her life is, particularly when she has long periods of wellness. But for now, we enjoy, and we are grateful ne, mum to Gaby, now 9!! PDH, microcephaly,seizures, g tube, non talker, great singer, wheelchair bound, fast crawler, and happiest little girl, Australia Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2004 Report Share Posted July 24, 2004 Congratulations on celebrating the 9th Birthday! I know how important each b-day really is for our kids! Hope she had a great day! Darla > > We are so delighted to announce that Gaby has recently celebrated her 9th > birthday! She remains " well " despite her multiple medical and physical > problems. She has made it through winter so far without illness which is a > first (hopefully I am not speaking too soon) > Gaby's seizures remain well controlled with the ketogenic diet. She has > recovered well from her hip surgery last year, and is tolerating wearing her > back brace for her scoliosis. She has learnt more songs, but still doesn't > speak. My husband has wired her headphones and discman to the wheelchair > head piece, so she can have mobile music! This helps with her yelling, which > we feel is most likeley frustration. > Gaby had a new g tube placed recently. Each time we replace it, we wonder > if it will be the last..now I just plan ahead! > She loves her school. Gaby had a party this year for the first time ever, > with her friends from school. It was a lovely time, and I'm so glad we > arranged this for her. > > We soemtimes forget how fragile her life is, particularly when she has long > periods of wellness. But for now, we enjoy, and we are grateful > > ne, > mum to Gaby, now 9!! PDH, microcephaly,seizures, g tube, non talker, great > singer, wheelchair bound, fast crawler, and happiest little girl, Australia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2004 Report Share Posted July 24, 2004 HAPPY BIRTHDAY GABY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! WE ARE SO PROUD OF YOU!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! CONGRATULATIONS TO ALL OF YOU GOD BLESS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! JENNIE MITO MOM OF LOGANTony & ne Lavender wrote: We are so delighted to announce that Gaby has recently celebrated her 9thbirthday! She remains "well" despite her multiple medical and physicalproblems. She has made it through winter so far without illness which is afirst (hopefully I am not speaking too soon) Gaby's seizures remain well controlled with the ketogenic diet. She hasrecovered well from her hip surgery last year, and is tolerating wearing herback brace for her scoliosis. She has learnt more songs, but still doesn'tspeak. My husband has wired her headphones and discman to the wheelchairhead piece, so she can have mobile music! This helps with her yelling, whichwe feel is most likeley frustration. Gaby had a new g tube placed recently. Each time we replace it, we wonderif it will be the last..now I just plan ahead! She loves her school. Gaby had a party this year for the first time ever,with her friends from school. It was a lovely time, and I'm so glad wearranged this for her. We soemtimes forget how fragile her life is, particularly when she has longperiods of wellness. But for now, we enjoy, and we are gratefulne, mum to Gaby, now 9!! PDH, microcephaly,seizures, g tube, non talker, greatsinger, wheelchair bound, fast crawler, and happiest little girl, AustraliaPlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
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