Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 I'm Catholic, and for Catholics we need to take part in communion every week. For those of you who don't know, communion consists of eating a host- unleavened bread that is about the size of a quarter. It is considered a sin if we don't partake in this ritual Hi Amber, Have been a Catholic all my life and have never heard that not receiving Communion is a sin. However, my son who is following SCD has received Communion every week and has never had a problem. Posted by : Elaine addresses that issue several times in messages to the Long Island list.The gist of those messages were:* Try to get the priest to use SCD legal hosts;* If the symptoms have cleared up, then a host for communion shouldn'tcause any adverse affects, if one is otherwise extremely strict inadhering to the SCD diet;* If the symptoms have not cleared up, then hosts probably should beavoided. (Attend mass, just don't partake of communion.);In all cases discuss the issue with your priest. Posted by Gay: KATE COMMUNION CRACKERS 350* oven ½ cup of cooked cauliflower, drained 2 cups bean paste (soaked over night, rinsed, cooked, and mashed) ( how to make, see MAIN DISHES-CHILI) ¼ cup Parmesan cheese, grated ½ teaspoon baking soda pinch of salt, add after beans are soft 2 eggs butter or coconut oil Combine all ingredients, except butter, in a blender or food processor. Blend until very, very smooth. Butter the baking stones then spread the batter very thinly on the baking stones. Bake on baking stone(s) for 8 minutes, then cut into squares using a pizza cutter. Turn crackers over and bake another 6 minutes or until crisp. Remove from oven and allow to cool on a wire rack. Store the crackers in airtight tins or plastic bags. Permission by Janette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 Sigh, I'm already starting to feel discouraged, but I'm not giving up. I do need some advice though and input please. 1. I'm Catholic, and for Catholics we need to take part in communion every week. For those of you who don't know, communion consists of eating a host- unleavened bread that is about the size of a quarter. It is considered a sin if we don't partake in this ritual. I think I read on another SCD site that there was a woman who just took part anyways, because she figured that God will take care of that part for her. While I'm writing this, I'm wondering if I'm not supposed to talk about religion. If so, please forgive the mistake. I don't want to talk about religion for it's own sake, but I wanted to know if there are other Catholics with this dilemma and how you dealt with it. (I'm not trying to start a religious conversation, just want to know the experiences relating to SCD. 2. Eating out I asked this before, and some of you had said you eat out. I have also read that some people just don't eat out for a whole year for fear of contaminants. I went out to eat with friends last night and got salmon and a salad. I didn't know the salad came with croutons, and I was disappointed to see them bring them out to my plate. I picked them off, but I'm sure some of the crouton crumbs got on my salad. I did eat it, probably shouldn't have, right? I need to be fanatical. But I felt so stupid asking the waiter to bring me a salad without any croutons...I guess I have to get over that. It may be easier for me not to eat out, but I hate excluding myself...I guess most of it is lack of confidence both in myself and wondering if the diet will work for me. When people will ask if I need to be on a certain diet for Crohn's, I go into the spiel about how doctor's don't believe diet affects the disease...then I start to feel foolish, like people think I'm a freak for following a diet that isn't doctor prescribed. How do you all deal with this? 3. Apple cider vinegar I'm on another SCD list serve, and I was told the Bragg Raw apple cider vinegar is illegal, because it has yeast. I knew vinegars were legal, and it didn't mention anything on the bottle, so now I am worried that everything I eat could have possible illegals. How do I know? Are there any apple cider vinegars that are legal? Also, if I go out to eat and have an oil and vinegar salad dressing, is that vinegar legal? Sorry this is so long, and I hope you don't mind my venting. I get discouraged at times when I feel like people don't understand where I'm coming from, and it can get hard when I don't have a support group right near me. Thanks for listening, and I would love any advice you can share. Take care, Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 Amber, eating out is a live and learn experience. I usually talk to the chef to find out if the meat is marinated and ask what I can get totally plain. Next time you will know to ask for salad without croutons. I avoid eating out, but nobody expects you to be a hermit. Many of us have brought food with us, or eaten before the meal and order a tea or water to be with friends, or picked a restaurant that can accommodate us. I have fears about people thinking I'm weird about food too, but I try to act as normal as possible. I explain that I feel better eating this way, whether there is " proof " or not. Now that I do feel better, I'm not about to sacrifice my well being for someone's opinion. People who care about me get over it. It's not their food I'm messing with. There are people of many faiths on this board, and while we don't get into the details on religion, it is not off limits IMHO, particularly when it pertains to SCD. I believe the limit on OT discussion is that it pertains to SCD or another topic of interest. There have been discussions on the communion hosts and I believe the consensus is to follow your religion, and take the host because your spiritual well being is crucial to your health and life. Ultimately SCD has to be integrated into your life to work. The diet is strict, but you should have a full life with it. I don't know about the vinegar. PJ > > Sigh, I'm already starting to feel discouraged, but I'm not giving up. I do need some advice though and input please. > > 1. I'm Catholic, and for Catholics we need to take part in communion every week. For those of you who don't know, communion consists of eating a host- unleavened bread that is about the size of a quarter. It is considered a sin if we don't partake in this ritual. I think I read on another SCD site that there was a woman who just took part anyways, because she figured that God will take care of that part for her. > > While I'm writing this, I'm wondering if I'm not supposed to talk about religion. If so, please forgive the mistake. I don't want to talk about religion for it's own sake, but I wanted to know if there are other Catholics with this dilemma and how you dealt with it. (I'm not trying to start a religious conversation, just want to know the experiences relating to SCD. > > > 2. Eating out > I asked this before, and some of you had said you eat out. I have also read that some people just don't eat out for a whole year for fear of contaminants. I went out to eat with friends last night and got salmon and a salad. I didn't know the salad came with croutons, and I was disappointed to see them bring them out to my plate. I picked them off, but I'm sure some of the crouton crumbs got on my salad. I did eat it, probably shouldn't have, right? I need to be fanatical. But I felt so stupid asking the waiter to bring me a salad without any croutons...I guess I have to get over that. > > It may be easier for me not to eat out, but I hate excluding myself...I guess most of it is lack of confidence both in myself and wondering if the diet will work for me. When people will ask if I need to be on a certain diet for Crohn's, I go into the spiel about how doctor's don't believe diet affects the disease...then I start to feel foolish, like people think I'm a freak for following a diet that isn't doctor prescribed. How do you all deal with this? > > 3. Apple cider vinegar > I'm on another SCD list serve, and I was told the Bragg Raw apple cider vinegar is illegal, because it has yeast. I knew vinegars were legal, and it didn't mention anything on the bottle, so now I am worried that everything I eat could have possible illegals. How do I know? Are there any apple cider vinegars that are legal? Also, if I go out to eat and have an oil and vinegar salad dressing, is that vinegar legal? > > > > Sorry this is so long, and I hope you don't mind my venting. I get discouraged at times when I feel like people don't understand where I'm coming from, and it can get hard when I don't have a support group right near me. > > Thanks for listening, and I would love any advice you can share. > > Take care, > > Amber > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 Hi Amber, At my church, we take Communion once a month. I found it very difficult that first week. When the plate was passed to me, I started to grab the host and as soon as I touched it I realized that it was illegal. I let it go and passed the plate. The thought never even occurred to me till that moment, then I sat there and cried. It was a rough day but then I realized that God gave me this " thing " to deal with and He understands what I am doing with this diet, He is working in me. If He can bring you to it, He can bring you through it. As far as other people whether it be fellow Church members, friends, etc., they are not the judge of you, only HE is! Don't worry about their negativity. I know I know, easier said than done. I offer to people how much they want to know and that's it. If they start in with the negativity I change the subject. Stay strong sister! Holly O Crohn's 5/09 SCD 9/1/09 Sigh, I'm already starting to feel discouraged, but I'm not giving up. I do need some advice though and input please.1. I'm Catholic, and for Catholics we need to take part in communion every week. For those of you who don't know, communion consists of eating a host- unleavened bread that is about the size of a quarter. It is considered a sin if we don't partake in this ritual. I think I read on another SCD site that there was a woman who just took part anyways, because she figured that God will take care of that part for her. While I'm writing this, I'm wondering if I'm not supposed to talk about religion. If so, please forgive the mistake. I don't want to talk about religion for it's own sake, but I wanted to know if there are other Catholics with this dilemma and how you dealt with it. (I'm not trying to start a religious conversation, just want to know the experiences relating to SCD. 2. Eating outI asked this before, and some of you had said you eat out. I have also read that some people just don't eat out for a whole year for fear of contaminants. I went out to eat with friends last night and got salmon and a salad. I didn't know the salad came with croutons, and I was disappointed to see them bring them out to my plate. I picked them off, but I'm sure some of the crouton crumbs got on my salad. I did eat it, probably shouldn't have, right? I need to be fanatical. But I felt so stupid asking the waiter to bring me a salad without any croutons...I guess I have to get over that. It may be easier for me not to eat out, but I hate excluding myself...I guess most of it is lack of confidence both in myself and wondering if the diet will work for me. When people will ask if I need to be on a certain diet for Crohn's, I go into the spiel about how doctor's don't believe diet affects the disease...then I start to feel foolish, like people think I'm a freak for following a diet that isn't doctor prescribed. How do you all deal with this? 3. Apple cider vinegarI'm on another SCD list serve, and I was told the Bragg Raw apple cider vinegar is illegal, because it has yeast. I knew vinegars were legal, and it didn't mention anything on the bottle, so now I am worried that everything I eat could have possible illegals. How do I know? Are there any apple cider vinegars that are legal? Also, if I go out to eat and have an oil and vinegar salad dressing, is that vinegar legal? Sorry this is so long, and I hope you don't mind my venting. I get discouraged at times when I feel like people don't understand where I'm coming from, and it can get hard when I don't have a support group right near me. Thanks for listening, and I would love any advice you can share.Take care,Amber -- Holly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 > Sigh, I'm already starting to feel discouraged, but I'm not giving up. I do need some advice though and input please. > > 1. I'm Catholic, and for Catholics we need to take part in communion every week. For those of you who don't know, communion consists of eating a host- unleavened bread that is about the size of a quarter. It is considered a sin if we don't partake in this ritual. I think I read on another SCD site that there was a woman who just took part anyways, because she figured that God will take care of that part for her. > > While I'm writing this, I'm wondering if I'm not supposed to talk about religion. If so, please forgive the mistake. I don't want to talk about religion for it's own sake, but I wanted to know if there are other Catholics with this dilemma and how you dealt with it. (I'm not trying to start a religious conversation, just want to know the experiences relating to SCD. Discussing religion in this context is fine - but another Catholic will have to answer you on specifics. No need to apologize, though, we've discussed it before. > 2. Eating out > I asked this before, and some of you had said you eat out. I have also read that some people just don't eat out for a whole year for fear of contaminants. I went out to eat with friends last night and got salmon and a salad. I didn't know the salad came with croutons, and I was disappointed to see them bring them out to my plate. I picked them off, but I'm sure some of the crouton crumbs got on my salad. I did eat it, probably shouldn't have, right? I need to be fanatical. But I felt so stupid asking the waiter to bring me a salad without any croutons...I guess I have to get over that. Yeah - that's not a biggy, just say you are gluten free. A lot more people are than even a few years ago, so that shouldn't be embarrassing. In fact, in one of my favorite pasta restaurants, they now even have gluten-free pasta on request. Of course, it doesn't help me, as that stuff is not SCD, but it shows the inroads that gluten free has made. But as long as you are not reacting today, you are probably fine. > It may be easier for me not to eat out, but I hate excluding myself...I guess most of it is lack of confidence both in myself and wondering if the diet will work for me. When people will ask if I need to be on a certain diet for Crohn's, I go into the spiel about how doctor's don't believe diet affects the disease...then I start to feel foolish, like people think I'm a freak for following a diet that isn't doctor prescribed. How do you all deal with this? Well, if it makes you feel like a freak, try to figure out a different way to present it. Because that just intensifies your feelings of discomfort about the diet and what you are doing and your stress level. You don't need that. You can tell them, for example that you do need to be on it because of gluten and other sugar intolerance, like lactose intolerance. Everyone knows what lactose intolerance is and won't question whether that is " real " . You don't need to volunteer the info about medical doctors not believing in a diet protocol. And of course, it is currently recognized for people with celiac disease that they can never eat gluten, so making changes in your diet is not unheard of for auto immune intestinal diseases. In point of fact, medical science does not understand auto immune diseases and what triggers them at all well. You can tell them Crohn's is a disease for which there are some therapies to manage the disease, not to cure it, and they don't work for everyone - which is entirely true - so it is up to the patient to be his own advocate and seek out therapies that work for him. Or don't present the entire spiel to people who will judge you that way - only talk about it with intimates who can take in what you are saying. Some people care about this stuff and some people are turned off by the entire subject. > > 3. Apple cider vinegar > I'm on another SCD list serve, and I was told the Bragg Raw apple cider vinegar is illegal, because it has yeast. I knew vinegars were legal, and it didn't mention anything on the bottle, so now I am worried that everything I eat could have possible illegals. How do I know? Are there any apple cider vinegars that are legal? Also, if I go out to eat and have an oil and vinegar salad dressing, is that vinegar legal? I believe you can just filter the Braggs through a coffee filter and then it will be fine. Apple cider with the mother should be filtered. Other apple ciders don't have the mother so don't need filtering. Spectrum organics has one that comes filtered. Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 Amber, My husband has been on the SCD diet for about 13 months now for Crohns. He takes part in communion at our church - the pastor does split the communion wafer in half and they have diluted the communion wine for him. He still takes part but just injests much less. We spoke to our pastor when my DH started the diet. My husband just had a work banquet and he ate before he went. When we were there several people asked about him not eatting and he just said he is on a diet that has really made a difference for him and he ate before he came - incidentally one of the people at our table was a internal doctor that commented to my husband that he looks healthy, after hearing about this diet. He has learned not to be embarrassed or ashamed but just to keep on doing what has helped him. We have learned to minimize information about the diet unless the people we are with start asking questions. Then we are very happy to share! Hope this helps you. Heidi To: BTVC-SCD From: fossil.color@...Date: Fri, 18 Dec 2009 15:24:39 +0000Subject: Catholics, eating out and apple cider vinegar Sigh, I'm already starting to feel discouraged, but I'm not giving up. I do need some advice though and input please.1. I'm Catholic, and for Catholics we need to take part in communion every week. For those of you who don't know, communion consists of eating a host- unleavened bread that is about the size of a quarter. It is considered a sin if we don't partake in this ritual. I think I read on another SCD site that there was a woman who just took part anyways, because she figured that God will take care of that part for her. While I'm writing this, I'm wondering if I'm not supposed to talk about religion. If so, please forgive the mistake. I don't want to talk about religion for it's own sake, but I wanted to know if there are other Catholics with this dilemma and how you dealt with it. (I'm not trying to start a religious conversation, just want to know the experiences relating to SCD.2. Eating outI asked this before, and some of you had said you eat out. I have also read that some people just don't eat out for a whole year for fear of contaminants. I went out to eat with friends last night and got salmon and a salad. I didn't know the salad came with croutons, and I was disappointed to see them bring them out to my plate. I picked them off, but I'm sure some of the crouton crumbs got on my salad. I did eat it, probably shouldn't have, right? I need to be fanatical. But I felt so stupid asking the waiter to bring me a salad without any croutons...I guess I have to get over that. It may be easier for me not to eat out, but I hate excluding myself...I guess most of it is lack of confidence both in myself and wondering if the diet will work for me. When people will ask if I need to be on a certain diet for Crohn's, I go into the spiel about how doctor's don't believe diet affects the disease...then I start to feel foolish, like people think I'm a freak for following a diet that isn't doctor prescribed. How do you all deal with this?3. Apple cider vinegarI'm on another SCD list serve, and I was told the Bragg Raw apple cider vinegar is illegal, because it has yeast. I knew vinegars were legal, and it didn't mention anything on the bottle, so now I am worried that everything I eat could have possible illegals. How do I know? Are there any apple cider vinegars that are legal? Also, if I go out to eat and have an oil and vinegar salad dressing, is that vinegar legal?Sorry this is so long, and I hope you don't mind my venting. I get discouraged at times when I feel like people don't understand where I'm coming from, and it can get hard when I don't have a support group right near me.Thanks for listening, and I would love any advice you can share.Take care,Amber Your E-mail and More On-the-Go. Get Windows Live Hotmail Free. Sign up now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 >> Amber,>> My husband has been on the SCD diet for about 13 months now for Crohns. > He takes part in communion at our church - the pastor does split the > communion wafer in half and they have diluted the communion wine for > him. He still takes part but just injests much less. We spoke to our > pastor when my DH started the diet.>I'm the music director at a Lutheran church. They use pieces of homemade whole-wheat bread for Communion. As an alternative I get an approximately one-inch square bit of rice wafer. The latter is not "legal" either, but that amount doesn't bother my gut at all, and the bread would/does. They also use dry red wine, so I don't have any problem drinking a sip of that. (They also routinely provide grape juice for those who don't want/can't have alcohol, but I take the wine.)Depending on how big your church is (the smaller, the easier to accommodate you), your Catholic church may be willing to do that. I suggest talking with your priest and explaining the situation. On the other hand, unless you're very sensitive, I doubt the wafer is going to cause you much, if any, problem. I've worked/worshipped at churches that use them (and my husband's a Catholic), so I know what they're like. And, as you mentioned and whoever it was first said, God knows why you're taking it and can/will take care of any physical problem with it your body might have. Ask him! Re: eating out. You really needn't explain if you don't want to. Just say something like you need to be on a sugar- and starch-restricted diet for health reasons. Period. I haven't yet run into a restaurant that didn't want to accommodate that -- even when they don't normally allow substitutions for, say, potatoes or bread.There's no reason in the world why you or any of us should be embarassed about needing such an accommodation. And there are so many people out there with allergies and one thing or another that a lot of restaurants are now used to that sort of request. Go for it, and enjoy yourself. I'm concerned with what I've been reading here about people being stressed out over this diet, as well as other's reactions to it. I admit I'm having a hard time understanding why that is. Think about the alternative! The initial adjustment is no doubt difficult for many people (and I suspect that the more recently the disease diagnosis the harder it is; those of us who have had our disease for years and years traded the diet for daily pain, gas, bloating, fatigue, etc., so that vs. changing one's eating habits is no contest! As you heal and can eat more foods there will be an awful lot of really good tasting, healthy food you can eat, and without pain! Go for the goal!n> To: BTVC-SCD > Date: Fri, 18 Dec 2009 15:24:39 +0000> Subject: Catholics, eating out and apple cider vinegar>> Sigh, I'm already starting to feel discouraged, but I'm not giving up. I > do need some advice though and input please.>> 1. I'm Catholic, and for Catholics we need to take part in communion > every week. For those of you who don't know, communion consists of > eating a host- unleavened bread that is about the size of a quarter. It > is considered a sin if we don't partake in this ritual. I think I read > on another SCD site that there was a woman who just took part anyways, > because she figured that God will take care of that part for her.>> While I'm writing this, I'm wondering if I'm not supposed to talk about > religion. If so, please forgive the mistake. I don't want to talk about > religion for it's own sake, but I wanted to know if there are other > Catholics with this dilemma and how you dealt with it. (I'm not trying > to start a religious conversation, just want to know the experiences > relating to SCD.>> 2. Eating out> I asked this before, and some of you had said you eat out. I have also > read that some people just don't eat out for a whole year for fear of > contaminants. I went out to eat with friends last night and got salmon > and a salad. I didn't know the salad came with croutons, and I was > disappointed to see them bring them out to my plate. I picked them off, > but I'm sure some of the crouton crumbs got on my salad. I did eat it, > probably shouldn't have, right? I need to be fanatical. But I felt so > stupid asking the waiter to bring me a salad without any croutons...I > guess I have to get over that.>> It may be easier for me not to eat out, but I hate excluding myself...I > guess most of it is lack of confidence both in myself and wondering if > the diet will work for me. When people will ask if I need to be on a > certain diet for Crohn's, I go into the spiel about how doctor's don't > believe diet affects the disease...then I start to feel foolish, like > people think I'm a freak for following a diet that isn't doctor > prescribed. How do you all deal with this?>> 3. Apple cider vinegar> I'm on another SCD list serve, and I was told the Bragg Raw apple cider > vinegar is illegal, because it has yeast. I knew vinegars were legal, > and it didn't mention anything on the bottle, so now I am worried that > everything I eat could have possible illegals. How do I know? Are there > any apple cider vinegars that are legal? Also, if I go out to eat and > have an oil and vinegar salad dressing, is that vinegar legal?>> Sorry this is so long, and I hope you don't mind my venting. I get > discouraged at times when I feel like people don't understand where I'm > coming from, and it can get hard when I don't have a support group right > near me.>> Thanks for listening, and I would love any advice you can share.>> Take care,>> Amber>>>>> > _________________________________________________________________> Your E-mail and More On-the-Go. Get Windows Live Hotmail Free.> http://clk.atdmt.com/GBL/go/171222985/direct/01/-- Now available. A fine Christmas gift for cat lovers:Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addictionby n Van Tilwww.wordpowerpublishing.com ; signed copies; free shipping in U.S., reduced shipping elsewhere; free gift wrapping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 I want to thank everyone for your encouragement. I really needed to hear it today, I'm just having a hard time today. I was fairly recently diagnosed, about 5 months ago, so just the whole chronic disease diagnosis and no cure thing has gotten me down. That coupled with the fact that I am on Remicade & Methotrexate and I am starting to see some symptoms coming back. Anyways, I really appreciate the input. I also feel really embarrassed, because I thought it was a sin not to receive communion, but I guess I need to get my facts straight! (I apologize for that. I had it in my head that it was, but I guess I am confusing my facts.) In any case, I think I will probably just continue communion as of now since I don't feel terrible. I know I can do this, I know there will be times that are difficult, but I need to do this for my health, and for me to know that I did all that I could to help my disease. It's just hitting me hard today- just the whole chronic illness thing, that and the frustration that it seems so many people immediately discount diet as helping with the disease at all. I just have to have faith that it will work for me. Thank you so much for your kind words and support. I feel so lucky to have found this group. Take care, Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 Don't be embarrassed. I'm not Catholic, (I'm Jewish), but nobody would expect you to know all there is about your religion. We spend our whole lives learning it. The important thing is that you follow your heart and our faith. There is a mind/body connection and I do think religious beliefs play a big role in how we feel. We've all had our down days too, but being on SCD has given me hope, and that means a lot Hang in there. PJ > > > > I want to thank everyone for your encouragement. I really needed to hear it today, I'm just having a hard time today. I was fairly recently diagnosed, about 5 months ago, so just the whole chronic disease diagnosis and no cure thing has gotten me down. That coupled with the fact that I am on Remicade & Methotrexate and I am starting to see some symptoms coming back. > > Anyways, I really appreciate the input. I also feel really embarrassed, because I thought it was a sin not to receive communion, but I guess I need to get my facts straight! (I apologize for that. I had it in my head that it was, but I guess I am confusing my facts.) In any case, I think I will probably just continue communion as of now since I don't feel terrible. > > I know I can do this, I know there will be times that are difficult, but I need to do this for my health, and for me to know that I did all that I could to help my disease. It's just hitting me hard today- just the whole chronic illness thing, that and the frustration that it seems so many people immediately discount diet as helping with the disease at all. I just have to have faith that it will work for me. > > Thank you so much for your kind words and support. I feel so lucky to have found this group. > > Take care, > > Amber > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 Hi Mara, Do I need to actually heat the vinegar and run it through the coffee maker, or can I just run it plain through the filter? Do you know if all raw apple cider vinegars are illegal? I heard before that raw is better, however that is for general health and I know that can differ with people on SCD. Amber > > I believe you can just filter the Braggs through a coffee filter and then it will be fine. > Apple cider with the mother should be filtered. Other apple ciders don't have the > mother so don't need filtering. Spectrum organics has one that comes filtered. > > Mara > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 Do I need to actually heat the vinegar and run it through the coffee maker, or can I just run it plain through the filter? Do you know if all raw apple cider vinegars are illegal? I heard before that raw is better, however that is for general health and I know that can differ with people on SCD.I'm not sure really about what you're talking about, but for apple cider vinegar I've just been using plain old White House brand. I've searched the label and it doesn't have the mother in it, so everyone said it was legal and I haven't had a problem with it. Peace =)Alyssa 15 yoUC April 2008, dx Sept 2008SCD June 2009 (restarted)No meds! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 > 1. I'm Catholic, and for Catholics we need to take part in communion every week. US Conference of Catholic Bishops has issued a couple of documents about low-gluten hosts and mascum. http://www.usccb.org/liturgy/celiasprue.shtml is the only page I can find. There was/is a document issued by them, that describes how Priests are to administer the sacraments for sufferers of various medical conditions. jonathon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 I believe filtering is fine. Though you could, I imagine, also just boil the lot of it for a number of minutes. But when I suggested that last time, Marilyn was unsure about it. Mara > Hi Mara, > > Do I need to actually heat the vinegar and run it through the coffee maker, or can I just run it plain through the filter? > > Do you know if all raw apple cider vinegars are illegal? I heard before that raw is better, however that is for general health and I know that can differ with people on SCD. > > Amber > >> >> I believe you can just filter the Braggs through a coffee filter and then it will be fine. >> Apple cider with the mother should be filtered. Other apple ciders don't have the >> mother so don't need filtering. Spectrum organics has one that comes filtered. >> >> Mara >> > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 Amber, >> Sigh, I'm already starting to feel discouraged, but I'm not giving up. I do need some advice though and input please. << Input and advice is what this list is all about. >> 1. I'm Catholic, and for Catholics we need to take part in communion every week. For those of you who don't know, communion consists of eating a host- unleavened bread that is about the size of a quarter. It is considered a sin if we don't partake in this ritual. I think I read on another SCD site that there was a woman who just took part anyways, because she figured that God will take care of that part for her. << I am not a Catholic, but my husband is, so I will consult him for an answer on this. Harry's answer is that you may have the Eucharist in either of two species -- bread, or wine. It is also possible to have it in both, but that is not part of this discussion. This is confirmed by the Catholic Encyclopedia. http://www.newadvent.org/cathen/c.htm states, " Communion under one kind is the reception of the Sacrament of the Eucharist under the species or appearance of bread alone, or of wine alone, Communion under two or both kinds, the distinct reception under the two or both species, sub utraque specie, at the same time. " I respect the very sincere faith of the woman who felt God would take care of the small amount of starch in the Eucharistic wafer. I elect to pass on the bread in my own church's communion because I can be extremely sensitive to this kind of thing. Another woman I know of asked her priest if it was possible to substitute a small piece of SCD bread without leavening for the standard Eucharistic wafer. Her pastor was obviously a very kind man, and took it to his archbishop, and at least one step beyond. The ruling which came down was that the eucharistic wafer must contain wheat because that was what the original Passover bread was made from. Still another Catholic woman arranged with her priest to have a suitable very dry SCD-legal wine in a separate cup placed on the altar during Mass. It was consecrated with the rest, and presented to her specifically. She was allowed to take Communion as wine because of her illness. My husband says that to the best of his recollection, it is not considered a sin if you do not have communion every week -- that the only time you are absolutely required to have Communion is during Easter. http://www.newadvent.org/cathen/04154a.htm (all the way at the bottom of the page) states: In a " Catechism of Christian Doctrine " approved by Cardinal Vaughan and the bishops of England, six Commandments of the Church are enumerated. These are: to keep the Sundays and Holy Days of obligation holy, by hearing Mass and resting from servile work; to keep the days of fasting and abstinence appointed by the Church; to go to confession at least once a year; to receive the Blessed Sacrament at least once a year and that at Easter or thereabouts; to contribute to the support of our pastors; not to marry within a certain degree of kindred nor to solemnize marriage at the forbidden times. This list is the same as that which the Fathers of the Third Plenary Council of Baltimore (1886) prescribed for the United States. Obviously, you desire the sacraments as a regular part of the Mass. Therefore, I would, were I you, seek an appointment with your pastor as soon as possible to discuss how you can meet both your spiritual desires and your physical needs. >> While I'm writing this, I'm wondering if I'm not supposed to talk about religion. If so, please forgive the mistake. I don't want to talk about religion for it's own sake, but I wanted to know if there are other Catholics with this dilemma and how you dealt with it. (I'm not trying to start a religious conversation, just want to know the experiences relating to SCD. << Proselytizing about one's faith is generally not appropriate on this list. An expression of your own personal belief is fine, so long as it is not couched in such a way as to imply that anyone who does not follow your particular beliefs is wrong. A discussion of a complication relating to the standard practices of one's faith with the requirements of the Specific Carbohydrate Diet is no problem. It's one of the complications. I remember one woman, during one of the bombings of Israel, trying to figure out how she could keep kosher, have canned food and bottled water to meet civil authorities' requirements, AND stay SCD legal. (She managed, but I don't remember how.) Another person was strongly Buddhist, and a vegetarian for ethical reasons, and was having a real crisis as regarded her Crohn's, the need to eat meat, and his spiritual leanings. Her pastor helped her resolve her crisis. >> 2. Eating out I asked this before, and some of you had said you eat out. I have also read that some people just don't eat out for a whole year for fear of contaminants. I went out to eat with friends last night and got salmon and a salad. I didn't know the salad came with croutons, and I was disappointed to see them bring them out to my plate. I picked them off, but I'm sure some of the crouton crumbs got on my salad. I did eat it, probably shouldn't have, right? I need to be fanatical. But I felt so stupid asking the waiter to bring me a salad without any croutons...I guess I have to get over that. << The crumbs can be an issue. Cross-contamination can be an issue. Sometimes just not being BRAVE enough to speak up can be an issue. I remember vividly going out to eat with parents on Christmas Eve. We went to one of their favorite restaurants. I ordered pan-fried veal, and TOLD them what I could not have. Well, they brought out my meal, and they'd coated it in FLOUR. I wanted to send it back. My parents told me to stop making a scene and to just eat my food! And, un-brave person that I was then, I did. Almost didn't make it home (about a half hour from the restaurant) before the diarrhea started. And I also almost missed the candlelight Christmas Eve service which is one of my favorite times of the year, all because of that darn flour. After that, I knew SCD was my path, and I became very pro-active on it. Of course, it helped that I had a husband to back me up. <g> His favorite line became " What part of 'Marilyn can't eat that' don't you understand? " >> It may be easier for me not to eat out, but I hate excluding myself...I guess most of it is lack of confidence both in myself and wondering if the diet will work for me. When people will ask if I need to be on a certain diet for Crohn's, I go into the spiel about how doctor's don't believe diet affects the disease...then I start to feel foolish, like people think I'm a freak for following a diet that isn't doctor prescribed. How do you all deal with this?<< Does a diabetic explain that they can't have gross quantities of sugar? Does a person with an anaphylactic allergy to something apologize for what may put them in the hospital? If anyone asks, tell them you have learned that you have food allergies, and that you can land in the hospital if you eat non-permitted foods. In fact, I now wear a Medic Alert bracelet with my sleep apnea, and " multiple food allergies " on it. You don't have to explain. Just tell people you can't eat that, and leave it at that. 3. Apple cider vinegar I'm on another SCD list serve, and I was told the Bragg Raw apple cider vinegar is illegal, because it has yeast. I knew vinegars were legal, and it didn't mention anything on the bottle, so now I am worried that everything I eat could have possible illegals. How do I know? Are there any apple cider vinegars that are legal? Also, if I go out to eat and have an oil and vinegar salad dressing, is that vinegar legal? This ties into the " eating out " thing. I have an insulated bag which I carry a small bottle of my own salad dressing, a bag of my own safe shredded cheese, a box with real butter in it (a cream cheese storage box just holds two sticks of butter!), a bag of SCD muffins or crackers, and whatever dessert I feel like eating that night. I was somewhat self-conscious at first, but now, at the restaurants we go to regularly, the staff knows us, and will say, " Oh, that's right. No croutons on your salad and you have your own cheese and dressing. No problem! " My bag came in really handy last summer. I was in Wisconsin, and the friend we were staying with wanted to go out to his favorite burger place. Turned out nothing in the place, but romaine lettuce, sliced tomato, and the cheddar cheese was SCD legal. The manager was quite apologetic. But I enjoyed my large salad, and the container of yogurt I'd brought while everyone else was having burgers and fries and soft serve. Yes, I'd've liked to have a burger, but it just wasn't worth the risk. There are two schools of thought: my understanding is that vinegar with the " mother " (yeast) in it is not legal. I have heard from others that it's OK as long as you filter it. Still others say it's neither legal nor illegal. I can't find the note I thought I had from Elaine which said it was not legal. Elaine always said all yeast supplements and so forth were illegal. The only legal yeast is the probiotic s. boulardii. Therefore, I assume that the yeast in vinegar isn't legal -- and I also won't drink the dregs of a bottle of wine. When eating out, you have to be very strict with the people -- and send food back if it is not prepared correctly. I have had salads brought out with croutons. I hold onto the improperly prepared salad, and tell them to bring me one which is properly prepared. Then I give the one with the croutons back to them. This prevents them from picking the croutons off and giving me something with the crumbs. It is not easy -- I was, as noted above, raised not to make a fuss in public. I've decided it makes more of a fuss in public if I have explosive diarrhea all over the place, so now I fuss away. >> Sorry this is so long, and I hope you don't mind my venting. I get discouraged at times when I feel like people don't understand where I'm coming from, and it can get hard when I don't have a support group right near me. << That's the advantage of the Internet -- we're as close as your computer, and with this being an international group, there's a chance someone will be around 24/7. Hope this helps. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 Amber, I'm not catholic, but what would you do if you had a wheat allergy? There may not be a whole lot of catholics on SCD, but I'm sure there are quite a few with wheat allergies. What do they do? As for eating out, I find it helpful to just say that DH has a lot of allergies. I used to say that DH was on a restricted diet for medical reasons, but sooo many waiters and cooks would just assume that meant he was doing a low carb diet to lose weight or something, and didn't take it as seriously. People understand allergies. btw, with salads, always ask for no croutons and also no cheese. A lot of places put shredded cheese on the salad, and pre-schredded cheese usually had anti-caking agents in it. Devorah To: BTVC-SCD Sent: Fri, December 18, 2009 7:24:39 AMSubject: Catholics, eating out and apple cider vinegar Sigh, I'm already starting to feel discouraged, but I'm not giving up. I do need some advice though and input please.1. I'm Catholic, and for Catholics we need to take part in communion every week. For those of you who don't know, communion consists of eating a host- unleavened bread that is about the size of a quarter. It is considered a sin if we don't partake in this ritual. I think I read on another SCD site that there was a woman who just took part anyways, because she figured that God will take care of that part for her. While I'm writing this, I'm wondering if I'm not supposed to talk about religion. If so, please forgive the mistake. I don't want to talk about religion for it's own sake, but I wanted to know if there are other Catholics with this dilemma and how you dealt with it. (I'm not trying to start a religious conversation, just want to know the experiences relating to SCD.2. Eating outI asked this before, and some of you had said you eat out. I have also read that some people just don't eat out for a whole year for fear of contaminants. I went out to eat with friends last night and got salmon and a salad. I didn't know the salad came with croutons, and I was disappointed to see them bring them out to my plate. I picked them off, but I'm sure some of the crouton crumbs got on my salad. I did eat it, probably shouldn't have, right? I need to be fanatical. But I felt so stupid asking the waiter to bring me a salad without any croutons...I guess I have to get over that. It may be easier for me not to eat out, but I hate excluding myself...I guess most of it is lack of confidence both in myself and wondering if the diet will work for me. When people will ask if I need to be on a certain diet for Crohn's, I go into the spiel about how doctor's don't believe diet affects the disease...then I start to feel foolish, like people think I'm a freak for following a diet that isn't doctor prescribed. How do you all deal with this?3. Apple cider vinegarI'm on another SCD list serve, and I was told the Bragg Raw apple cider vinegar is illegal, because it has yeast. I knew vinegars were legal, and it didn't mention anything on the bottle, so now I am worried that everything I eat could have possible illegals. How do I know? Are there any apple cider vinegars that are legal? Also, if I go out to eat and have an oil and vinegar salad dressing, is that vinegar legal?Sorry this is so long, and I hope you don't mind my venting. I get discouraged at times when I feel like people don't understand where I'm coming from, and it can get hard when I don't have a support group right near me.Thanks for listening, and I would love any advice you can share.Take care,Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 I can't advise on the Communion or vinegar, but I do have many years of experience eating out or at family member's houses. I suggest just being straightforward and don't make a big deal of it. It's always better to check with the restaurant, best to talk with the chef. Sometimes they ask you to let them know when you will be coming, sometimes not. I have done everything from taking salad dressing or plain chicken or whatever in baggies in my purse, to just having tea and eating ahead of time. Most people are very sympathetic and you need not say more than you have a special diet that helps so much it isn't worth getting off it, or tell them you have allergies (my shortcut, everyone knows about allergies). I find people to be very understanding but some restaurants are not and this you do need to know about so you can plan accordingly. I know it feels funny at first but a little practice and I think you'll be more comfortable with it. Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2009 Report Share Posted December 19, 2009 I am a devout Catholic as well who totally believes prayer and the Lord bought me to SCD -I know some others here and on pecanbread who agree and 1)you are not sinning by not receiving - my pastor is totally aware of my needs and even tried to get some legal wine - like one of the SCD counselors receives in Canada but he wasn't able to find an " altar wine " that is legal -so you can sit and receive spiritually or my church lets people who can't receive go up with thir arms crossed across their chest and get a blessing 2) I'm 2 years in and still don't eat out - too scary - I bring my own If I go anywhere - I MAY get brave soon as I do feel pretty good most of the time - but I'm barely stage 3 and would like to progress amd feel great for a while before I'd attempt it - and don't feel weird it's your health - speak up - threaten , send food back - I get fired up with this as I've been ignored by places when i tell them my daughter's throat will close if she has sesame or peanut and here they come with a sesame bun etc - unreal -and they won't get it - but explain it and share what you've found - I try to help anyone I can thru the knowledge I've gained - autistic kids, intestinal adults - people need to know - don't feel weird ok enough babbling and welcome - LOL Eileen 23 months scd > > Sigh, I'm already starting to feel discouraged, but I'm not giving up. I do need some advice though and input please. > > 1. I'm Catholic, and for Catholics we need to take part in communion every week. For those of you who don't know, communion consists of eating a host- unleavened bread that is about the size of a quarter. It is considered a sin if we don't partake in this ritual. I think I read on another SCD site that there was a woman who just took part anyways, because she figured that God will take care of that part for her. > > While I'm writing this, I'm wondering if I'm not supposed to talk about religion. If so, please forgive the mistake. I don't want to talk about religion for it's own sake, but I wanted to know if there are other Catholics with this dilemma and how you dealt with it. (I'm not trying to start a religious conversation, just want to know the experiences relating to SCD. > > > 2. Eating out > I asked this before, and some of you had said you eat out. I have also read that some people just don't eat out for a whole year for fear of contaminants. I went out to eat with friends last night and got salmon and a salad. I didn't know the salad came with croutons, and I was disappointed to see them bring them out to my plate. I picked them off, but I'm sure some of the crouton crumbs got on my salad. I did eat it, probably shouldn't have, right? I need to be fanatical. But I felt so stupid asking the waiter to bring me a salad without any croutons...I guess I have to get over that. > > It may be easier for me not to eat out, but I hate excluding myself...I guess most of it is lack of confidence both in myself and wondering if the diet will work for me. When people will ask if I need to be on a certain diet for Crohn's, I go into the spiel about how doctor's don't believe diet affects the disease...then I start to feel foolish, like people think I'm a freak for following a diet that isn't doctor prescribed. How do you all deal with this? > > 3. Apple cider vinegar > I'm on another SCD list serve, and I was told the Bragg Raw apple cider vinegar is illegal, because it has yeast. I knew vinegars were legal, and it didn't mention anything on the bottle, so now I am worried that everything I eat could have possible illegals. How do I know? Are there any apple cider vinegars that are legal? Also, if I go out to eat and have an oil and vinegar salad dressing, is that vinegar legal? > > > > Sorry this is so long, and I hope you don't mind my venting. I get discouraged at times when I feel like people don't understand where I'm coming from, and it can get hard when I don't have a support group right near me. > > Thanks for listening, and I would love any advice you can share. > > Take care, > > Amber > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2009 Report Share Posted December 19, 2009 oh I forgot I use stop and shop brand ACV eileen > > > Do I need to actually heat the vinegar and run it through the coffee > > maker, or can I just run it plain through the filter? > > > > Do you know if all raw apple cider vinegars are illegal? I heard > > before that raw is better, however that is for general health and I > > know that can differ with people on SCD. > > > I'm not sure really about what you're talking about, but for apple > cider vinegar I've just been using plain old White House brand. I've > searched the label and it doesn't have the mother in it, so everyone > said it was legal and I haven't had a problem with it. > > Peace =) > Alyssa 15 yo > UC April 2008, dx Sept 2008 > SCD June 2009 (restarted) > No meds! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2009 Report Share Posted December 19, 2009 Amber, I'm not Catholic, but Lutheran, which is really close in eucharist practices. I had the same question as you when I was a beginner. In my church, the pastor is flexible, and because there is a woman with severe wheat allergies in the congregation, our whole church uses gluten-free bread for communion (it isn't legal for me unfortunately). Others I've spoken to get a special wafer just for them (so the whole church doesn't have to have different communion). Also, I went to a Catholic church for a couple of years, and there I was told that it is legal to JUST take the wine, or JUST the bread, and that would be complete eucharist, so you could just skip one I think. I have to admit, I've decided to just take the wine and bread as is, and because we use real bread (not wafers), I ask the pastor to give me a really tiny piece, which he does. When I was started SCD, I could really feel the bread -- I would have gas for hours afterward. But now it has no effect. Which is really funny, because the SLIGHTEST bit of baking powder or anti-caking agents in most spices make me really sick, so you'd think the bread would still affect me. I don't know -- maybe it really DOES turn into the body of Christ when the pastor blesses it (which in a gross kind of way WOULD be legal). Okay, I hope I'm not offending anyone. Eucharist is the only illegal food I ever eat, I only eat the tiniest bit, and being Lutheran, I do have the advantage of only having to have it once a month instead of once a week. So, that's just my experience. Good luck with that! By the way, I rarely eat real food when I go out. Once I had to eat out for an interview, and I did eat the best I could find -- a really tasteless piece of chicken in a Thai restaurant, and I was sick for a few days afterward. But I do " go out to eat " all the time, because of the social aspect of it. I sometimes bring my own food if I'm with friends or family who understand, but a lot of times I'm SUCH a wimp (about explaining myself), I order something really cheap and literally play with the food on the plate the whole time so it looks like I actually ate something. And then I run home afterward and eat food that won't make me sick. I know, it's probably not the best solution, but it works for me! Ann (SCD for almost 21 months) in Iowa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2009 Report Share Posted December 20, 2009 Eileen- Just curious. You say you're in SCD for 2 years and on Stage 3? Do you have to take any supplements? I am new -- 1 month now. I am trying Stage 2 but still can't take honey or eggs but some veggies and fruits are ok. I get concerned (may be unnecessarily) about not eating different types of beans etc. Thanks, Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2009 Report Share Posted December 20, 2009 yes stage 3 - everyone is different but I just wanted to make sure it wasn't food affecting me - so I kept eating the same stuff over and over cause I was ok on it - not always smart - you need different vitamins etc and can develop food allergies - but thankfully I didn't - turns out I have TONS of yeast - which most intestinal people do have yeast issues but I think that kept me from healing/progresing I was on l-glutamine for a year and l-tyrptophan too to chill out my hyper sensitive insides - off all now except acidophilus and vitamins comp allergy med, comp thyroid med now ( another problem that was found!!) but anyway - my doc made me be brave and try foods,I found I wasn't reacting bad and then I saw an applied Kineiologist who said take some of my foods/supplements etc out and gave me some new supplemsnts(1 being for microbials and one for adrenals) and either that plus some more comp yeast meds OR accupuncture OR just healing with time has gotten me pretty good most of the time now - and I will try a few more new foods soon - hope that wasn't too confusing - feel free to ask questions eileen 23 months scd > > > Eileen- > > Just curious. You say you're in SCD for 2 years and on Stage 3? Do you have to take any supplements? > > I am new -- 1 month now. I am trying Stage 2 but still can't take honey or eggs but some veggies and fruits are ok. I get concerned (may be unnecessarily) about not eating different types of beans etc. > > Thanks, > Andy > Quote Link to comment Share on other sites More sharing options...
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