Dawn Pische- we are from Kalamazoo area

[Guest guest]

Dawn,

Friendly hello from Parchment(NE of kalamazoo, MI), we are fairly new to Mito as well. Our two children have been diagnosed in the last year. I would love to talk with you more my email is dtmartin6281@... if you would like to talk more. Our kids are 7yo and 4 yo.

Tammydawn pische wrote:

Hi Darla,

We saw Dr. Renaud at Mayo. We live in Grand Rapids Mi. Funny thing is when the test results from Josh's skin biopsy came back they were first sent to Dr's Van Sickle and Zarnosky in Waterloo Iowa.

Thanks,

DawnDarla Klein wrote:

You mentioned you went to Mayo. Did you see Dr. Whiteman or Dr. Renaud and where do you live? We live in Des Moines, Iowa. > Hi

all, just another little question!! I was wondering, my son who isn't> diagnosed with anything yet, neither are any of us!!> But anyway, every time he gets sick he seems to get funny, well not funny,> but he only just gets "normal" sick, no sicker than an average child, but he> has what I class as unusual things happen to him while sick, like recently> he had the same cold that everyone over here has, but his speech went bad,> like it was so hard to understand that even us as parents had to ask him> again and again what he said, he is nearly 3 with hypotonia and lots of> other weird movements, possible nocturnal seizures (mild). He also got very> very clumsy with his walking and fell a lot and stumbled. Now he is better,> some 2 weeks later he is basically back to normal.> > So do we look at this as just one of those things, or does it indicate a>

possible mito sign? As we have had so many people suggest mito with our> family history, as I posted to the board before (autism, aspergers,> epilepsy, GERD etc etc).> > I was just unsure as whether this could just be normal for a child with> hypotonia and a cold of if it indicates more towards mito?> And yes I am still gathering more courage and evidence before I present my> ideas to the doc, just so that he doesn't laugh at me!!> > Thanks again!!> Cindy> > > > > Please contact mito-owner with any problems or questions. > > >