Guest guest Posted July 25, 2004 Report Share Posted July 25, 2004 Thankyou to everyone for your lovely wishes and congratulations!! It has been a big month for us here in Australia. Last month our family appeared on a current affair program. The article featured Gaby's PDH disorder, and why we use the new Paediatric Hospice here in NSW Tomorrow evening, I will be speaking at the official opening for Genetics awareness week here in NSW Australia. I am the parent representative for the evening. Please send prayers of strength and good luck our way for a successful evening. The more we can get the word ou about genetic disorders,/mito ones in particular, the greater the community awareness. Regards, ne, mum to Gaby, PDH, G Tube, keto diet, wheelchair dependant, CP,repaired dislocated hip, and loves to sing! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2004 Report Share Posted July 25, 2004 ne, Happy Birthday to Gaby! Every year we have our mito kids is a blessing. Congratulations on so many opportunities to educate people about mito. I am new to the mito and groups but am enjoying getting acquainted with everyone. I have learned a lot. My husband, , and I started a UMDF support group in Virginia for families affected by mito. We were lonely in burg, VA with on one to communicate with about our daughter. I hope you have many more good months in Australia. Take care, Shelby, mother of , 30 years, mitochondrial encephalopathy, clinically diagnosed in 1998 by Dr. Kelley, Kennedy Krieger > > Thankyou to everyone for your lovely wishes and congratulations!! > It has been a big month for us here in Australia. > Last month our family appeared on a current affair program. The > article > featured Gaby's PDH disorder, and why we use the new Paediatric > Hospice here > in NSW > Tomorrow evening, I will be speaking at the official opening for > Genetics > awareness week here in NSW Australia. I am the parent representative > for the > evening. > Please send prayers of strength and good luck our way for a successful > evening. The more we can get the word ou about genetic > disorders,/mito ones > in particular, the greater the community awareness. > > Regards, > ne, mum to Gaby, PDH, G Tube, keto diet, wheelchair dependant, > CP,repaired dislocated hip, and loves to sing! > > > > Please contact mito-owner with any problems or > questions. > > > > > Quote Link to comment Share on other sites More sharing options...
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