Re: to gary

[Guest guest]

Tracie??? You know alot about this thing called Sarcoidosis, but you seemed to me don't know this precarious situation I have even you and myself discuss this before

,

You are right-- I don't know shit about peptic ulcer disease. I do know sarc-- and I'm learning every day.

-- I'm not a doctor.

As for the choices you make now, or may have to make-- then my attitude is worry about those things when and if they happen. When you put so much energy into worrying about something that has not happened, you cripple yourself. You make it impossible for your medical providers to help you.

I don't have the answers .

You asked for my opinion-- and I gave it to you. If you are miserable and in pain-- then get the balls to seek treatment.

The rest of us have to == and we all have the same issues and concerns as to whether the treatment we start will work, whether it'll cause us cancer or lymphoma or leukemia or hopefully-- make us better without any of these Possible side effects.

I look at the cup as being half full-- you choose it to be half empty. Everything we do has potential benefit, or loss. I can tell you that taking the chance to increase the quality of my life is what I'm about. It's also what I want for each and every member of this list.

I wish you a pleasant holiday, and hope that you'll find some Peace and Comfort in your life.

Sincerely,

Tracie

NS Co-owner/moderator

[Guest guest]

Tracie, I don't have ANXIETY about the outcome of this Sarcoidosis and as well having this Peptic Ulcer Disease. Zero percent in regards to ANXIETY. BUT THIS OTHER BLANKLTY BLANK WORD, NAMELY STRESS is and always has been all said and done the major contributitor to why I developed Peptic Ulcer Disease. Such events as WHAT HAPPENED A WEEK AGO TODAY WHILE DOING ONE OF THESE THREE NEWSPAPER ROUTES WE WORK ON. I'LL RESERVE THAT TO MAYBE ANOTHER DAY LIKE TOMORROW OR WHENEVER. JUST A TYPICAL EVENT AMOUNG HUNDREDS OR EVEN THOUSANDS OF THESE STUPID THINGS THAT HAPPENED IN OUR LIVES. Tracie, I've asked this rheumologist doctor this past May I think it was, then my primary care doctor (this old fart doctor I had there at the V.A. retired a few weeks ago) a few weeks later in June, and an neurologist doctor at Ann Arbor V.A. Hospital this past fall to HAVE AN MRI DONE ON BOTH OF MY LEGS. THEY

ALL REFUSED. THE FIRST DOCTOR AND THE LAST ONE IN THE ABOVE MENTIONED SEQUENCIAL OF VISITS WILL NOT PRESCRIBE PREDNISONE FOR ME, PERIOD!!!!!!!! That goes for ANYOTHER ANTI-INFLAMMATARY DRUG SUCH AS IMURAN. WHY?????? IT'S BECAUSE OF THIS DAMM STOMACH PEPTIC ULCER(S) THAT I HAVE A HISTORY OF HAVING. Last year this pain in both of my legs and my knees increased to the point I WANTED TO HAVE AN MRI DONE ON BOTH OF MY LEGS, OR Ct-scan AND NO DOCTORS AT THE V.A. WOULD DO NOTHING FAR AS TESTING WHAT THIS PAIN WAS CAUSE BY. ON A SCALE OF 0 TO 10, WHERE 0 IS NO PAIN, 10 IS WHERE YOU PUT A LOADED GUN TO YOUR HEAD AND FIRE AWAY, MY PAIN IN MY ESTIMATE WAS A 8 OR 8.5 ON THIS SCALE. This pain was there from May, 2005 into November, 2005 and it decrease on it's own. This

spring this pain in the same area was around a 4 on that scale I wrote about. All said and done, I may have a slowly detoriation of my joints in both of my knees and as well my muscles, ligaments, etc. in my legs, and lessor extent in both my ankles. But anyway, I'am just like say someone with Rheumotiod Arthristis going on with them and they don't take any anti-inflammatary drugs like that damm Prednisone because of having Peptic Ulcer Disease. I think I wrote about something before or maybe not. That is HOW CAN I HANDLE ANY, ANY ANTI-INFLAMMATARY DRUGS SUCH AS PREDNISONE WHEN MY STOMACH CAN'T EVEN HANDLE DAMM ASPRIN???? That sometime moron dad of mine takes one asprin a day as blood thinner relating to his heart. If it came to that I had to take asprin like that sometime creep of a father, I refuse. If refusing would result in my dying, so what. I mentioned before what Dr. Krieger who was my primary

care doctor between August, 1999 to November, 2001 told me here with this group. I'll just repeat it now because I mentioned this so long time ago (fall 2004). Dr. Krieger said that "I should never take asprin or ibroprophen, because long use of this would very well develop into a bleeding ulcer". Also he said ", you don't resolve having these stomach ulcers, this will develop into stomach cancer". I DID NOT PUT ALL THESE WORDS INTO THIS DOCTOR'S BRAIN NOR TOLD HIM TO SAY OF THE SUCH. THE VERY SAME CLASS OF DRUGS AND EVEN MORE STRONGER ONES OF ANTI-INFLAMMATARY IN NATURE THAT I SUPOSE TO NOT TAKE BECAUSE OF MY STOMACH IS THE SAME ONES TO USE ON THIS DAMM INFLAMMATARY PAIN IN MY LEGS AND PAIN IN MY KNEES. I just wish you would have a open mind Tracie, and try to understand I'am in a shitville situation of taking a drug like Prednisone or not. 10-4, tiodaat@... wrote: In a message dated 12/5/06 8:45:41 PM Pacific Standard Time, garyjwoolard (AT) yahoo (DOT) com writes: Tracie??? You know alot about this thing called Sarcoidosis, but you seemed to

me don't know this precarious situation I have even you and myself discuss this before,You are right-- I don't know shit about peptic ulcer disease. I do know sarc-- and I'm learning every day. -- I'm not a doctor. As for the choices you make now, or may have to make-- then my attitude is worry about those things when and if they happen. When you put so much energy into worrying about something that has not happened, you cripple yourself. You make it impossible for your medical providers to help you. I don't have the answers . You asked for my opinion-- and I gave it to you. If you are miserable and in pain-- then get the balls to seek treatment. The rest of us have to == and we all have the same issues and concerns as to whether

the treatment we start will work, whether it'll cause us cancer or lymphoma or leukemia or hopefully-- make us better without any of these Possible side effects.I look at the cup as being half full-- you choose it to be half empty. Everything we do has potential benefit, or loss. I can tell you that taking the chance to increase the quality of my life is what I'm about. It's also what I want for each and every member of this list.I wish you a pleasant holiday, and hope that you'll find some Peace and Comfort in your life.Sincerely,TracieNS Co-owner/moderator __________________________________________________

[Guest guest]

, seems to me that Tracie has tried to give you her opinion wether or not you like her answer or not. that's not really my concern here. I like you and many others on this list don't feel well, we've had crappy doctor's that won't do anything for us, or at least that's the way we feel. You mentioned in your letter that you're in "Shit'sville" well my dear friend, your not alone.. many of us are there.. its not just you.. and yes we've got decisions to make.. its up to you and your doctor's wether you get treated with Prednisone, Imuran or one of the other drugs.. You're one half of the team.. As Tracie has pointed out many times there are medications for Peptic Ulcer Disease, and if you or your doctor doesn't want to take the risk, what exactly do you want Tracie to do for you? She's sick herself, and fighting the same disease you are... I find you a bit disrespectful to her and a bit unrealistic as to what you think she can do for you. When you use all capital letters on the internet it is implied that you are yelling.. I hope this is not the case as Tracie has done nothing but try to help you and others.. give her a break....

Your's truly,

-- Re: to gary

Tracie,

I don't have ANXIETY about the outcome of this Sarcoidosis and as well having this Peptic Ulcer Disease. Zero percent in regards to ANXIETY. BUT THIS OTHER BLANKLTY BLANK WORD, NAMELY STRESS is and always has been all said and done the major contributitor to why I developed Peptic Ulcer Disease. Such events as WHAT HAPPENED A WEEK AGO TODAY WHILE DOING ONE OF THESE THREE NEWSPAPER ROUTES WE WORK ON. I'LL RESERVE THAT TO MAYBE ANOTHER DAY LIKE TOMORROW OR WHENEVER. JUST A TYPICAL EVENT AMOUNG HUNDREDS OR EVEN THOUSANDS OF THESE STUPID THINGS THAT HAPPENED IN OUR LIVES. Tracie, I've asked this rheumologist doctor this past May I think it was, then my primary care doctor (this old fart doctor I had there at the V.A. retired a few weeks ago) a few weeks later in June, and an neurologist doctor at Ann Arbor V.A. Hospital this past fall to HAVE AN MRI DONE ON BOTH OF MY LEGS. THEY ALL REFUSED. THE FIRST DOCTOR AND THE LAST ONE IN THE ABOVE MENTIONED SEQUENCIAL OF VISITS WILL NOT PRESCRIBE PREDNISONE FOR ME, PERIOD!!!!!!!! That goes for ANYOTHER ANTI-INFLAMMATARY DRUG SUCH AS IMURAN. WHY?????? IT'S BECAUSE OF THIS DAMM STOMACH PEPTIC ULCER(S) THAT I HAVE A HISTORY OF HAVING.

Last year this pain in both of my legs and my knees increased to the point I WANTED TO HAVE AN MRI DONE ON BOTH OF MY LEGS, OR Ct-scan AND NO DOCTORS AT THE V.A. WOULD DO NOTHING FAR AS TESTING WHAT THIS PAIN WAS CAUSE BY. ON A SCALE OF 0 TO 10, WHERE 0 IS NO PAIN, 10 IS WHERE YOU PUT A LOADED GUN TO YOUR HEAD AND FIRE AWAY, MY PAIN IN MY ESTIMATE WAS A 8 OR 8.5 ON THIS SCALE. This pain was there from May, 2005 into November, 2005 and it decrease on it's own. This spring this pain in the same area was around a 4 on that scale I wrote about. All said and done, I may have a slowly detoriation of my joints in both of my knees and as well my muscles, ligaments, etc. in my legs, and lessor extent in both my ankles. But anyway, I'am just like say someone with Rheumotiod Arthristis going on with them and they don't take any anti-inflammatary drugs like that damm Prednisone because of having Peptic Ulcer Disease. I think I wrote about something before or maybe not. That is HOW CAN I HANDLE ANY, ANY ANTI-INFLAMMATARY DRUGS SUCH AS PREDNISONE WHEN MY STOMACH CAN'T EVEN HANDLE DAMM ASPRIN???? That sometime moron dad of mine takes one asprin a day as blood thinner relating to his heart. If it came to that I had to take asprin like that sometime creep of a father, I refuse. If refusing would result in my dying, so what.

I mentioned before what Dr. Krieger who was my primary care doctor between August, 1999 to November, 2001 told me here with this group. I'll just repeat it now because I mentioned this so long time ago (fall 2004). Dr. Krieger said that "I should never take asprin or ibroprophen, because long use of this would very well develop into a bleeding ulcer". Also he said ", you don't resolve having these stomach ulcers, this will develop into stomach cancer". I DID NOT PUT ALL THESE WORDS INTO THIS DOCTOR'S BRAIN NOR TOLD HIM TO SAY OF THE SUCH. THE VERY SAME CLASS OF DRUGS AND EVEN MORE STRONGER ONES OF ANTI-INFLAMMATARY IN NATURE THAT I SUPOSE TO NOT TAKE BECAUSE OF MY STOMACH IS THE SAME ONES TO USE ON THIS DAMM INFLAMMATARY PAIN IN MY LEGS AND PAIN IN MY KNEES.

I just wish you would have a open mind Tracie, and try to understand I'am in a shitville situation of taking a drug like Prednisone or not.

10-4,

tiodaat (AT) aol (DOT) com wrote:

In a message dated 12/5/06 8:45:41 PM Pacific Standard Time, garyjwoolard (AT) yahoo (DOT) com writes:

Tracie??? You know alot about this thing called Sarcoidosis, but you seemed to me don't know this precarious situation I have even you and myself discuss this before,You are right-- I don't know shit about peptic ulcer disease. I do know sarc-- and I'm learning every day. -- I'm not a doctor. As for the choices you make now, or may have to make-- then my attitude is worry about those things when and if they happen. When you put so much energy into worrying about something that has not happened, you cripple yourself. You make it impossible for your medical providers to help you. I don't have the answers . You asked for my opinion-- and I gave it to you. If you are miserable and in pain-- then get the balls to seek treatment. The rest of us have to == and we all have the same issues and concerns as to whether the treatment we start will work, whether it'll cause us cancer or lymphoma or leukemia or hopefully-- make us better without any of these Possible side effects.I look at the cup as being half full-- you choose it to be half empty. Everything we do has potential benefit, or loss. I can tell you that taking the chance to increase the quality of my life is what I'm about. It's also what I want for each and every member of this list.I wish you a pleasant holiday, and hope that you'll find some Peace and Comfort in your life.Sincerely,TracieNS Co-owner/moderator

__________________________________________________

[Guest guest]

, I used capital letters to try to make my point clear to Tracie. Was I in a frustrating mood? Yes. But I don't think I was "yelling". I don't have the list of medcines that I'am taking now. I stated my list of medcines a long time ago. Anyway, I'am taking medcine for my stomach, this periheral neuropathy nerve pain, blood pressure medcine, and this Salsalate drug that Tracie described about this in a e-mail before. This last one is a rheumology drug. I'am SUPPOSE TO take only ONE with food or milk, alot of times I've taken TWO AT ONE TIME. This in itself may very well damaging my liver. So what, if it is doing that, I can't stand the pain at time. If I spaced out taking this with food throughout the day, perhaps overall it would be better. It is said than done. I need to eat a regular meal when taking this drug and when I away from my apartment I can't do that because little if no money to stop somewhere and eat at like Burger King

for example. I am taking acetamephen of extra strength kind (500 mg. each tablet) anywhere from 6 to 10 tablets of these a day on top of all this other medcine. I know that everytime I take more than 8 of these in less than 24 hours, this in itself damages my liver. Just read on the label of these bottles. Pain list: not in order of most to least or least to most important levels. Just it comes to my mind. (1) Pain in both my knees and lessor in other bones (2) Pain in both my legs other than knees. (3) Periheral Neuropathy These first three from Sarcoidosis? Perhaps. (4) Pain in my back from the discs and spine, Scoliosis. wrote: , seems to me that Tracie has tried to give you her opinion wether or not you like her answer or not. that's not really my concern here. I like you and many others on this list don't feel well, we've had crappy doctor's that won't do anything for us, or at least that's the way we feel. You mentioned in your letter that you're in "Shit'sville" well my dear friend, your not alone.. many of us are there.. its not just you.. and yes we've got decisions to make.. its up to you and your

doctor's wether you get treated with Prednisone, Imuran or one of the other drugs.. You're one half of the team.. As Tracie has pointed out many times there are medications for Peptic Ulcer Disease, and if you or your doctor doesn't want to take the risk, what exactly do you want Tracie to do for you? She's sick herself, and fighting the same disease you are... I find you a bit disrespectful to her and a bit unrealistic as to what you think she can do for you. When you use all capital letters on the internet it is implied that you are yelling.. I hope this is not the case as Tracie has done nothing but try to help you and others.. give her a break.... Your's truly, -- Re: to gary Tracie, I don't have ANXIETY about the outcome of this Sarcoidosis and as well having this Peptic Ulcer Disease. Zero percent in regards to ANXIETY. BUT THIS OTHER BLANKLTY BLANK WORD, NAMELY STRESS is and always has been all said and done the major contributitor to why I developed Peptic Ulcer Disease. Such

events as WHAT HAPPENED A WEEK AGO TODAY WHILE DOING ONE OF THESE THREE NEWSPAPER ROUTES WE WORK ON. I'LL RESERVE THAT TO MAYBE ANOTHER DAY LIKE TOMORROW OR WHENEVER. JUST A TYPICAL EVENT AMOUNG HUNDREDS OR EVEN THOUSANDS OF THESE STUPID THINGS THAT HAPPENED IN OUR LIVES. Tracie, I've asked this rheumologist doctor this past May I think it was, then my primary care doctor (this old fart doctor I had there at the V.A. retired a few weeks ago) a few weeks later in June, and an neurologist doctor at Ann Arbor V.A. Hospital this past fall to HAVE AN MRI DONE ON BOTH OF MY LEGS. THEY ALL REFUSED. THE FIRST DOCTOR AND THE LAST ONE IN THE ABOVE MENTIONED SEQUENCIAL OF VISITS WILL NOT PRESCRIBE PREDNISONE FOR ME, PERIOD!!!!!!!! That goes for ANYOTHER ANTI-INFLAMMATARY DRUG SUCH AS

IMURAN. WHY?????? IT'S BECAUSE OF THIS DAMM STOMACH PEPTIC ULCER(S) THAT I HAVE A HISTORY OF HAVING. Last year this pain in both of my legs and my knees increased to the point I WANTED TO HAVE AN MRI DONE ON BOTH OF MY LEGS, OR Ct-scan AND NO DOCTORS AT THE V.A. WOULD DO NOTHING FAR AS TESTING WHAT THIS PAIN WAS CAUSE BY. ON A SCALE OF 0 TO 10, WHERE 0 IS NO PAIN, 10 IS WHERE YOU PUT A LOADED GUN TO YOUR HEAD AND FIRE AWAY, MY PAIN IN MY ESTIMATE WAS A 8 OR 8.5 ON THIS SCALE. This pain was there from May, 2005 into November, 2005 and it decrease on it's own. This spring this pain in the same area was around a 4 on that scale I wrote about. All said and done, I may have a slowly detoriation of my joints in both of my knees and as well my muscles, ligaments, etc. in my legs, and lessor extent in both my ankles. But anyway, I'am just like say someone with Rheumotiod Arthristis

going on with them and they don't take any anti-inflammatary drugs like that damm Prednisone because of having Peptic Ulcer Disease. I think I wrote about something before or maybe not. That is HOW CAN I HANDLE ANY, ANY ANTI-INFLAMMATARY DRUGS SUCH AS PREDNISONE WHEN MY STOMACH CAN'T EVEN HANDLE DAMM ASPRIN???? That sometime moron dad of mine takes one asprin a day as blood thinner relating to his heart. If it came to that I had to take asprin like that sometime creep of a father, I refuse. If refusing would result in my dying, so what. I mentioned before what Dr. Krieger who was my primary care doctor between August, 1999 to November, 2001 told me here with this group. I'll just repeat it now because I mentioned this so long time ago (fall 2004). Dr. Krieger said that "I should never take asprin or ibroprophen, because long use of this would very well develop into a bleeding ulcer". Also he said

", you don't resolve having these stomach ulcers, this will develop into stomach cancer". I DID NOT PUT ALL THESE WORDS INTO THIS DOCTOR'S BRAIN NOR TOLD HIM TO SAY OF THE SUCH. THE VERY SAME CLASS OF DRUGS AND EVEN MORE STRONGER ONES OF ANTI-INFLAMMATARY IN NATURE THAT I SUPOSE TO NOT TAKE BECAUSE OF MY STOMACH IS THE SAME ONES TO USE ON THIS DAMM INFLAMMATARY PAIN IN MY LEGS AND PAIN IN MY KNEES. I just wish you would have a open mind Tracie, and try to understand I'am in a shitville situation of taking a drug like Prednisone or not. 10-4, tiodaat (AT) aol (DOT) com wrote: In a message dated 12/5/06 8:45:41 PM Pacific Standard Time, garyjwoolard (AT) yahoo (DOT) com

writes: Tracie??? You know alot about this thing called Sarcoidosis, but you seemed to me don't know this precarious situation I have even you and myself discuss this before,You are right-- I don't know shit about peptic ulcer disease. I do know sarc-- and I'm learning every day. -- I'm not a doctor. As for the choices you make now, or may have to make-- then my attitude is worry about those things when and if they happen. When you put so much energy into worrying about something that has not happened, you cripple yourself. You make it impossible for your medical providers to help you. I don't have the

answers . You asked for my opinion-- and I gave it to you. If you are miserable and in pain-- then get the balls to seek treatment. The rest of us have to == and we all have the same issues and concerns as to whether the treatment we start will work, whether it'll cause us cancer or lymphoma or leukemia or hopefully-- make us better without any of these Possible side effects.I look at the cup as being half full-- you choose it to be half empty. Everything we do has potential benefit, or loss. I can tell you that taking the chance to increase the quality of my life is what I'm about. It's also what I want for each and every member of this list.I wish you a pleasant holiday, and hope that you'll find some Peace and Comfort in your life.Sincerely,TracieNS Co-owner/moderator __________________________________________________

[Guest guest]

, what makes you think she don't understand?

-- Re: to gary

Tracie,

I don't have ANXIETY about the outcome of this Sarcoidosis and as well having this Peptic Ulcer Disease. Zero percent in regards to ANXIETY. BUT THIS OTHER BLANKLTY BLANK WORD, NAMELY STRESS is and always has been all said and done the major contributitor to why I developed Peptic Ulcer Disease. Such events as WHAT HAPPENED A WEEK AGO TODAY WHILE DOING ONE OF THESE THREE NEWSPAPER ROUTES WE WORK ON. I'LL RESERVE THAT TO MAYBE ANOTHER DAY LIKE TOMORROW OR WHENEVER. JUST A TYPICAL EVENT AMOUNG HUNDREDS OR EVEN THOUSANDS OF THESE STUPID THINGS THAT HAPPENED IN OUR LIVES. Tracie, I've asked this rheumologist doctor this past May I think it was, then my primary care doctor (this old fart doctor I had there at the V.A. retired a few weeks ago) a few weeks later in June, and an neurologist doctor at Ann Arbor V.A. Hospital this past fall to HAVE AN MRI DONE ON BOTH OF MY LEGS. THEY ALL REFUSED. THE FIRST DOCTOR AND THE LAST ONE IN THE ABOVE MENTIONED SEQUENCIAL OF VISITS WILL NOT PRESCRIBE PREDNISONE FOR ME, PERIOD!!!!!!!! That goes for ANYOTHER ANTI-INFLAMMATARY DRUG SUCH AS IMURAN. WHY?????? IT'S BECAUSE OF THIS DAMM STOMACH PEPTIC ULCER(S) THAT I HAVE A HISTORY OF HAVING.

Last year this pain in both of my legs and my knees increased to the point I WANTED TO HAVE AN MRI DONE ON BOTH OF MY LEGS, OR Ct-scan AND NO DOCTORS AT THE V.A. WOULD DO NOTHING FAR AS TESTING WHAT THIS PAIN WAS CAUSE BY. ON A SCALE OF 0 TO 10, WHERE 0 IS NO PAIN, 10 IS WHERE YOU PUT A LOADED GUN TO YOUR HEAD AND FIRE AWAY, MY PAIN IN MY ESTIMATE WAS A 8 OR 8.5 ON THIS SCALE. This pain was there from May, 2005 into November, 2005 and it decrease on it's own. This spring this pain in the same area was around a 4 on that scale I wrote about. All said and done, I may have a slowly detoriation of my joints in both of my knees and as well my muscles, ligaments, etc. in my legs, and lessor extent in both my ankles. But anyway, I'am just like say someone with Rheumotiod Arthristis going on with them and they don't take any anti-inflammatary drugs like that damm Prednisone because of having Peptic Ulcer Disease. I think I wrote about something before or maybe not. That is HOW CAN I HANDLE ANY, ANY ANTI-INFLAMMATARY DRUGS SUCH AS PREDNISONE WHEN MY STOMACH CAN'T EVEN HANDLE DAMM ASPRIN???? That sometime moron dad of mine takes one asprin a day as blood thinner relating to his heart. If it came to that I had to take asprin like that sometime creep of a father, I refuse. If refusing would result in my dying, so what.

I mentioned before what Dr. Krieger who was my primary care doctor between August, 1999 to November, 2001 told me here with this group. I'll just repeat it now because I mentioned this so long time ago (fall 2004). Dr. Krieger said that "I should never take asprin or ibroprophen, because long use of this would very well develop into a bleeding ulcer". Also he said ", you don't resolve having these stomach ulcers, this will develop into stomach cancer". I DID NOT PUT ALL THESE WORDS INTO THIS DOCTOR'S BRAIN NOR TOLD HIM TO SAY OF THE SUCH. THE VERY SAME CLASS OF DRUGS AND EVEN MORE STRONGER ONES OF ANTI-INFLAMMATARY IN NATURE THAT I SUPOSE TO NOT TAKE BECAUSE OF MY STOMACH IS THE SAME ONES TO USE ON THIS DAMM INFLAMMATARY PAIN IN MY LEGS AND PAIN IN MY KNEES.

I just wish you would have a open mind Tracie, and try to understand I'am in a shitville situation of taking a drug like Prednisone or not.

10-4,

tiodaat (AT) aol (DOT) com wrote:

In a message dated 12/5/06 8:45:41 PM Pacific Standard Time, garyjwoolard (AT) yahoo (DOT) com writes:

Tracie??? You know alot about this thing called Sarcoidosis, but you seemed to me don't know this precarious situation I have even you and myself discuss this before,You are right-- I don't know shit about peptic ulcer disease. I do know sarc-- and I'm learning every day. -- I'm not a doctor. As for the choices you make now, or may have to make-- then my attitude is worry about those things when and if they happen. When you put so much energy into worrying about something that has not happened, you cripple yourself. You make it impossible for your medical providers to help you. I don't have the answers . You asked for my opinion-- and I gave it to you. If you are miserable and in pain-- then get the balls to seek treatment. The rest of us have to == and we all have the same issues and concerns as to whether the treatment we start will work, whether it'll cause us cancer or lymphoma or leukemia or hopefully-- make us better without any of these Possible side effects.I look at the cup as being half full-- you choose it to be half empty. Everything we do has potential benefit, or loss. I can tell you that taking the chance to increase the quality of my life is what I'm about. It's also what I want for each and every member of this list.I wish you a pleasant holiday, and hope that you'll find some Peace and Comfort in your life.Sincerely,TracieNS Co-owner/moderator

__________________________________________________

[Guest guest]

,

Over the last 5 yrs this group has been around, we've received over 75,000 emails. Seventy five thousand-- are we going to look up a post that you sent years back-- no way.

As for not knowing about Peptic Ulcer Disease. For 7 years I worked as the Office Manager for an Internal Medicine Doctor. Approximately 37% of his patients had PUD. In this office, lunch hour was spent in the breakroom-- with him--explaining to us the challenges of the different conditions he treated. In that time frame, I did learn alot about PUD. I learned also that if you are eating right, working to reduce your stress levels, taking the medications as directed, that this can be controlled. If an situation comes up that requires you to be on a medication that may complicate your "pre-existing medical condition" then by the MD knowing about this problem-- they can add a medication to help you avoid the reoccurance of PUD.

I know you are on a tightrope, -- we all are.

For instance, I am increasing my Remicade dose strength. This means that I am increasing my chance of developing Leukemia or Lymphoma.

However, I refuse to tell myself that this will happen. I'm not willing to "self-talk" myself into another problem. If I was living in fear of the "what if" part of my treatment-- I would have been dead 15 months ago.

, YOU asked me what I would do if I was in your shoes. I told you I'd take the chance with treatment-- antidepressants, anti=inflammatories, etc--so that I could live comfortably. If I developed an ulcer, I'd be treating it.

That's just how we're different. I prefer to take the chance of getting better, than staying stuck and miserable. You like miserable. Otherwise, you'd be doing somehting about it.

--we're all getting tired of the doing this dance. You know what you need to do-- and you just want to grip about how bad you have it. Remember this-- you're still alive, able to take long walks, get to the library multiple times a week-- and many of the members here are home bound.

, get a life.

Sincerely,

Tracie

[Guest guest]

, Tracie knows alot if not most about Sarcoidosis from research she has done about this disease and related stuff such as testing, drugs, doctors, etc. But she doesn't understand "the delicate" or "tightrope" medcial situation I'am in. She has written that a relative that develop stomach cancer and was treated sucessfully for this cancer. I think it was an uncle of hers. Whether it was her uncle or a woman, this person is and was one of the lucky few people to get over stomach cancer. From what I understand about this cancer, a person gets this type of cancer they live only up to 3 years. I stated before in this "big mass of writings" that my brother in law died from stomach cancer. He very well ate smoked meats often, perhaps had "Type A" Blood (I have "Type O" Blood), and had unsanitary food storage and care of the food he ate (I seen this last item scenario at that old house he lived in with food left out for long time period and

should have been put in the fridge). All the above situations listed above are risks involved in a person getting stomach cancer. My risks are like I stated before with this group are, (1) over 20 years of Peptic Ulcer Disease (I have 26 years of this as of this month), (2) chronic history of having Peptic Ulcer Disease, (3) chronic history of testing postive for H-pylori Bacteria in blood tests (I tested at least 6 times perhaps as much as 8 times over since the low 1980's, is this chronic history testing of just this amount of times? I don't know that answer.) If, If I had the worst of this Sarcoidosis and being near death from it and by some reason this goes away completely from my entire body whether by a divine intervention or whatever means, THAT WOULD NOT be a miracle in my view compared to NOT getting stomach cancer years and years ago. In the paragraph above in parenesis I stated I have this Peptic Ulcer Disease for 26 years. I was

diagnois of Sarcoidosis now it has been for almost 5 years. It's not like I delevop Sarcoidosis and all or any of these other health issues, it's the other way around. I written about this whole medical crap situation I've been facing before with the first about this about in October, 2004. I just feel at times I wrote about this and it's like I'am talking to a concrete wall, or a dead horse as those sayings go. I'am probility not the first person in the world that had a "pre-existing health condition" that directly or undirectly would affect a person's treatment for a latter health issue that happens. I don't have anxiety that this stomach ulcers will lead to a bleeding ulcer and then unto a stomach cancer. No, that idea is not going on in my brain. But I DO KNOW that taking drugs such as asprin, ibroprohen, and even more these anti-inflammatary drugs such as Prednisone will make stomach ulcer(s) worse to the point of having a bleeding ulcer. I think our Kuitwati Kim

herself stated she went off taking Prednisone in part because this drug was too hard on her stomach. At times this stomach ulcer gets worse because of stress do to the stomach putting out more stomach acid because of the stress or/and because of certain foods I eat which at the time I've thought I could handle. I've taken antibotics over the years to rid my body of this H-pylori Bacteria and only have been mildly sucessful. September, 2001 I was on a program deemed the best for ridding of H-pylori Bacteria that a person had to take 4 pills twice a day for 2 weeks straight. This may be the very best treatment for this now as back then. By that Christmas, 2001 these symptoms of this stomach ulcer return. Since then I have tested positive again for this. I have something to write again. I wrote about this before back in about October, 2001. Unless you or anyone else look this up in the archives, I could write about that in another post. No time

today though. wrote: , what makes you think she don't understand? -- Re: to gary Tracie, I don't have ANXIETY about the outcome of this Sarcoidosis and as well having this Peptic Ulcer Disease. Zero percent in regards to

ANXIETY. BUT THIS OTHER BLANKLTY BLANK WORD, NAMELY STRESS is and always has been all said and done the major contributitor to why I developed Peptic Ulcer Disease. Such events as WHAT HAPPENED A WEEK AGO TODAY WHILE DOING ONE OF THESE THREE NEWSPAPER ROUTES WE WORK ON. I'LL RESERVE THAT TO MAYBE ANOTHER DAY LIKE TOMORROW OR WHENEVER. JUST A TYPICAL EVENT AMOUNG HUNDREDS OR EVEN THOUSANDS OF THESE STUPID THINGS THAT HAPPENED IN OUR LIVES. Tracie, I've asked this rheumologist doctor this past May I think it was, then my primary care doctor (this old fart doctor I had there at the V.A. retired a few weeks ago) a few weeks later in June, and an neurologist doctor at Ann Arbor V.A. Hospital this past fall to HAVE AN MRI DONE ON BOTH OF MY LEGS. THEY ALL REFUSED. THE FIRST DOCTOR AND THE LAST ONE IN THE ABOVE MENTIONED SEQUENCIAL OF VISITS WILL NOT PRESCRIBE PREDNISONE

FOR ME, PERIOD!!!!!!!! That goes for ANYOTHER ANTI-INFLAMMATARY DRUG SUCH AS IMURAN. WHY?????? IT'S BECAUSE OF THIS DAMM STOMACH PEPTIC ULCER(S) THAT I HAVE A HISTORY OF HAVING. Last year this pain in both of my legs and my knees increased to the point I WANTED TO HAVE AN MRI DONE ON BOTH OF MY LEGS, OR Ct-scan AND NO DOCTORS AT THE V.A. WOULD DO NOTHING FAR AS TESTING WHAT THIS PAIN WAS CAUSE BY. ON A SCALE OF 0 TO 10, WHERE 0 IS NO PAIN, 10 IS WHERE YOU PUT A LOADED GUN TO YOUR HEAD AND FIRE AWAY, MY PAIN IN MY ESTIMATE WAS A 8 OR 8.5 ON THIS SCALE. This pain was there from May, 2005 into November, 2005 and it decrease on it's own. This spring this pain in the same area was around a 4 on that scale I wrote about. All said and done, I may have a slowly detoriation of my joints in both of my

knees and as well my muscles, ligaments, etc. in my legs, and lessor extent in both my ankles. But anyway, I'am just like say someone with Rheumotiod Arthristis going on with them and they don't take any anti-inflammatary drugs like that damm Prednisone because of having Peptic Ulcer Disease. I think I wrote about something before or maybe not. That is HOW CAN I HANDLE ANY, ANY ANTI-INFLAMMATARY DRUGS SUCH AS PREDNISONE WHEN MY STOMACH CAN'T EVEN HANDLE DAMM ASPRIN???? That sometime moron dad of mine takes one asprin a day as blood thinner relating to his heart. If it came to that I had to take asprin like that sometime creep of a father, I refuse. If refusing would result in my dying, so what. I mentioned before what Dr. Krieger who was my primary care doctor between August, 1999 to November, 2001 told me here with this group. I'll just repeat it now because I mentioned this so long time ago (fall

2004). Dr. Krieger said that "I should never take asprin or ibroprophen, because long use of this would very well develop into a bleeding ulcer". Also he said ", you don't resolve having these stomach ulcers, this will develop into stomach cancer". I DID NOT PUT ALL THESE WORDS INTO THIS DOCTOR'S BRAIN NOR TOLD HIM TO SAY OF THE SUCH. THE VERY SAME CLASS OF DRUGS AND EVEN MORE STRONGER ONES OF ANTI-INFLAMMATARY IN NATURE THAT I SUPOSE TO NOT TAKE BECAUSE OF MY STOMACH IS THE SAME ONES TO USE ON THIS DAMM INFLAMMATARY PAIN IN MY LEGS AND PAIN IN MY KNEES. I just wish you would have a open mind Tracie, and try to understand I'am in a shitville situation of taking a drug like Prednisone or not. 10-4, tiodaat (AT) aol (DOT) com wrote: In a message dated 12/5/06 8:45:41 PM Pacific Standard Time, garyjwoolard (AT) yahoo (DOT) com writes: Tracie??? You know alot about this thing called Sarcoidosis, but you seemed to me don't know this precarious situation I have even you and myself discuss this before,You are right-- I don't know shit about peptic ulcer disease. I do know sarc-- and I'm learning every day. -- I'm not a doctor. As for the choices you make now, or may have to make-- then my attitude is worry about those things when and if they happen. When you put so much energy into worrying about something

that has not happened, you cripple yourself. You make it impossible for your medical providers to help you. I don't have the answers . You asked for my opinion-- and I gave it to you. If you are miserable and in pain-- then get the balls to seek treatment. The rest of us have to == and we all have the same issues and concerns as to whether the treatment we start will work, whether it'll cause us cancer or lymphoma or leukemia or hopefully-- make us better without any of these Possible side effects.I look at the cup as being half full-- you choose it to be half empty. Everything we do has potential benefit, or loss. I can tell you that taking the chance to increase the quality of my life is what I'm about. It's also what I want for each and every member of this list.I wish you a pleasant holiday, and hope that you'll find some Peace and Comfort in your

life.Sincerely,TracieNS Co-owner/moderator __________________________________________________

[Guest guest]

,

I don't believe I have written to you before. I don't know all of your situation because my memory is so bad that I cannot remember all of my own situation. But reading this email made me want to respond.

It does sound as if you have many worries and fears.

You know that H-pylori Bacterium is curable by taking an antibiotic. You just have to take the right one in the right way. What has caused your long history of Peptic Ulcer Disease? If they think it was caused by the H-Pylori and the antibiotics heal that, then you have no more Peptic Ulcer Disease. Now you may have to take something forever to keep it at bay. But, once you have been free for 4 or 5 years I don't think your chances of getting stomach cancer is any higher than anybody elses. My husband had Peptic Ulcer disease for twenty years and that is what his doctors told him. He was even admitted to the hospital once for what they thought was Stomach Cancer. Thank God it was not. But with medications and some life style changes, (do you smoke?) He has been Ulcer free for 28 years now. He now has Diabetes and that is probably what will get him.

You state that you won't take prednisone because of the side effects and yet you take 8 aceteminiphen tablets a day. Well which is worse Stomach Cancer or Liver cancer? You can get cancer by worrying all the time. Where will that strike, I don't know, but Cancer is Cancer, it is all bad.

It is true that Kim went off the prednisone, but it sounds like she is much worse off now, so I would choose the prednisone as long as I could if it were helping me. And I am sure Kim made that same decision.

We have to make positive decisions to try to make ourselves better. If we choose not to make any decisions out of fear then we will surely be sick.

we are all going to die. If you have been sick a lot (I know you are still young) then I can understand your fear. But I tell you this, You must learn to control the fear or you will not live a long life. You will not live a happy short life, either. All in all, if fear controls your life, you might as well be dead anyway.

Take a chance and take something that relieves your pain and that will be a great start. It is hard to make good decisions when you are pain ridden.

I wish you the very best.

Barb J.

Re: to gary

Tracie,

I don't have ANXIETY about the outcome of this Sarcoidosis and as well having this Peptic Ulcer Disease. Zero percent in regards to ANXIETY. BUT THIS OTHER BLANKLTY BLANK WORD, NAMELY STRESS is and always has been all said and done the major contributitor to why I developed Peptic Ulcer Disease. Such events as WHAT HAPPENED A WEEK AGO TODAY WHILE DOING ONE OF THESE THREE NEWSPAPER ROUTES WE WORK ON. I'LL RESERVE THAT TO MAYBE ANOTHER DAY LIKE TOMORROW OR WHENEVER. JUST A TYPICAL EVENT AMOUNG HUNDREDS OR EVEN THOUSANDS OF THESE STUPID THINGS THAT HAPPENED IN OUR LIVES. Tracie, I've asked this rheumologist doctor this past May I think it was, then my primary care doctor (this old fart doctor I had there at the V.A. retired a few weeks ago) a few weeks later in June, and an neurologist doctor at Ann Arbor V.A. Hospital this past fall to HAVE AN MRI DONE ON BOTH OF MY LEGS. THEY ALL REFUSED. THE FIRST DOCTOR AND THE

LAST ONE IN THE ABOVE MENTIONED SEQUENCIAL OF VISITS WILL NOT PRESCRIBE PREDNISONE FOR ME, PERIOD!!!!!! !! That goes for ANYOTHER ANTI-INFLAMMATARY DRUG SUCH AS IMURAN. WHY?????? IT'S BECAUSE OF THIS DAMM STOMACH PEPTIC ULCER(S) THAT I HAVE A HISTORY OF HAVING.

Last year this pain in both of my legs and my knees increased to the point I WANTED TO HAVE AN MRI DONE ON BOTH OF MY LEGS, OR Ct-scan AND NO DOCTORS AT THE V.A. WOULD DO NOTHING FAR AS TESTING WHAT THIS PAIN WAS CAUSE BY. ON A SCALE OF 0 TO 10, WHERE 0 IS NO PAIN, 10 IS WHERE YOU PUT A LOADED GUN TO YOUR HEAD AND FIRE AWAY, MY PAIN IN MY ESTIMATE WAS A 8 OR 8.5 ON THIS SCALE. This pain was there from May, 2005 into November, 2005 and it decrease on it's own. This spring this pain in the same area was around a 4 on that scale I wrote about. All said and done, I may have a slowly detoriation of my joints in both of my knees and as well my muscles, ligaments, etc. in my legs, and lessor extent in both my ankles. But anyway, I'am just like say someone with Rheumotiod Arthristis going on with them and they don't take any anti-inflammatary drugs like that damm Prednisone because of having Peptic Ulcer Disease. I think I wrote about

something before or maybe not. That is HOW CAN I HANDLE ANY, ANY ANTI-INFLAMMATARY DRUGS SUCH AS PREDNISONE WHEN MY STOMACH CAN'T EVEN HANDLE DAMM ASPRIN???? That sometime moron dad of mine takes one asprin a day as blood thinner relating to his heart. If it came to that I had to take asprin like that sometime creep of a father, I refuse. If refusing would result in my dying, so what.

I mentioned before what Dr. Krieger who was my primary care doctor between August, 1999 to November, 2001 told me here with this group. I'll just repeat it now because I mentioned this so long time ago (fall 2004). Dr. Krieger said that "I should never take asprin or ibroprophen, because long use of this would very well develop into a bleeding ulcer". Also he said ", you don't resolve having these stomach ulcers, this will develop into stomach cancer". I DID NOT PUT ALL THESE WORDS INTO THIS DOCTOR'S BRAIN NOR TOLD HIM TO SAY OF THE SUCH. THE VERY SAME CLASS OF DRUGS AND EVEN MORE STRONGER ONES OF ANTI-INFLAMMATARY IN NATURE THAT I SUPOSE TO NOT TAKE BECAUSE OF MY STOMACH IS THE SAME ONES TO USE ON THIS DAMM INFLAMMATARY PAIN IN MY LEGS AND PAIN IN MY KNEES.

I just wish you would have a open mind Tracie, and try to understand I'am in a shitville situation of taking a drug like Prednisone or not.

10-4,

tiodaat (AT) aol (DOT) com wrote:

In a message dated 12/5/06 8:45:41 PM Pacific Standard Time, garyjwoolard@ yahoo.com writes:

Tracie??? You know alot about this thing called Sarcoidosis, but you seemed to me don't know this precarious situation I have even you and myself discuss this before,You are right-- I don't know shit about peptic ulcer disease. I do know sarc-- and I'm learning every day. -- I'm not a doctor. As for the choices you make now, or may have to make-- then my attitude is worry about those things when and if they happen. When you put so much energy into worrying about something that has not happened, you cripple yourself. You make it impossible for your medical providers to help you. I don't have the answers . You asked for my opinion-- and I gave it to you. If you are miserable and in pain-- then get the balls to seek treatment. The rest of us have to == and we all have

the same issues and concerns as to whether the treatment we start will work, whether it'll cause us cancer or lymphoma or leukemia or hopefully-- make us better without any of these Possible side effects.I look at the cup as being half full-- you choose it to be half empty. Everything we do has potential benefit, or loss. I can tell you that taking the chance to increase the quality of my life is what I'm about. It's also what I want for each and every member of this list.I wish you a pleasant holiday, and hope that you'll find some Peace and Comfort in your life.Sincerely,TracieNS Co-owner/moderator

____________ _________ _________ _________ _________ __

[Guest guest]

Tracie & Barb, I'am answering some comments that both of you two had written in this e-mail here. Tracie, I don't have that SAD or Seasonal Attitudinal Depression. I may have depression because of my health issues and family issues but at all because of less sunshine in the winter months. This winter in Michigan is unseasonal mild so far. Like today, temperatures in the upper 40's. I see that I'am depressed BECAUSE I don't have the money to go skiing and take up snowboarding. IF I WAS HEALTHY AND WEALTHY I be going skiing out west or back east to June at least in the west and or to May in the east. I wouldn't waste my time here in Michigan. No I be out there like in Breckenridge, Keystone, Vail, & Copper Mountain, Colorado not far where Marla lives in Colorado. I never was no ever will be the person who would enjoy a stupid cruise ship vacation compared to skiing. I remember when I was young in junior high school I was sad because

the last of the snow was melting away on the side of the street in that walk to the school. This area of doing skiing is what I always enjoyed as a recreational sport. You two or anyone else may think that you rather be on the golf course than being around snow and skiing now. But for me this is anti-depressive even now to visit Ski Magazine's website of places to visit. Doing things like this for me then counteracts my negative feelings towards my personal life and life in a general sense. But then again this muscle weakness in my legs makes me to believe that aspect of my past years ago life is becomming a distandant memory. I can't take no weeks off from doing these paperoutes. The way our family (Kathy, Reba, & myself) is in struggling week to week or month to month, I have to help out in taking care of working on these paperoutes. Reba sometimes can't do these paperoute delivery because of her work schedule. Kathy desires to find

work herself and when she does our schedules will be crazy. I'am here at the library on this Tuesday afternoon after going to the V.A. Health Clinic for an ear infection there in my right ear. After seeing someone for this problem and getting prescriptions for other reasons I rode the bus back down to this part of this metro area. Tracie, the weight of these papers in the carrier bag is not causing any trouble for me. I take Extra Strength Meijer brand of Acetaminephen (500 mg. each tablet) now of 6 to even 10 in a 24 hours time period. Meijer is a full service store in this midwest area of the U.S. If you ever been to a "Super Walmart" store then you know what I mean. It is where you can get groceries, household items, some pets & supplies, hardware, some furniture items, bakery, clothes, & pharmacy items. Like I said in a previous e-mail, on a extra strength bottle of acetaminphen they state, "Do not take more than 8 of these

tablets in 24 hours, because this will result in liver damage". I've known this medical fact for more than 2 years now. But regardless, at times I couldn't stand this damm pain and taking more than I should of this acetaminphen at a dossage time or in 24 hours, just TOO BAD. Mentally and physically I feel like junk/shit at times. I DON'T FEEL THIS WAY 24 HOURS A DAY. Just once in awhile though. I NEVER SAID IN THE PAST THAT I HAVE THIS SARCOIDOSIS WORSE THAN ANYONE IN THIS GROUP OR ANYONE IN THE WORLD FOR THAT MATTER WITH SARCOIDOSIS. I not angry in capitalizing letters here. It's just I'am emphaizing (mispelled?) my point. Yes all said and done, I still have this Sarcoidosis mild compare to other folks with this group. I in essence am saying I never denied I'am in a any worse way than others. Tracie, in the past I stated that I take on myself anyone's or all these peoples' Sarcoidosis was because I just feel worthless, junk, and useless to

myself, family, and society. Again I don't feel this way 24/7 all the time. But there is another way I looked at this, and that is out of love. The good book namely the Bible talks about 6 different kinds of love. One of these is showing carring attitude towards others in society for mankind, womankind, and childkind. I now I haven't done this over this time period I've been writing here, it is just this stupid person just doesn't think about saying such things when I write. Example that comes to my mind is S. and that she states "Hugs" at the end of her e-mails. Barb, I've taken antibotics for years for different reasons. I had this problem of this skin infection (I may have gotten that from unsanitary hair scissors from use at a barber shop) on my face in the early 1990's. I've taken antibotics for this but this germ that cause this has come back to my nose area from time to time. These antibotics may have killed off alot of these

germs, but not perhaps all. This remains dormant for any length of time, but has resurfaces to I have this again. Likewise this symptoms of having Peptic Ulcer disease has it's cycles of where it is bad and at times it is not bad at all. I did take this "best treatment plan" for Peptic Ulcers back in September, 2001 which did include antibotics for everyday 8 pills for this progran for 2 weeks straight. Come that Christmas, 2001 these symptoms of these ulcers came back. These antibotics I used back then was the strongest for this matter. I just can't seem ever to rid myself of having these nonsense germs. Again today I don't have time to write something that pertains to my situation. As y'all know about President Ford and his funeral services. He is planned to be burried on the north side of his museum in downtown Grand Rapids. That's about 8/9 miles from where I live in southern part of this metro area. tiodaat@... wrote: ,Over the last 5 yrs this group has been around, we've received over 75,000 emails. Seventy five thousand-- are we going to look up a post that you sent years back-- no way.As for not knowing about Peptic Ulcer Disease. For 7 years I worked as the Office Manager for an Internal Medicine Doctor. Approximately 37% of his patients had PUD. In this office,

lunch hour was spent in the breakroom-- with him--explaining to us the challenges of the different conditions he treated. In that time frame, I did learn alot about PUD. I learned also that if you are eating right, working to reduce your stress levels, taking the medications as directed, that this can be controlled. If an situation comes up that requires you to be on a medication that may complicate your "pre-existing medical condition" then by the MD knowing about this problem-- they can add a medication to help you avoid the reoccurance of PUD. I know you are on a tightrope, -- we all are. For instance, I am increasing my Remicade dose strength. This means that I am increasing my chance of developing Leukemia or Lymphoma. However, I refuse to tell myself that this will happen. I'm not willing to "self-talk" myself into another problem. If I was living in fear of the "what if" part of my treatment-- I

would have been dead 15 months ago. , YOU asked me what I would do if I was in your shoes. I told you I'd take the chance with treatment-- antidepressants, anti=inflammatories, etc--so that I could live comfortably. If I developed an ulcer, I'd be treating it. That's just how we're different. I prefer to take the chance of getting better, than staying stuck and miserable. You like miserable. Otherwise, you'd be doing somehting about it.--we're all getting tired of the doing this dance. You know what you need to do-- and you just want to grip about how bad you have it. Remember this-- you're still alive, able to take long walks, get to the library multiple times a week-- and many of the members here are home bound. , get a life.Sincerely,Tracie __________________________________________________

[Guest guest]

Hi

I don't post either because of the same memory situation but when

Barb J mentioned H-Pylori it jogged my memory. I was dx with that about

3 or 4 years ago, was put on a very strong anti-biotic for about 4 days

went back and did a breath test and it was cured. Now I just use a

pantoloc to my stomach from producing too much acid. H-Pylori does

cause Peptic Ulcers.

Happy New Year everyone!

barb J. wrote:

,

I don't believe I have written to you before. I don't know all

of your situation because my memory is so bad that I cannot remember

all of my own situation. But reading this email made me want to respond.

It does sound as if you have many worries and fears.

You know that H-pylori Bacterium is curable by taking an

antibiotic. You just have to take the right one in the right way. What

has caused your long history of Peptic Ulcer Disease? If they think it

was caused by the H-Pylori and the antibiotics heal that, then you have

no more Peptic Ulcer Disease. Now you may have to take something

forever to keep it at bay. But, once you have been free for 4 or 5

years I don't think your chances of getting stomach cancer is any

higher than anybody elses. My husband had Peptic Ulcer disease for

twenty years and that is what his doctors told him. He was even

admitted to the hospital once for what they thought was Stomach Cancer.

Thank God it was not. But with medications and some life style changes,

(do you smoke?) He has been Ulcer free for 28 years now. He now has

Diabetes and that is probably what will get him.

You state that you won't take prednisone because of the side

effects and yet you take 8 aceteminiphen tablets a day. Well which is

worse Stomach Cancer or Liver cancer? You can get cancer by worrying

all the time. Where will that strike, I don't know, but Cancer is

Cancer, it is all bad.

It is true that Kim went off the prednisone, but it sounds like

she is much worse off now, so I would choose the prednisone as long as

I could if it were helping me. And I am sure Kim made that same

decision.

We have to make positive decisions to try to make ourselves

better. If we choose not to make any decisions out of fear then we will

surely be sick.

we are all going to die. If you have been sick a lot (I know you

are still young) then I can understand your fear. But I tell you this,

You must learn to control the fear or you will not live a long life.

You will not live a happy short life, either. All in all, if fear

controls your life, you might as well be dead anyway.

Take a chance and take something that relieves your pain and

that will be a great start. It is hard to make good decisions when you

are pain ridden.

I wish you the very best.

Barb J.

-----

Original Message ----

To: Neurosarcoidosis

Sent: Friday, December 29, 2006 1:33:33 PM

Subject: Re: to gary

,

Tracie knows alot if not most about Sarcoidosis from research

she has done about this disease and related stuff such as testing,

drugs, doctors, etc. But she doesn't understand "the delicate" or

"tightrope" medcial situation I'am in. She has written that a relative

that develop stomach cancer and was treated sucessfully for this

cancer. I think it was an uncle of hers. Whether it was her uncle or a

woman, this person is and was one of the lucky few people to get over

stomach cancer. From what I understand about this cancer, a person gets

this type of cancer they live only up to 3 years. I stated before in

this "big mass of writings" that my brother in law died from stomach

cancer. He very well ate smoked meats often, perhaps had "Type A" Blood

(I have "Type O" Blood), and had unsanitary food storage and care of

the food he ate (I seen this last item scenario at that old house he

lived in with food left out for long time period and should have been

put in the fridge). All the above situations listed above are risks

involved in a person getting stomach cancer. My risks are like I stated

before with this group are, (1) over 20 years of Peptic Ulcer Disease

(I have 26 years of this as of this month), (2) chronic history of

having Peptic Ulcer Disease, (3) chronic history of testing postive for

H-pylori Bacteria in blood tests (I tested at least 6 times perhaps as

much as 8 times over since the low 1980's, is this chronic history

testing of just this amount of times? I don't know that answer.)

If, If I had the worst of this Sarcoidosis and being near death

from it and by some reason this goes away completely from my entire

body whether by a divine intervention or whatever means, THAT WOULD NOT

be a miracle in my view compared to NOT getting stomach cancer years

and years ago. In the paragraph above in parenesis I stated I have this

Peptic Ulcer Disease for 26 years. I was diagnois of Sarcoidosis now it

has been for almost 5 years. It's not like I delevop Sarcoidosis and

all or any of these other health issues, it's the other way around. I

written about this whole medical crap situation I've been facing before

with the first about this about in October, 2004. I just feel at times

I wrote about this and it's like I'am talking to a concrete wall, or a

dead horse as those sayings go. I'am probility not the first person in

the world that had a "pre-existing health condition" that directly or

undirectly would affect a person's treatment for a latter health issue

that happens. I don't have anxiety that this stomach ulcers will lead

to a bleeding ulcer and then unto a stomach cancer. No, that idea is

not going on in my brain. But I DO KNOW that taking drugs such as

asprin, ibroprohen, and even more these anti-inflammatary drugs such as

Prednisone will make stomach ulcer(s) worse to the point of having a

bleeding ulcer. I think our Kuitwati Kim herself stated she went off

taking Prednisone in part because this drug was too hard on her

stomach. At times this stomach ulcer gets worse because of stress do to

the stomach putting out more stomach acid because of the stress or/and

because of certain foods I eat which at the time I've thought I could

handle. I've taken antibotics over the years to rid my body of this

H-pylori Bacteria and only have been mildly sucessful. September, 2001

I was on a program deemed the best for ridding of H-pylori Bacteria

that a person had to take 4 pills twice a day for 2 weeks straight.

This may be the very best treatment for this now as back then. By that

Christmas, 2001 these symptoms of this stomach ulcer return. Since then

I have tested positive again for this.

I have something to write again. I wrote about this before back

in about October, 2001. Unless you or anyone else look this up in the

archives, I could write about that in another post. No time today

though.

wrote:

, what makes you think she don't

understand?

-------Original

Message----- --

From: GARY

WOOLARD

Date:

12/28/06 17:16:24

To: Neurosarcoidosis@ yahoogroups. com

Subject:

Re: to gary

,

I used capital letters to try to make my point clear to

Tracie. Was I in a frustrating mood? Yes. But I don't think I was

"yelling". I don't have the list of medcines that I'am taking now. I

stated my list of medcines a long time ago. Anyway, I'am taking medcine

for my stomach, this periheral neuropathy nerve pain, blood pressure

medcine, and this Salsalate drug that Tracie described about this in a

e-mail before. This last one is a rheumology drug. I'am SUPPOSE TO take

only ONE with food or milk, alot of times I've taken TWO AT ONE TIME.

This in itself may very well damaging my liver. So what, if it is doing

that, I can't stand the pain at time. If I spaced out taking this with

food throughout the day, perhaps overall it would be better. It is said

than done. I need to eat a regular meal when taking this drug and when

I away from my apartment I can't do that because little if no money to

stop somewhere and eat at like Burger King for example. I am taking

acetamephen of extra strength kind (500 mg. each tablet) anywhere from

6 to 10 tablets of these a day on top of all this other medcine. I know

that everytime I take more than 8 of these in less than 24 hours, this

in itself damages my liver. Just read on the label of these bottles.

Pain list: not in order of most to least or least to

most important levels. Just it comes to my mind.

(1) Pain in both my knees and lessor in other bones

(2) Pain in both my legs other than knees.

(3) Periheral Neuropathy

These first three from Sarcoidosis? Perhaps.

(4) Pain in my back from the discs and spine, Scoliosis.

<topdat (AT) bellsouth (DOT) net> wrote:

, seems to me that Tracie has

tried to give you her opinion wether or not you like her answer or not.

that's not really my concern here. I like you and many others on this

list don't feel well, we've had crappy doctor's that won't do anything

for us, or at least that's the way we feel. You mentioned in your

letter that you're in "Shit'sville" well my dear friend, your not

alone.. many of us are there.. its not just you.. and yes we've got

decisions to make.. its up to you and your doctor's wether you get

treated with Prednisone, Imuran or one of the other drugs.. You're one

half of the team.. As Tracie has pointed out many times there are

medications for Peptic Ulcer Disease, and if you or your doctor doesn't

want to take the risk, what exactly do you want Tracie to do for you?

She's sick herself, and fighting the same disease you are... I find you

a bit disrespectful to her and a bit unrealistic as to what you think

she can do for you. When you use all capital letters on the internet

it is implied that you are yelling.. I hope this is not the case as

Tracie has done nothing but try to help you and others.. give her a

break....

Your's truly,

-------Original

Message----- --

From:

GARY WOOLARD

Date:

12/27/06 19:26:50

To:

Neurosarcoidosis@ yahoogroups. com

Subject:

Re: to gary

Tracie,

I don't have ANXIETY about the outcome of this

Sarcoidosis and as well having this Peptic Ulcer Disease. Zero percent

in regards to ANXIETY. BUT THIS OTHER BLANKLTY BLANK WORD, NAMELY

STRESS is and always has been all said and done the major contributitor

to why I developed Peptic Ulcer Disease. Such events as WHAT HAPPENED A

WEEK AGO TODAY WHILE DOING ONE OF THESE THREE NEWSPAPER ROUTES WE WORK

ON. I'LL RESERVE THAT TO MAYBE ANOTHER DAY LIKE TOMORROW OR WHENEVER.

JUST A TYPICAL EVENT AMOUNG HUNDREDS OR EVEN THOUSANDS OF THESE STUPID

THINGS THAT HAPPENED IN OUR LIVES. Tracie, I've asked this rheumologist

doctor this past May I think it was, then my primary care doctor (this

old fart doctor I had there at the V.A. retired a few weeks ago) a few

weeks later in June, and an neurologist doctor at Ann Arbor V.A.

Hospital this past fall to HAVE AN MRI DONE ON BOTH OF MY LEGS. THEY

ALL REFUSED. THE FIRST DOCTOR AND THE LAST ONE IN THE ABOVE MENTIONED

SEQUENCIAL OF VISITS WILL NOT PRESCRIBE PREDNISONE FOR ME,

PERIOD!!!!!! !! That goes for ANYOTHER ANTI-INFLAMMATARY DRUG SUCH

AS IMURAN. WHY?????? IT'S BECAUSE OF THIS DAMM STOMACH PEPTIC

ULCER(S) THAT I HAVE A HISTORY OF HAVING.

Last year this pain in both of my legs and my

knees increased to the point I WANTED TO HAVE AN MRI DONE ON BOTH OF MY

LEGS, OR Ct-scan AND NO DOCTORS AT THE V.A. WOULD DO NOTHING FAR AS

TESTING WHAT THIS PAIN WAS CAUSE BY. ON A SCALE OF 0 TO 10, WHERE 0 IS

NO PAIN, 10 IS WHERE YOU PUT A LOADED GUN TO YOUR HEAD AND FIRE AWAY,

MY PAIN IN MY ESTIMATE WAS A 8 OR 8.5 ON THIS SCALE. This pain was

there from May, 2005 into November, 2005 and it decrease on it's own.

This spring this pain in the same area was around a 4 on that scale I

wrote about. All said and done, I may have a slowly detoriation of my

joints in both of my knees and as well my muscles, ligaments, etc. in

my legs, and lessor extent in both my ankles. But anyway, I'am just

like say someone with Rheumotiod Arthristis going on with them and they

don't take any anti-inflammatary drugs like that damm Prednisone

because of having Peptic Ulcer Disease. I think I wrote about something

before or maybe not. That is HOW CAN I HANDLE ANY, ANY

ANTI-INFLAMMATARY DRUGS SUCH AS PREDNISONE WHEN MY STOMACH CAN'T EVEN

HANDLE DAMM ASPRIN???? That sometime moron dad of mine takes one

asprin a day as blood thinner relating to his heart. If it came to that

I had to take asprin like that sometime creep of a father, I refuse.

If refusing would result in my dying, so what.

I mentioned before what Dr. Krieger who

was my primary care doctor between August, 1999 to November, 2001 told

me here with this group. I'll just repeat it now because I mentioned

this so long time ago (fall 2004). Dr. Krieger said that "I should

never take asprin or ibroprophen, because long use of this would very

well develop into a bleeding ulcer". Also he said ", you don't

resolve having these stomach ulcers, this will develop into stomach

cancer". I DID NOT PUT ALL THESE WORDS INTO THIS DOCTOR'S BRAIN NOR

TOLD HIM TO SAY OF THE SUCH. THE VERY SAME CLASS OF DRUGS AND EVEN MORE

STRONGER ONES OF ANTI-INFLAMMATARY IN NATURE THAT I SUPOSE TO NOT TAKE

BECAUSE OF MY STOMACH IS THE SAME ONES TO USE ON THIS DAMM INFLAMMATARY

PAIN IN MY LEGS AND PAIN IN MY KNEES.

I just wish you would have a open mind Tracie,

and try to understand I'am in a shitville situation of taking a drug

like Prednisone or not.

10-4,

tiodaat (AT) aol (DOT) com wrote:

In a

message dated 12/5/06 8:45:41 PM Pacific Standard Time, garyjwoolard@

yahoo.com writes:

Tracie??? You

know alot about this thing called Sarcoidosis, but you seemed to me

don't know this precarious situation I have even you and myself discuss

this before

,

You are right-- I don't know shit about peptic ulcer disease. I do

know sarc-- and I'm learning every day.

-- I'm not a doctor.

As for the choices you make now, or may have to make-- then my attitude

is worry about those things when and if they happen. When you put so

much energy into worrying about something that has not happened, you

cripple yourself. You make it impossible for your medical providers to

help you.

I don't have the answers .

You asked for my opinion-- and I gave it to you. If you are miserable

and in pain-- then get the balls to seek treatment.

The rest of us have to == and we all have the same issues and concerns

as to whether the treatment we start will work, whether it'll cause us

cancer or lymphoma or leukemia or hopefully-- make us better without

any of these Possible side effects.

I look at the cup as being half full-- you choose it to be half empty.

Everything we do has potential benefit, or loss. I can tell you that

taking the chance to increase the quality of my life is what I'm

about. It's also what I want for each and every member of this list.

I wish you a pleasant holiday, and hope that you'll find some Peace and

Comfort in your life.

Sincerely,

Tracie

NS Co-owner/moderator

____________ _________ _________ _________

_________ __

[Guest guest]

Hello, Since I wrote last, Tracie nor Barb responded. blushing19, is this some sort of user name you are using, or a spy/ Bond code name??? Don't mind me much, that is just me and my jokes. I've tested postive at least 6 times if not up to say 8 or 9 times for H-pylori Bacteria since the low or mid 1980's. This may or may not be considered as "chronic repetive occurance" of this in the body. I've taken antibotics over the years and this may went away for the "short term", but all said and done may have not rid myself completely. This special treatment that I took for this H-pylori and stomach ulcer condition was the best and perhaps still is the best to rid a person of this once and for all. In previous e-mail I said I took this in September, 2001. One or more of these drugs leaves a person with a metalic (metal) taste in your mouth that is VERY NASTY. I think but I'am not for certain, that it was 2 antibotics, 1

existing acid reducing medcine, and 1 Protein Pump Hibitor (this reduces your stomach to produce more stomach acid). I took these 4 pills like 9:00 a.m. and 12 hours later of these same 4 pills. I did this for everyday for 2 weeks straight. I tried this initially, but I felt I couldn't stand this awful or even terrible awful metalic taste in my mouth. My doctor at the time told me, for me try to get this over completely and be healed of this, I need to take this medcine even though this was such awful taste in your mouth. Well I agreed and did this way back in September, 2002 for those 2 weeks straight and along come about Christmas, 2001 these symptoms of this Peptic Ulcer Disease return. Since those years ago I've tested positive again for H-pylori Bacteria. blushing19, H-pylori may not cause Stomach Peptic Ulcers, but if you do have this bacterim develop in yourself, this H-pylori makes these Stomach Peptic Ulcers worse. Here's what I

wrote I think way back in the fall, 2004 from a medical book called Current Medical Diagnosis Treatment, page #582. "Infection with H-pylori may be an important risk factor for the development of primary gastric lymphoma. Chronic infection with H-pylori causes an intense lymphocytic inflammatory response that may lead to the development of lymphoid follicles. Over 85% of low-grade primary gastric lymphomas and 40% of high-grade lymphomas are associated with H-pylori infection. The risk of developing lymphoma is increased sevenfold in patients with chronic H-pylori infection". I found some websites more about this, but I'am about out of time for today. By the way, Sarcoidosis patients may develop Stomach Peptic Ulcers as a side affect of taking a drug like Prednisone. blushing19 wrote: Hi I don't post either because of the same memory situation but when Barb J mentioned H-Pylori it jogged my memory. I was dx with that about 3 or 4 years ago, was put on a very strong anti-biotic for about 4 days went back and did a breath test and it was cured. Now I just use a pantoloc to my stomach from producing too much acid. H-Pylori does cause Peptic Ulcers.Happy New Year everyone!barb J. wrote:> ,> I don't believe I have written to you before. I don't know all of > your situation because my memory is so bad that I cannot remember all > of my own situation. But reading this email made me want to respond.> It does sound as if you have many worries and fears.> You know that H-pylori Bacterium is curable by taking an > antibiotic. You just have to take the right one in the right way. What > has caused your long

history of Peptic Ulcer Disease? If they think it > was caused by the H-Pylori and the antibiotics heal that, then you > have no more Peptic Ulcer Disease. Now you may have to take something > forever to keep it at bay. But, once you have been free for 4 or 5 > years I don't think your chances of getting stomach cancer is any > higher than anybody elses. My husband had Peptic Ulcer disease for > twenty years and that is what his doctors told him. He was even > admitted to the hospital once for what they thought was Stomach > Cancer. Thank God it was not. But with medications and some life style > changes, (do you smoke?) He has been Ulcer free for 28 years now. He > now has Diabetes and that is probably what will get him.> You state that you won't take prednisone because of the side effects > and yet you take 8 aceteminiphen tablets a day. Well which is worse > Stomach Cancer or

Liver cancer? You can get cancer by worrying all the > time. Where will that strike, I don't know, but Cancer is Cancer, it > is all bad.> It is true that Kim went off the prednisone, but it sounds like she is > much worse off now, so I would choose the prednisone as long as I > could if it were helping me. And I am sure Kim made that same decision.> We have to make positive decisions to try to make ourselves better. If > we choose not to make any decisions out of fear then we will surely be > sick.> we are all going to die. If you have been sick a lot (I know you are > still young) then I can understand your fear. But I tell you this, You > must learn to control the fear or you will not live a long life. You > will not live a happy short life, either. All in all, if fear controls > your life, you might as well be dead anyway.> Take a chance and take something that relieves

your pain and that will > be a great start. It is hard to make good decisions when you are pain > ridden.> I wish you the very best.> Barb J.>> > >>> */ Re: to gary> > Tracie,> > I don't have ANXIETY about the outcome of this Sarcoidosis and as> well having this Peptic Ulcer Disease. Zero percent in regards to> ANXIETY. BUT THIS OTHER BLANKLTY BLANK WORD, NAMELY STRESS is and> always has been all said and done the major contributitor to why I> developed Peptic Ulcer Disease. Such events as WHAT HAPPENED A> WEEK AGO TODAY WHILE DOING ONE OF THESE THREE NEWSPAPER ROUTES WE> WORK ON. I'LL RESERVE THAT TO MAYBE ANOTHER DAY LIKE TOMORROW OR> WHENEVER. JUST A TYPICAL EVENT AMOUNG HUNDREDS OR EVEN THOUSANDS> OF THESE STUPID THINGS THAT HAPPENED IN OUR LIVES. Tracie, I've> asked this rheumologist doctor this past May I think it was, then> my primary care doctor (this old fart doctor I had there at the> V.A. retired a few weeks ago) a few weeks

later in June, and an> neurologist doctor at Ann Arbor V.A. Hospital this past fall to> HAVE AN MRI DONE ON BOTH OF MY LEGS. THEY ALL REFUSED. THE FIRST> DOCTOR AND THE LAST ONE IN THE ABOVE MENTIONED SEQUENCIAL OF> VISITS WILL NOT PRESCRIBE PREDNISONE FOR ME, > PERIOD!!!!!! !! That goes for ANYOTHER ANTI-INFLAMMATARY DRUG > SUCH AS IMURAN. WHY?????? IT'S BECAUSE OF THIS DAMM STOMACH> PEPTIC ULCER(S) THAT I HAVE A HISTORY OF HAVING.> > Last year this pain in both of my legs and my knees increased to> the point I WANTED TO HAVE AN MRI DONE ON BOTH OF MY LEGS,> OR Ct-scan AND NO DOCTORS AT THE V.A. WOULD DO NOTHING FAR AS> TESTING WHAT THIS PAIN WAS CAUSE BY. ON A SCALE OF 0 TO 10, WHERE> 0 IS NO PAIN, 10 IS WHERE YOU PUT A LOADED GUN TO YOUR HEAD AND> FIRE AWAY, MY PAIN IN MY ESTIMATE WAS A 8 OR 8.5 ON THIS> SCALE. This pain was there from May, 2005 into November, 2005

and> it decrease on it's own. This spring this pain in the same> area was around a 4 on that scale I wrote about. All said and> done, I may have a slowly detoriation of my joints in both of my> knees and as well my muscles, ligaments, etc. in my legs, and> lessor extent in both my ankles. But anyway, I'am just like say> someone with Rheumotiod Arthristis going on with them and they> don't take any anti-inflammatary drugs like that damm Prednisone> because of having Peptic Ulcer Disease. I think I wrote about> something before or maybe not. That is HOW CAN I HANDLE ANY, ANY> ANTI-INFLAMMATARY DRUGS SUCH AS PREDNISONE WHEN MY STOMACH CAN'T> EVEN HANDLE DAMM ASPRIN???? That sometime moron dad of mine takes> one asprin a day as blood thinner relating to his heart. If it> came to that I had to take asprin like that sometime creep of a> father, I refuse. If refusing would result in

my dying, so what.> > I mentioned before what Dr. Krieger who was my primary> care doctor between August, 1999 to November, 2001 told me here> with this group. I'll just repeat it now because I mentioned this> so long time ago (fall 2004). Dr. Krieger said that "I should> never take asprin or ibroprophen, because long use of this would> very well develop into a bleeding ulcer". Also he said ", you> don't resolve having these stomach ulcers, this will develop into> stomach cancer". I DID NOT PUT ALL THESE WORDS INTO THIS DOCTOR'S> BRAIN NOR TOLD HIM TO SAY OF THE SUCH. THE VERY SAME CLASS OF> DRUGS AND EVEN MORE STRONGER ONES OF ANTI-INFLAMMATARY IN NATURE> THAT I SUPOSE TO NOT TAKE BECAUSE OF MY STOMACH IS THE SAME ONES> TO USE ON THIS DAMM INFLAMMATARY PAIN IN MY LEGS AND PAIN IN MY KNEES.> > I just wish you would have a open mind Tracie, and try

to> understand I'am in a shitville situation of taking a drug like> Prednisone or not.> > 10-4,> >> */tiodaat (AT) aol (DOT) com/* wrote:> *In a message dated 12/5/06 8:45:41 PM Pacific Standard Time,> garyjwoolard@ yahoo.com writes:>> *> Tracie??? You know alot about this thing called Sarcoidosis, but> you seemed to me don't know this precarious situation I have even> you and myself discuss this before>> *> ,> You are right-- I don't know shit about peptic ulcer disease. I> do know sarc-- and I'm learning every day. > -- I'm not a doctor. > As for the choices you make now, or may have to make-- then my> attitude is worry about those things when and if they happen. When> you put so much energy into worrying about something that has not> happened, you cripple yourself. You make it impossible for

your> medical providers to help you. > I don't have the answers . > You asked for my opinion-- and I gave it to you. If you are> miserable and in pain-- then get the balls to seek treatment. > The rest of us have to == and we all have the same issues and> concerns as to whether the treatment we start will work, whether> it'll cause us cancer or lymphoma or leukemia or hopefully-- make> us better without any of these _Possible _side effects.>> I look at the cup as being half full-- you choose it to be half> empty. Everything we do has potential benefit, or loss. I can> tell you that taking the chance to increase the quality of my life> is what I'm about. It's also what I want for each and every> member of this list.>> I wish you a pleasant holiday, and hope that you'll find some> Peace and Comfort in your life.>> Sincerely,>

Tracie> NS Co-owner/moderator*>> ____________ _________ _________ _________ _________ __>